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Support for Parents of Adult Children with Ataxia | Care Partners
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Care Partners have an essential role in the lives of their loved ones with Ataxia. In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover a supportive community, learn practical tips, and find strength in shared experiences, all aimed at enhancing your caregiving journey.
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About the Speakers-
Panelist 1: Marian McDowell is the mother of an adult son with Friedrichs Ataxia. She has a degree in early childhood education and had a career as a primary school teacher. She worked with adults with Learning Disabilities for many years after she retired from teaching.
Panelist 2: Suzanne Martin is a wife and mother of two adult children. Her 26-year-old daughter was diagnosed with a rare form of cerebellar ataxia from a non-inherited gene mutation. Since her daughter’s diagnosis in 2021, she has become an active member of NAF. She is involved with fundraising, advocacy, and support groups.
Follow us on Social Media!
About the Speakers-
Panelist 1: Marian McDowell is the mother of an adult son with Friedrichs Ataxia. She has a degree in early childhood education and had a career as a primary school teacher. She worked with adults with Learning Disabilities for many years after she retired from teaching.
Panelist 2: Suzanne Martin is a wife and mother of two adult children. Her 26-year-old daughter was diagnosed with a rare form of cerebellar ataxia from a non-inherited gene mutation. Since her daughter’s diagnosis in 2021, she has become an active member of NAF. She is involved with fundraising, advocacy, and support groups.
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