POTS syndrome (dizziness causes, fast heartbeat, chest pain, trouble breathing)

[decemberkat]

Don’t forget to add … explaining this all to different doctors and being ignored and misdiagnosed for 12 years!

[ArtbyLexii]

Does anyone else lose vision for a few seconds as well? When I stand up my vision goes black and my head hurts and I feel as though I’m going to pass out.

[Ke_damono]

I’m a 13 year old and I was diagnosed in February. Explains a lot.

[AverageBMWenjoyer]

I’ve probably had pots for about 2-3 years (mild case) and ive never thought of it as an actual problem before i got diagnosed. Im also diagnosed with arthritis and thought that with the flare-ups, ive ate less and thought that my dizziness and everything came from malnutrition.

[aminyamumsminge]

I get nearly all of these during my dizzy spells but I also faint, go deaf and blind

[Wolfcreatesart]

Dont forget shaking uncontrollably for a week straight and having nothing work to stop it.

[maddonut]

What about walking from a brightly lit room or outside to indoors?

I failed a tilt table test, but I have a heart monitor implanted. Neuro, cardio, gastro, allergist and pcp have all referred me to Mayo, but I couldn't afford the treatment there.

I blackout from water now. Its been 4 years since I've been able to drink a glass of water. I'm allergic to wheat, corn, eggs, and dairy now also to the point I had to stop eating meat because the grain feed was bothering me too.

I have weird bumps on my elbows, knees, and feet that no one can explain.

I feel completely defeated by whatever this is and the Dr's that have failed me.

[g_interrupted]

i have 9 out of these 12 symptoms regularly.

[Pensfan]

I was just diagnosed with it by my doctor a few weeks ago

[Grace-gein]

And don’t forget losing vision and almost passing out when you stand up 😊

[BeKindAllTheTime]

Does anyone else get extreme pain behind their eyes when they stand up but then it gets better after a minute or is it just me?

[AnkitKumar-dmch]

Why would you make such video with clapping and such music? This is about a disease if you know about that.

[bnnefits]

Oo, didn’t have to call me out there!

[Chelefea]

So I’ve had all of these symptoms for years and I’m on anxiety meds because I always thought it was related to my adhd type of anxiety. It’s so hard to say. Does a low BP count as well? Nurses always say I have low blood pressure (even when I’m not on meds)

[HiYt-vynv]

I think I might have pots but I don’t know and I hope I get a diagnosis soon… what changes will I have to make after a diagnosis

[That_one_awesome_gurl]

…huh… I have a doctors appointment in about two weeks, It’s supposed to be about a racing heartbeat problem, but I have almost all of these symptoms…. Interesting

[VISIONARYdream_]

Erm…..yeah I think I will go see a doctor now😢

[cmikesmith]

So why are you sitting there and clapping with a smile? I’m confused by this presentation.