Causes of Nonepileptic Seizures (PNES). Hint, NOT Stress!

In USA, please call the clinic

This video describes the causes of psychogenic nonepileptic seizures (PNES) and why it happens and the recent advancements in neuroscience and brain imaging showing the changes in the brain.

Part 1: What is Psychogenic Nonepileptic Seizures (PNES).

Part 2: How to Diagnose Nonepileptic Seizures (PNES)

Part 3: Causes of Nonepileptic Seizures (PNES). Hint, NOT Stress!

Part 4: Treatment of Psychogenic Nonepileptic Seizures (PNES).

The whole series:

👇 Dr. Omar Danoun's Blog and website:

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Thank You!
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#DrOmarDanoun #Epilepsy #PNES

[emrys]

It’s so refreshing to see a doctor talk like this about my disorder, especially from such an empathetic perspective.

[crystalthompson]

Thank you for being so open minded. I was diagnosed with pnes functional neurological disorder and Chiari Malformation. I has decompressed and then started having these issues, that’s when doctors just told me they didn’t know how to help me. It robbed me of my quality of life but through prayer worship and meditation I am now seizure free. I give God all the glory for healing me.

[AleshaneeTinoco]

I had four PNES seizures yesterday and am right now watching this from my hospital bed. Thank you for taking this condition seriously.

[KlouseInTheKloudz]

Glad to know there is actually doctors out there educated on my disability, have had a lot of issues especially latley with Drs laughing at me.

[andrewwright]

Yesterday I had 6 seizures in succession (I’ve never had seizures in my life) the cat scan and mri and eeg came back showing no neurological epilepsy. They suggested PNES, but I have been having issues with people blaming me for somehow causing these seizures. Thank you for helping me not feel so responsible.

[AliceSylph]

Thank you, when I got diagnosed with pnes I received no help; my neurologist still refuses to call them seizures. I decided to help myself and trained my dog to alert and respond to my seizures. I was told it was impossible because there are no changes that a dog would be able to detect. She's been trained for almost 3 years and has a 100% success rate, detecting my seizures up 5-10 minutes before they happen, meaning no more drop seizures. I have multiple video evidence of this so my gp has agreed she is successfully detecting to my pnes. The only way this is possible is if changes are happening in my body long before the seizure physically begins, similarly to an epileptic seizures such as a chemical change in scent. She is also able to tell when a seizure is going to be a really bad one, where I'm unconscious for a long time and am paralysed for hours afterwards, she will start barking within one minute of the seizure and again has been right 100% of the time.
I would absolutely love to be researched on to see if there are any changes that can be medically detected when my dog first alerts. Before her I have such little warning I frequently had drop seizures, so she's completely changed my view on my own condition

[kay]

this is so good to hear. everyone says i'm stressed and no one listens when i say im not 😢

[ZaiEntertainer]

Thank you! I’m the artist who created the song “PNES” and the official music videos… Thank you for helping spread this message- this helps even more than you know. THANK YOU ❤

[angelabrown]

I really appreciate you saying essentially that we are all wanted which ever way we are as individuals despite what we may think of as faults in our bodies and personalities. I don’t have PNES but I do have depression. I’m also a paramedic so I see these patients and their families and they just want to be believed and helped. Great series of videos, thank you.

[jameshodgson]

People like you give me relief. I have been struggling with these seizures since 18! 27 now and over the past couple years they have certainly died down. Been called deluded by doctors even though I have all supported evidence that they’re non epileptic. I met a psychological neurologist and he told me I was absolutely correct and that I was treated disgusting but still no one wants to believe him! I have been nearly a year seizure free and the GP told me if I go over a year without meds then they can take epilepsy off my doctors record! So many years of being called deluded and selfish by doctors and family only my friends believed me. Will be a big 🖕 to the doctor who called me deluded and my family lol

[daniellefrank]

I want to cry right now, thank you so much. I just spent 10 days in the hospital doing an EEG. 35 years with epilepsy. And now I feel CRAZY. 😫
Subscribing

[arilawrence]

Thank you so so much for talking about that. I got diagnosed with PNES 2 years ago. It’s so relieving to have a professional neurologically validate my experience. I’ve had so many doctors tell me it’s fake, or that I need to “just stop.” I hope this info gets spread around the medical community.

[jairepp]

The more I see your videos! The more I see how good of a Dr you are!

[zandratheanointedone]

I am so grateful to have found these videos! I was diagnosed in April after advocating for myself and forcing people to listen

[autimarie]

Omigosh thank you so much for this, especially for saying "we don't want to change you." This is the first PNES video I've watched that makes me feel held in acceptance. I'm so happy I found your channel today 🙏

[madamerose]

I'm still in the process of doctors trying to diagnose me, after I got my first seizure 3 years ago at age 39. I live in South Africa, I'm seeing an Internist and we all are at a loss...
Thank you for your kindness, Doctor Omar, I started crying with your kind words, a I was watching and listening to your kind words "we need you, we don't need the careless ones" and also "we don't want to change you".
I'm sharing your videos with my Sister, as I'm still not diagnosed and currently on Tegretol (which unfortunately makes me sweat a lot - I hate that) to keep the seizures to less frequent and Ativan when I feel "unwell" and getting an absent seizure or I say the line "no, no, go away", then my Sister knows to get me to a safe place and pop an Ativan. I usually pass out and wake up later.
But I just wanted to say thank you for your kind words and this series. It gives me a new perspective ❤

[RenGin]

Wow, thank you for this. I was diagnosed with what it was called prior as pseudo seizures and the neurologist I went to had no interest in helping. Even though I was never helped through it, I am lucky that after getting out of a very emotional abusive relationship (of 15 years), all of my convulsions completely stopped. There was one or two very small ones while still in contact but after going full no contact I have had zero.

[arilawrence]

Thank you for talking about the different causes of PNES. I was in a PNES group treatment. Mine comes from my trauma and comorbid dissociative disorder and BPD. One woman got hers after giving birth. One woman developed hers at the age of 55.
Everyone is different.

[pagalmasala]

I have drug resistant epilepsy. I just got out of the hospital after a 72 hour study for pre-surgical testing. They caught at least 6 epileptic seizures and now that we know that I am a candidate for surgery, I am glad we have alternatives. We are going to do scans in a couple of weeks.

[thecomputerguy]

The way you have described things so far has been scarily accurate to my past experiences and the presentation of my condition so far, other than that I don't particularly have shaking, being diagnosed with non epileptic seizures within the past month or so, even having placed quite a lot of this together myself and in similar ways to what you described, it's nice to hear that even if other doctors say that there isn't anything for them to treat that at least i know that there is at least something actually going on