Life with Hypermobility #shorts #short #flexibility

Life with hypermobility can include many different symptoms. These are a few common ones we deal with, having hypermobile ehlers danlos syndrome. Hypermobility spectrum disorders may also deal with many of these. #hypermobile #hypermobilityspectrumdisorder #heds #ehlersdanlossyndrome #ehlersdanlos #eds

[BluetheRaccoon]

This is very much what I live with. Ehlers- Danlos life is a real b***h, and the worst part is getting medical providers to listen and believe instead of diminishing and negating.

[misfitkrew]

Born with pectus excavatum, and an extra set of true ribs, it wasn’t until recently that a doctor realized if you were a female, and you have pectus excavatum you either have EDS or Marfan syndrome. Heading to the only EDS specialist in CA this month. After 42 years I can scream from the rooftops it’s not fibromyalgia. People need to never stop advocating for their own health. even if it takes 40 years.

[billciphergirl]

The stretch marks and double jointedness definently hit hard 😂

[StockterBaxman]

I didn't know those papules weren't normal

[ketom]

Didn't know about the certain stretch marks and the rectal prolapse! Every day is a school day.

[Linda.F]

Wow, that thing that shows like small "stones" in your foot, - i have that too!! Didn't know what it was!. ( Have no doctor, no one who knows anything)
I have a weird thing also, dog hair goes in under my skin, feels like 🪡 inside. You are doing a great job ❤ i get all emotional, Thank you all🙏🏻 Thank you, much love

[Eeeeehhh]

stretch marks are life's free tattoos!

[Cashmeregoth]

Look into TCM for organ prolapse prevention the very middle of the head on top helps with that

[smexypyro]

I can touch my tongue to my nose, plantar fasciitis (from hypermobile feet AND ankles), can put my feet comfortably behind my neck, have gi issues...oh, i can also pop my shoulderblades out of my back without dislocating my shoulders 😛

[jasonmydreams]

Most of my joints are definitely hypermobile and I have a lot of joint pain and GI issues and such... I'm lucky enough to have never had a prolapse or hernia or anything so far! But the prospect does scare me a bit as something that could happen to me 😅

[rymikai]

can't do the tongue bc i have a tongue tie 😂😂💀

[Dreamplandoradij]

How this isnt a common knowledge now learnt in kindergarten - we need to add sypthoms of syndromes tought to teachers and students so that people dont live clueless for 50 years 😮

[alexateresa]

Omg Iv never seen someone else push in their hernia, I push mine in several times a day! Like oh oh don’t mind me *boops self like the Pillsbury dough boy*. You could see it when I was a child in photos when I’d push my stomach out it’s always been there i know I have heds but I never thought that was actually apart of it just assumed my core was weak, I’m working on making it stronger

[jaq]

Finally heading in for an appointment about my joints dislocating and subloxing, constantly trapping nerves and general pain once there’s space free with a specialist. Any advice on things to bring up? I’m tryna make a list so I don’t forget 😅

[docreichenbach]

So I’m crippled and my doctors won’t test me for Ehlers Danlos even though I have all symptoms. I’m on a cane now and they say I have autoimmune and yet I can’t walk half the month.

[dethallbutmetal]

The truth is medical professionals hate us. I have seen the Reddit feeds where medical professionals complain about having to deal with us. I don't think EDS is rare but rarely diagnosed. I know that Fibro is a medical condition, BUT I don't believe it exists. I believe those who have fibro don't have it, but actually, EDS. This would blow the medical community out of the water because it's wrong. Once they discover this, then they will discover that EDS is responsible for autism. My prediction is that EDS will be a household name in the next 5 to 10 years.

[LaynieFingers]

I didn't know the papule thing! Ive wondered what those were for years!

[PandaCreamPuffs]

I was told by (at least) 5 doctors that this stuff was just psychological 💀

[Naveen-txbe]

I didn’t know there was a name for being able to touch your nose with your tongue! I thought everybody could do that 😯

[Duhnananananabatman]

I think I have this, I don't really car about pain, BUT DOES IT AFFECT YOUR HEIGHT????