Emotional effects of living with myeloma

Peter describes the ‘rollercoaster’ of emotions caused by living with myeloma, and discusses ways of managing its impact.

[lucindabsmith]

Hello my name is Lucinda from USA I was diagnosed with multiple myeloma at age 62 so I had this disease for 2 years now. I am so surprised that no one talks about the memory loss, no hair issues, neuropathy I am learning how to walk again, or the mental or physical pain that comes with this disease. AM I THE ONLY ONE STRUGGLING WITH THIS??? Please forgive me I hope I'm not being over the TOP😊. Good Share Love your inspiration, stay positive!

[bubbafatas]

I am 66 and just diagnosed with smoldering myeloma. Had a hell of a life and bucket completion under way! Watched friends and family go thru the hell of the ups and downs of cancer not going to drag my family thru the ups and downs! Have no interest in being kept alive but sick and weak!

[heru-deshet]

I'm 69 have been in complete remission almost four years. I am starting to suffer neuropathy in my fingers and feet, loss of balance where I've had some bad falls in addition to cardiomegaly which causes me to black out completely. I hate that I am weak and uncoordinated. I know this is also the results of the meds I need to stay on. I wish I could get back somewhat of my normal life and pray that I will.

[joannaspieszna]

What an inspiring attitude! All the best!

[dadmadforgot]

I have multiple myeloma. Got it age 39 (2 weeks before my second child was born) now 44. Frankly it’s been fine. Had 8/9 months of chemo, was pretty stubborn, then had a stem cell treatment. Took about 18 months to get my health up to speed. I’m now fine still in remission, have my 3 monthly doc review. If you’re newly diagnosed try not to worry or make it bigger than it is (everyone loves being a victim these days), you’ll be fine.

[NickUncommon]

Was diagnosed with MGUS age 48, being screened regularly and dealing with Neuroendocrine tumour, it is a lot to deal with. Every undeclared symptom coming up, that wont resolve by itself is another questionmark.
Openly speaking about it is necessary, but in my experience, even friends feel queasy, being confronted with a chronic health condition.

Society really needs to normalize this, so we will not be confronted with too much pity, and just get accomodations for the times in which we need them.

[devkamal]

I am at stage 2 and 39 year from india in fresh .about 15 days I shall get out of it Jesus shall get me God is great .

[emmanuelking]

Anyone with multiple myeloma PLEASE look into the benefits of curcumin 🙏