Treatment of Non-Epileptic Seizures (PNES) That WORKS

In USA, please call the clinic

There are many new and successful treatments for psychogenic nonepileptic seizures (PNES) that we will discuss in details today with the world expert on PNES Dr. Curt LaFrance.

Treatment work book:

PNES series
Full playlist:

Part 1: What is Psychogenic Nonepileptic Seizures (PNES).

Part 2: How to Diagnose Nonepileptic Seizures (PNES)

Part 3: Causes of Nonepileptic Seizures (PNES). Hint, NOT Stress!

Part 4: Treatment of Psychogenic Nonepileptic Seizures (PNES).

👇 Dr. Omar Danoun's Blog and website:

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#DrOmarDanoun #Epilepsy #PNES #FND

[beccasbythebay]

My daughter died from pnes in September 2022 at age 28 years old. We took her to therapists & neurologists since she was 11 years old. Nothing helped or worked. No anti seizure meds, no individual & family therapy, nothing helped her. We miss her so much. I pray 🙏 their is real progress to help these people who are suffering from pnes. We waited 6 months for an autopsy report & talked with the coroner. Circumstances were that our daughter was and wanted to live with my parents at the time of her death, which we had investigated. I was told by the coroner that they were not able to prove my parents had any involvement. That our daughter was wearing upper & lower mouth guards that she choked on during a seizure attack, her lungs filled with fluid and then had a heart attack. My parents didn't want to hear her scream during her seizures and it's our thinking they.made her wear them.even though every dentist & doctor recommended she Never wear ant mouth guards for grinding teeth or biting her tongue it would be a checking Hazzard. My parents never checked on her, never aided her, or called 911 for help. I'll just add that when she was in my care, we always ran to her aid during a seizure to make sure she was free from any entanglements of blankets sheets etc, to make sure she was turned on her side and safe until her seizure stopped. Stay safe & I pray for all surrfering this condition. Find ways to decompress, destress & surround yourself with loving compassionate people.

[TheTarahTalks]

My neurologist said it’s PNES, gave me Keppra, and I havent heard from her since. She’s the most celebrated Neurologist in our area with billboards of her face everywhere. I was so upset thinking no one could help me. Glad to hear there IS hope.

[Viktor_Rafael]

I am a therapist working with a client who has PNES. It is surprising to me how little awareness of PNES among mental health professionals. Thank you for providing this free education and spreading awareness of this condition.

[darrenwray]

I had been seeing neurologists for 40 years and was treated with epilepsy medications without *any* evidence of having epilepsy. They just acted as though my violent seizures were due to epilepsy, so instead of referring me to another specialist they would increase the dose of the medication until I was on massive doses. But the seizures continued so they just changed medications. This went on for years and years, going round in circles, without any improvement, suffering horrendous injuries, losing jobs, my drivers licence, friends etc along the way. And still they refused to send me anywhere else. Eventually I realized that I wasn't a patient. I was a customer. And my "role" was to increase profit for private enterprises.

So I was forced to solve this problem myself by examining the evidence. After years and years of my own analysis and research I discovered that I had cervical spine instability - which was causing muscles in my neck to become tense and pinch my vagus nerve - which stimulated my sympathetic nervous system - causing more tension, more pinching and so on in a vicious cycle. Even thinking about having a seizure could cause a seizure because it created tension in my neck. When I try to educate doctors now they can't confirm my theory and they can't deny it - because it's 100% correct and they don't have to tools to prove or disprove it. I have tried CBT (through my own initiative) and it didn't produce any improvement whatsoever.

[patricia_rs]

Totally! I had a seizure when I was 23. My worst mistake was not going to therapy back then.

[kathrynjenkins]

My son has Autism and depression and was said to have had one PNES recently and was taken to hospital where he was treated for a’panic attack’. My husband and my daughter were present with me when it happened and it was frightening and serious. However, the next day my son couldn’t walk and has since had blackouts and absences so he should have been given a scan at A&E, not turned away with it classed as behavioural. So be warned about being palmed off by over run A&E departments because the aftermath is just as worrying.
Be warned, as soon as you mention Autism or Depression, you will get shelved with the behaviour diagnosis rather than anything neurological!
They maybe overwhelmed with treating drunks and pimples but don’t take no for an answer. We are now faced with a much more worrying future!

[Ouchimoo]

OMFG. I am now convinced that my neurologist specifically tried to misdiagnose me with PNES so she could get rid of me. She literally said "there's nothing I can do for you. Go see a physiologist. Good luck."

Mind you this is after I was successfully on medication for TWO YEARS. And the only reason why this misdiagnosis happened was because the medication I was on became unavailable so I got switched to a different formulation and I had side effects to it, then the medication after that I had really bad side effects to it.

I know I'm beating a dead horse but the more I learn about PNES, medications and epilepsy in general, the more angry I become realizing how much this doctor I had was terrible.

[robinfischer]

I love how encouraging you are. One of my patients tried working with a neurologist for PNES and he had nothing to offer. The patient and I found the books you recommend here on our own, although by that time the patient wasn't willing to engage in the protocol. What really helped was working on increasing the patient's window of tolerance for the strong emotion associated with the trauma and increasing their capacity to express those emotions. Also reducing immediate environmental stressors as much as possible helped and the seizures calmed way down.

