Understanding POTS | Postural Orthostatic Tachycardia Syndrome

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POTS is extremely common and frequently misdiagnosed as anxiety
POTS is an invisible disability that impacts every area of life which can lead to impaired self esteem, depression, anxiety, guilt, grief, relationships and secondary health issues
1-3 million Americans have #POTS or #posturalorthostatictachycardiasyndrome #chronicfatigue #autoimmunediseases
POTS is approximately five times more common in women
It is very common in healthy, active individuals between 13 and 50 impacting 1 in 100 teenagers
Like emotional dysregulation, somatic hypervigilance is misunderstood and often invalidated.
Advocacy, health literacy enhancement, goal setting strategies, cognitive behavioral tools and awareness of ADA accommodations can be essential

Video by Dr. Dawn Elise Snipes on integrative behavioral health approaches including counseling techniques and skills for improving mental health and reducing mental illness.

TIMESTAMP
00:00 Intro to Understanding POTS | Postural Orthostatic Tachycardia Syndrome
01:34 How common is POTS
07:10 Types of POTS
08:45 What causes POTS | Postural Orthostatic Tachycardia Syndrome
10:45 Identifying symptoms and diagnosing POTS | Postural Orthostatic Tachycardia Syndrome
19:45 What makes POTS worse?
23:37 How is POTS treated

[renaisafan]

Thank you for this! Had pots since I was 15 and I have been treated like a hypochondriac all of my life. Diagnosed at 51 years old!

[brandielee]

"How's it treated? Well first you gotta get it diagnosed."

*cries in American*

[Collinpawns]

Celiac + pots sufferer here who has a doctor that was convinced my condition was anxiety based. Advocate for yourself and get another doctor.

[jenniferstanley]

Your videos have been absolutely critical to my healing. Understanding is power. It’s very frightening when you don’t understand and lack the resources to get definitive answers. It’s isolating. You don’t know what’s really wrong, and everyone treats you like you are losing your mind. You have a beautiful way of explaining complex information in a way anyone can understand. Thank you for what you do!

[zippixxxx]

ive been having high heart rate issues and so many weird unexplained symptoms that ive pretty much just chalked up to anxiety after being repeatedly told it was just anxiety. well yesterday i was diagnosed with POTS, and i stumbled across this video trying to learn more about it, and it all makes so much sense now. im sitting here crying because oh my god, im not crazy, this is real! thank you so much for this from the absolute bottom of my heart.

[brandyanon]

Night shade allergy, mold and cheese allergy was causing my pots symptoms. I was prescribed acid reflux medication, a calcium channel blocker, klonopin, sleep study, pulmonary test, tilt table test. you name it! I took absolutely none of these medications and continued to monitor my symptoms. Because pots is not a diagnosis, pots is simply a group of symptoms caused by some unknown condition. Wear a a fitness watch, any brand that monitors heart rate. Pay close attention to your body, the foods you eat. I go to my allergist on Monday and I can't wait to let her know I've been symptom free with a normal heart rate for 7 days now from an elimination diet and environmental changes. I feel better than I have felt my entire life.

[franny]

You are highly intelligent, informative and a sweet person for taking your time to help us people suffering from this draining, debilitating disease. Thank you so much!

[hailiesuegonzales]

I've had symptoms for YEARS, got told it was anxiety and in my head. They told me I was a hypochondriac. 2 days ago I was diagnosed with POTS.

[brittneythompson]

Oh my goodness. This whole video just described what I’ve been dealing with since high school. I’m 33 and I’ve been diagnosed with everything from migraines (due to the light headed feeling) to anxiety. It has severely impacted my life and I’m just now hearing about it. How can this be missed by so many doctors 😞 I can’t believe how long I’ve lived with this and had no clue that it actually had a name.

[dorothyinwonderland]

I just got diagnosed today. Thank you so much for the information. I can check nearly all the boxes here. My whole life just makes more sense now.

[FERRARICWH]

Oh my God this actually made me ball my eyes out. I’ve never heard such a comprehensive explanation as to what I deal with on a daily basis. I literally sometimes don’t even understand if it’s worth living like this.

[jojogurl]

I believe this is exactly what I'm experiencing! I been in and out of ER
over past 2 yrs with all these symptoms and they keep telling me it's anxiety/panic attacks. It actually got worse and more frequent since 8/2021 when my mom passed away due to covid 😭. I have not been able to do anything since
Thank you so much for all this information 👍💯🤗

[davidf]

This is extremely helpful. I am an ex-soldier, veteran of Afghanistan and I am convinced this is what I have. I was very high achieving before all this, I was even able to complete special forces training.
But now doctors don't just tell me I have anxiety but PTSD (I did not have a particularly stressful tour).
It is an exhausting experience having POTS. I do not have a diagnosis yet but have gone through many different doctors - cardiologist, neurologist, etc. I will use this and try some of the treatments myself and speak with my doctor about medication trials.
Thank you so much for this.

[CherryRussellTraffanstedt]

I appreciate this. The only bone I have to pick is…

What’s really frustrating is, most people who are chronically ill don’t only have one condition they’re living with. (I have several.) Like most specialists who focus on only one condition, the advice they give that may help that specific condition can make another condition worse. This makes it extra difficult to find solid answers for healing and relief.

[HilarionWon]

This is the most comprehensive explanation of POTS I have seen anywhere. So helpful! I cannot thank you enough for providing this information. I had to learn some of these tips and tricks the hard way, over many years. Having this video 30+ years ago would have saved me a lot of grief and sweat. But having it now helps a lot too. I can just send the link to this video to people in my life who struggle to understand. You are the best!

[danide]

Thank you, looking back had dysautonomia all my life but was told it "girls just faint"and when i grew older it was said it's just anxiety. The medical gaslighting really hurt and made me look like a hypochondriac. I'm now 41 and only last week in the ER it was established I have POTS/dysautonomia as it got so severe I was bedbound. I have received betablockers and they make a huge difference. My heart used to peak at 170 just standing up and now it's only 110. Resting heartrate does get too low though, but overall I feel better medicated. My POTS is caused by being hypermobile.

[helloTracey]

Thank you so much for creating this video - I can see by the comments it’s been a great resource for everyone ✨ I was just diagnosed a couple of days ago, after what looks like a lifetime (43) of signs and symptoms. I feel like I’ve found some confidence, that it was ‘just anxiety’ ‘go eat healthy and exercise’ ‘we all get tired’. I’ll rewatch again soon and take better notes 🙌🏼🌸

[karenfields]

Thank you so much for covering this information. my 13-year-old has been going through this for 2 years now. We are finally on a path to have her diagnosed. It's been hard as a mother watching my child struggle in school and social life and not be able to make her feel better. I truly have learned a lot from this presentation and happy I understand more of what she's going through, so I can better help her live a full, healthy and happy life.

[eviejdmbiiitch]

Was always told my racing heart was just anxiety but I finally just got diagnosed with pots so everything makes sense

[Mica_Macchiato]

Hi! I just want to leave a comment to thank you! ❤ This video made me realise I have POTS, and I was recently diagnosed. Not knowing what caused my symptoms made me really insecure, so I’m really glad I know what is wrong now. So thank you! 🤗