Fibromyalgia - why it aches so bad

People with fibromyalgia have pain for no known reason. Camilla Svensson's group at Karolinska Institutet has discovered is that people with fibromyalgia have something in their blood that people without it are lacking, they have antibodies that seem to trigger the pain. Svensson's hypothesis is that they trigger the nerve cells, causing them to send constant pain signals.
This finding could mean that fibromyalgia will need to change its category. From pain where there is no physical explanation - and where some are not even believed - to pain that can be explained as a mis programmed immune system.

[annekabrimhall]

We “feel” we are not believed? No, we are TOLD we are making it up!

[ddalton]

Fibromyalgia is not only the pain, but it’s the migraines the heat sensitivity or cold sensitivity IBS on and on it goes

[kyr]

Please keep searching for new findings for us sufferers

[zakeerrg]

I lost my entire active life. I had to underperform throughout the life, like a handicapped person. Please do good research and find a solution for this problem so that the coming generations are a bit relieved.

[speakwell.]

It really takes someone like this lady to dedicate their time to study, and hopefully find, the reason for such a challenging disorder. Family doctors seem very tight-lipped about it, evading questions related to it, as if they're not quite convinced of its reality. I'm inclined to believe it is a Central Nervous System issue, possibly related to osteoarthritis of the spine and other areas; multiple areas in the body affected by the syndrome would appear to be overloaded with pain signals, as well as stiffness, poor sleep, heat intolerance, tinnitus, peripheral neurophy, various sensitivities, sleep apnea, thirst, etc., and of course, severe fatigue. It would be marvellous if this study brought forth the key to unlocking the mystery. It would be life changing for millions of people around the world. So glad it is being so closely studied. Thank you.

[valnelson]

Thank you for your research. The worst thing someone says to me is “you don’t look like you’re in pain”. no one seems to truly understand unless they have it as well. I took pain meds for awhile but then you start to rely on it more and more. It didn’t take away the pain as much as I wanted but for awhile it helped me mentally deal with the depression from constant pain. But eventually I realized it was changing who I was. Having an alternative medicine would be amazing. I can barely work with out the meds but addiction isn’t worth it. I fight the pain on a daily basis I get down more often but my head is clear. Again thank you for giving me hope for a pain free life.

[kat]

I have had fibromyalgia for almost 25 years. I really think I had it many years before. When I was first diagnosed, there was only one book to read about it. As I read the book the author explained her pain and how she felt daily. It was exactly the way I had explained mine to other people. Being hit by a Mac truck etc. Thank you for researching fibromyalgia.

[scruddie]

I am so thankful for you and your research. This disease takes away so much from so many of us.

[churchofhearts]

When I was told I was in remission with my Lupus, shortly afterward I was told the pain I was having was fibromyalgia. I live in pain every day and nights are the worst. Can't remember the last time I slept through a night without chronic pain and meds are useless. My estranged mother says I'm making it up to seek attention. I keep it to myself as much as possible to avoid being accused as being a hypochondriac. It's not only physically debilitating but emotionally debilitating and there is no quality of life. PLEASE FIND A CURE.

[ArtonBirch]

I cant express enough my gratitude for your research! I would love to have my life back and have purpose again

[saidailaian]

We need new studies of fibromyalgia, thank you

[Clairebearthegoodfinder]

I have so many issues and I’m currently in the midst of a MECFS attack. I don’t know where to turn I have been fighting for 41 years now. It started with an accident then degeneration if the spine. Next was treatment, traction, PT, injections and eventual surgery. All that was prior to the diagnosis of fibromyalgia. Ff years injections, medication constant malaise and limited mobility, a dozen MRIS a dozen doctors, ultrasound plus plus. Finally in November of 2018 I was really struggling. I couldn’t eat anything I couldn’t tolerate any heat including showers, leaning to the right and losing strength in my arm. I besides maximum pain and malaise I felt like someone was squeezing my rib cage and grabbing it underneath to twist my torso. To this point the GP was useless. She was a PA she made fun of me . Anyway I googled everything I was experiencing together and I found a document on the MS HUG . This fit my symptoms nearly perfectly. I asked for the Gp to get it ruled out. Fast forward to the Neurologist and omg 😳 I nearly fainted in her office. Pinched nerves bulging and collapsed disc’s Neuromuscular Scoliosis 😮 huh I had 12 MRIs. Of course I had Fibromyalgia, arthritis, bursitis, tendinitis, MECFS, CPTSD, osteoarthritis, osteoporosis, anemia carpal tunnel and thats not all. I think you get the grim picture.
I have had 5 surgeries and that has helped me a bit but its good day bad days. I can’t exert my body past basic needs.
I know this is a year old but maybe you will see it. I’m desperate for help and thank you for your support and dedicated fight. 🤗

[davidguerette]

Thank you and your team for taking on the mystery of fibromyalgia. I am a 58 year old male who had Lyme disease 28 years ago and now I have been dealing with fibromyalgia for 15 years now. I had my aortic valve replaced (mechanical valve) at age 36 and have been on blood thinners since and will be for the rest of my life. That means I an unable to take NSAIDS to help with the pain. I have been on opioids since 2012. They do help a lot and I do not get any kind of high from taking them. That with Wellbutrin and Gabba allow me to have reduced pain 4 out of 10 most days. I have most symptoms associated with fibromyalgia especially low back and neck pain both areas showing DDD. For those of us that have been struggling with this for a long time feel alone and understood. I have hope after seeing this video that some day I will be normal.. Thank you again for your much appreciated work and dedication.

[sharinasingh]

I am so happy to know this wonderful Lady is trying to find ways of helping people with Fybromyalgia I am 68 years old and have suffered with this since I was 40 years old. I found that using a hand drill helped my pain because of the vibration. After 2 months of using a drill gave me back movements in my arms and shoulders. Good Luck.

[jessicacarlsson]

This made me so happy. I have had fibromyalgi 10 years, and I have no life qualite left. Singel mum, working and thats is what I cope. My Dreams is that your science can find som medicin who can help us. Good work ❤

[conniehavlovick]

This worked in 2 (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements. It helped my sister in law too. Pain levels went from an 8 out of 10 to a level 2 out of 10.

[Karisbarlowe]

Oooo 😮 thank you 🙏 I’m a fibromyalgia patient ❤
Luckily my Doctor is a good one and believes me and helps but I have no friends left as they think I’m a liar 😢

[beckylord]

Been suffering for over 3 and a half years. Still not diagnosed they say nothing is wrong and I can’t even get out of bed anymore. Every single symptom too even had one doctor say fibromyalgia was not a real condition

[brianthesnail]

I have had fibromyalgia for a long time and I have also had an autoimmune condition triggered by gluten and certain other foods as well. I have long thought by observing my own body and my symptoms that inflammation and the nervous system are heavily involved. Camilla Svensson's work makes perfect sense.

[deborahstollman]

Thank you for your dedication to understanding this syndrome. It’s living hell! More doctors need to do this. Many doctors know nothing about fibromyalgia and it’s a shame.