A Man Found Blood In His Urine. This Is What Was Growing In His Kidneys.

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Patient HC by Marcus Ellison Jr, Review by Dr. Pavlos Msaouel

Thank you Dr Nizar Tannir, Dr Pavlos Msaouel, Cora and Herman Connor, and Dr Loren Stagg
Production Assistant: Nick Brown

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Some images courtesy Getty Images

Renal Medullary Carcinoma is a sickle cell related kidney malignancy that is usually diagnosed in young patients (median age at diagnosis 28 years old). It is considered a rare malignancy but likely afflicts more people than prior literature suggests given that review of that literature shows patients more in line with Renal Medullary Carcinoma rather than Collecting Duct Carcinoma. 3 year overall survival of RMC is 3%. Upfront chemotherapy then surgery is the suggested treatment. Response rate to platinum based chemotherapies, gemcitabine, doxorubicin is 29%.

These cases are patients who I, or my colleagues have seen. They are de-identified and many instances have been presented in more depth in an academic setting. These videos are not individual medical advice and are for general educational purposes only. I do not give medical advice over the internet.

A Man Saw Blood In His Urine. This Is What Happened To His Kidney.

References:

GG Malouf, NM Tannir, P Rao, P Msaouel. Renal Medullary Carcinoma in Rare Kidney Tumors.

High-intensity exercise is a risk factor for renal medullary carcinoma in individuals with sickle cell trait. Preprint.

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Watching this gave me chills. My brother died at age 30 from kidney cancer. He checked most if not all of the same boxes as HC. He had his kidney removed and then started chemotherapy a bit after the surgery, died within three days of his first chemotherapy treatment. My mother has sickle cell trait and it's my suspicion my brother had it as well. Thank you for this video. I think, for the first time in the 21 years since he died, I may have finally found out what happened to him.

genevieve
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The fact that the first doctor went "Oh, you have AIDS, stop bothering me" and never bothered to test for it makes me think this individual needs to be investigated.

ABYStheOyster
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Dr. Tannir is a hope to humanity. Glad there's people like him in this world.

kyra
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God bless Dr. Nizar Tannir for his generous care. What a good man.

razkrunk
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The fact that the doctor replied so quickly and did everything in his will to get him treatment as fast as possible is so heartwarming.

lunchbox
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My dad died of cancer back in 2015, I was just 13 and I don’t think the doctors did everything they could. I remember seeing him go from an active person to someone who couldn’t even move without intense pain from the radiation treatment shattering his femur, him being bed ridden for at least 6 months. I remember watching the man that raised me just deteriorate every day for a year up until my brother picked me up from school on May 8, 2015 and his voice breaking because he was there when our dad died, I remember him taking me to the park to sit with my mom while she told me what happened, I don’t really remember my emotions other than just compassion and empathy, for the next 4 years I did everything I could to help others out and just suppress my depression my grief and my anxiety just to help everyone else. I bottled up every emotion until it all broke out of that bottle. 5 years and 19 day later I followed in his footsteps to enlist in the Army and I work as a Behavioral Health Tech at a psych ward, I still do everything in my power to help out others to this day.

WhiskyWombat
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It is so sad that this man had to fight for treatment for an illness that had already been confirmed. I am thankful for the doctors who DO care and DO listen out there.

Rizaru
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I can just imagine one being told "you might have late stage cancer" and then being told to wait months for confirmation, that mustve felt just great. Sounds like a great system.

papabr
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The doctor that basically dismissed him should really lose his medical license.

chrisgast
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I think sometimes we as medical professionals forget what our patients are going through, but I can’t imagine what it must have felt like to finally get a reply after all this frustration and desperation and read the words “Do not despair, there is hope.” Truly a great man.

AStrangeTree
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Three types of doctors in this video.

First doctor: "no insurance no treatment"

Second doctor: "yeah yeah whatever it's just HIV"

Third doctor: "Do not despair, there is hope"

hellcat__o
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Dr Tannir literally saved his life ❤️
"Do not despair."

theonlycatonice
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The way this man was treated had me in tears. This is just awful and I'm so glad he reached out to Dr. Nizar Tannir, truly a man doing what he does to save lives and not just to make money.

TheArcadeLink
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it's so sad that Americans genuinely think "can I afford to save my life?"

tinfoilhat
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Holy shiiit I thought for sure he was gonna die, and then there he was 10 years later, in the flesh! One of your best videos.

TaranVH
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"Do not despair, there is hope"
We need more people like him in this world

cakepup
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A man felt pain in his back. This is how the U.S. healthcare system almost left him for dead.

Account
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I’m really glad that you’re educating people on how cancer isn’t an age related disease. I developed stage three Non-Hodgkins Burkitt’s Lymphoma when I was a year and a half old.

I was initially misdiagnosed with the flu and the pediatrician told my mom to return in a few weeks if I hadn’t improved. My mom had a gut feeling and when she was packing up my stroller, she asked the pediatrician to look once more. The doctor did, and had missed that my tonsils had expanded and that I’d swallowed them, and was choking on them. My mom then made the decision to bring me to the local children’s hospital emergency room to try to get a proper diagnosis. If she hadn’t of followed her instinct and trusted her gut feeling that it wasn’t just a flu, I probably wouldn’t be here today.

Neither side of my family has had any history of that sort of cancer. It wasn’t anything my parents did or could have prevented. I’ve been cancer free for 27 years now and I’m grateful to be alive. I wish the education system would approach the common belief that cancer doesn’t happen to younger people, or kids.

Krobe
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“Do not despair, there is hope.”

Most people have no idea how powerful those words can be when someone is going through hardship.

herropreaseherro
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The fact that he had to travel 17 hours on his own, without doctors, to get proper treatment for CANCER is just sad.

jerrywang