[devoragoldman]

Dr. Danoun, thank you so much for providing such outstanding, up to date, and compassionate education on PNES. It is so valuable to have physician advocates such as yourself providing sound, evidenced-based information for all to learn from on this topic.

[RippingStars]

You're an absolute king for spreading so much awareness on PNES! Very real condition with very real symptoms!

[MountainAirOrganicBeds]

I started thinking last night, I should practice sleeping like it’s PNES then maybe when I get to the neurogist I can tell him if my practice of not worrying about it and just try to not let my brain react is working or not. I will practice every night. Your information is valuable to many of us lay persons. It does scare me to think about my past, I have just swept it under the rug and act like nothing happened. I feel like I had 2 versions of my life, what was in the past and what I became.

[duncanramsay]

When I told my neurologist, I do my own research by watching your videos, a huge smile appeared on his face 😄, and he said "oh yes he makes excellent short form videos " so you are a very loving, and loved man. I have gran mal seizures, and pnes I have ptsd, depression, as well as well as very high anxiety because I overthink things. I had a teacher pull me aside one and tell me I think to much. We I think I had a panic attack for the first time the other day. My doctor just ordered a ecg and ekg

[TamaraLaschinsky]

Thank you SO MUCH!!!! I have primary generalized epilepsy but after trying at least a dozen different AED's I am still not fully controlled, believing I had refractory Epilepsy. I no longer drive and my life has been greatly affected. My teen daughter recently started having what looked like Focal seizures, based on my own Epilepsy history I was confident she also had Epilepsy. Diagnosis varied between Migraines to PNES to all sorts of things. We recorded events, video taped them, track triggers. She has been in Epilepsy Monitoring Unit twice and all we caught were PNES seizures but never did catch her unaware events (unresponsive 15 - 30 seconds, eyes open.)

It's been a battle and we are starting Psychiatric treatment and therapy as well as doing CBT. One of the most important things I have seen in videos like this and other is VALIDATION! It is a real condition, the symptoms are real and a person is not faking it nor can they just make it go away. It takes work and training. Thank you, thank you, thank you - for this great series and shedding light on this condition. You are right, it is not pseudo because there is nothing fake about it. Finding the right name is important. Disorder sounds like a label. It is emotional and sensory. Sensory dis-regulation seizures, when everything gets overloaded and someone is unable to handle/process anymore.

Each episode is traumatic, people need to realize it. It's scary and the brain forms a connection based on the experience. Meaning the next time you feel a certain way the brain automatically predicts what will happen next (catastrophic thinking). It is so important to re-wire the brain and form new experiences.

By researching her condition I have learned a lot and believe I also have PNES based on some of my episodes which did not fit the typical epileptic pattern. I am a huge internalizer of feelings, as is she, and I will learn the same techniques she will so I can manage my own emotions and change my brain patterns.

Thank you Dr Danoun for a great series and insight! :)

[LizetteLizette]

I’ve had this for 6 years now, and my neurologist insists that my epilepsy medicine works even though I don’t have epilepsy. But my seizures doesn’t stop, I still get it 4-6 times a year. Year after year.

I’ve also gone to trauma therapy (EMDR) for 2 years, and also 5 years of other types of therapy previously.

I’ve had problems with DDD for 15 years now and I think it’s all connected to each other. All caused by childhood trauma, and then even more triggered by a specific event that really traumatized me as a grown up and gave my PNES on top of DDD.

I don’t know what to do anymore, I feel like I’ve tried everything and dedicated so so so many years to solve this. But I’m giving up..

[AliKazi]

Masha Allah great video. I was sadly diagnosed with this. I am to see a therapist weekly to resolve it Insha'Allah ❤

[jeanward]

I am a expert because I didn’t just read some textbooks! I experienced major abuse from family growing up and I too pushed it way down and didn’t address it for a long time! My experience is my expertise!

[kirgise]

There is an illness called complex migraine. It was mentioned in another video in this channel. Among some patients with this condition (hemiplegic and/or brainstem migraine) there are some that develop a "locked in syndrome" which is basically a short term vegetative state of ~5 to 30 minutes duration. Patients may well receive 0 points for movement and speech on the Glasgow Coma Scale, only eye movement is partially possible. It is very very easily misdiagnosed as PNES but treatment of choice is ironically with an anti-epileptic like Lamotrigine or a calcium antagonist like Flunarizine.

[mollymills]

Thank you for your videos on PNES! I appreciate your compassionate delivery of all of the great information you're sharing. I'm a psychiatric nurse and have become interested in learning more about this so I can better provide information and help any patients who might experience PNES. So thank you, I've been learning a lot and enjoying your videos!

[andreamoore]

I have used EFT (emotional freedom technique). I have used this therapy on all my CPTSD stuff. It works directly on the nervous systems (especially the autonomic nervous system) and the vagus nerve.

It also works on the meridian system to restore the disruption caused by events, trauma, and emotional responses.

I would highly recommend it! 👌

[jeanward]

PNES is from pushing major problems deep down inside and then it manifest’s itself physically kinda like people who die from grief! You have to be willing to deal in order to heal!