Social Security Disability for your autistic child

Social Security Disability for your autistic child.

Welcome to Life On Spectrum Living With Autism. We are creating an online community to share stories and celebrate milestones. Story telling through videos and stories allows us all to learn and grow. Please share our community with others as we live our lives on spectrum.

[Roguesheepdog]

My daughter is Autistic, suffers from Epilepsy and ADHD. I waited until she is now 12. I have tried applying, and I still haven't heard anything back. I'm a single parent who works and goes to school full time. I need it it's very expensive to have a person who is medically trained and also skilled in homeschooling her as well as help socialize her in other programs, and then there are the medical bills. I had to quit my 15 year career in law enforcement after gaining full custody of her just so I can be here for her. I am now in medical school to learn more about how I can get her to her full potential as well as this will be my new career upon graduation. The system is too slow and sometimes offers help to the wrong people.

[EQ]

The way things are going u can’t count on what programs are around 20 yrs from now

[sclark]

I had never considered that getting off, would make it harder to get back on. I have an adult family member who is autistic and has a seizure disorder. She does work part-time but has disability payments to cover necessary medication (the part-time job does not have such insurance, and switching to full-time, would still involve a probationary period without insurance unless it's out-of-pocket, which she cannot afford). The medicines are necessary for her to stay alive. She is in a trap. At age 40, she cannot afford to live on her own. She has managed to live with another family member and buy a used car, which is amazing, but it has been hard. She has to track work hours carefully, so she doesn't go over the limit and disqualify herself for benefits, risking her life. My wish is that businesses and insurance companies would support people with serious conditions, who really want to be productive in society, but still need support to live. I would like to see insurance plans offered more for part-time work, or other supports like that.

[shugubrown]

Thank you 🙏🏽 good thing I didn’t follow through when they offered it!!!! I wouldn’t want that for my child…. He have a lot of years to go to have a turn around!!!

[iyunoluolawuyi]

I know this was 6 years ago so I don't know if you'll see this. I planned to get this and my son is 4 years but I didn't know it can have this effect as an adult. We are currently running from "dad" and living in a shelter and we do need it but I'll explore being his PCA and other things before doing this. Thank you for this video.

[joshuachurch]

I'm an unemployed single father. I have lost numerous jobs because of having to leave or call in.. should I apply? My son is 8

[Tra_C]

We applied for our 5 year old autistic son a few years ago but was denied because we owned two cars. Old cars at that, one worth $8k and another worth $5k at the time🤷🏽‍♀️

[danicapapali]

For many of these children, the question has literally never been ‘should you get’ but ‘could you even get it?’

[ygbodybuilder]

Well I don't think that's a big deal if they can't get back on once they have a full time job especially if they are really capable of working with no issues

[lakevam]

Thanks for this my son is 14 and just getting his diagnosis. I do work full time as well and get medical assistance for all 3 of us including my daughter. I didn’t think about how it may put us of the income scale for medical benefits

[SA-xtgd]

My son is slightly autistic he can improve over time. However I need to be a SAHM because my career would have a huge toll on my time that I wouldn’t spend time with my kids. I feel like I shouldn’t need SSI for that long. Only when my son gets into elementary school. Right now he’s barely getting any services because of insurance issues and not enough teachers. Idk what to start first

[lyneahanson]

Thanks for the information. My granddaughter has been diagnosed with non- verbal autism.

[JC-rumo]

I got denied Social Security disability, after acquiring footdrop from spine trauma. They just told me to switch careers and go find something else to do. So I can only imagine how difficult it is to get assistance if you are slightly autistic. It’s gotta be rough.

[dadassery]

We just got approved for my sons disability. In the letter I received there was a long list of rules about what it can and can’t be used for. it seems I can’t use it to supplement the income. I’ve lost having to stay home with him. Is there any chance you can make a video to clear that up?

[IAmJoeJericho]

What can parents (beneficiary) use their child's SSI for once they get it?

[gracepineda]

I was told to apply now because it hard to apply when their older?

[Audreena-ec]

My son was diagnosed with autism at two years old, and my youngest daughter was diagnosed with syngap 1. It has been over a year and a half since I applied for SSI for my son and we barely got approved last month and we are still waiting to receive the backpay and monthly benefits so in reality it takes anywhere from one to two years to receive the benefits.

[sandycheeks]

My child got denied because I own a home I rent out. 😢

[KMarie]

My 6 year old son was recently diagnosed with Autism through his school and currently has an IEP and was sent to a different school to better suit his needs. He knows lots of words but cannot communicate and doesnt understand social cues.Im wondering if i need a docotors opinion? I started the SSI application online and need to call for an appointment to complete the process. Thanks for your video.

[Tricebbt]

I live in Virginia and my son is autistic we get Medicaid but I am about to start working full time will he lose his benefits