The Truth About POTS: 27 Questions Answered!

#mysteryillness #POTS #functionalmedicine

Postural orthostatic tachycardia syndrome (POTS) is a disease that I commonly encounter every day, but it is often overlooked. In this video, I have answered the top 27 questions that patients, doctors, providers, and practitioners from all over the country are asking me.

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[brandyanon]

I had a tick on my neck when I was a kid. Probably completely unrelated. I fainted the first time when I was 11 from a hot bath. I fainted 4 other times throughout my life and so I learned to sit down when I felt light headed. I'd literally just stop dead in my tracks and sit until it passed. I lost mobility in my elbow joints about 10 years ago for no apparent reason, it eventually returned. Nausea is something I've always lived with, headaches, joint aches and memory is something I've struggled with for as long as I can remember 😉 as a child I was diagnosed with anxiety, asthma and plain old "bad nerves" I get tremors, im jerky in movement and extremely clumsy. I'm really hard on myself so the fatigue was just me being lazy and I'd just push myself to go harder. I was a runner. 5 miles a day and ate very healthy, then I opened my own business and could no longer find time for healthy meals and exercise. I've been to the ER via ambulance 5 times from November-January and had countless test by my pcp who's just referred me to a cardiologist. Rapid heart rate and low blood pressure. I've had all these symptoms my whole life and I can't believe there is an actual name for what I may have and I'm not just lazy, clumsy and forgetful.

[TallDiana]

POTS hasn’t killed me, but it has stolen my life.

[raisingthemonkey]

Oh my word - I would love to be able to come see you. I’m a long Covid hot mess.

[DarionD.Landrum]

I have diabetes and was placed in the hospital for over a month with Covid and Pneumonia. After, I started to develop symptoms of POTS. It is now undeniable. I can barely stand for a minute and have been going through this for almost two years. No one seems to know enough about it. I'm suffering and can't work and no one understands. I'm also having a hard time with my foot healing from a diabetic ulcer. Imagine wearing a medical cast and boot for over a year in combination with POTS … I'm always off balance.

[angus]

There has to be an underlying cause of POTS. My 16 year old daughter is currently dealing with this. She had a covid type virus 3 months ago. She is now passing out 2-3 times per day, nausea, headaches, fatigue, etc. She was totally healthy before she caught the virus

[ambermartin]

We're finally targeting my GI issues. That kidney action was interesting. I haven't thought much about it except how very very active my kidneys like to be. My comorbidity is ME/CFS, likely triggered by mono. We have a LOT of long COVID suffers in our support group. There's so much overlap.

[vsg]

i have tachycardia when i have sinusitis 130-150 resting I dont know why I dont feel my heart beating, it doesnt hurt but my heart beat rises by 30-50 and then stabilizes. my eyes feel tired and I feel fatigue for a few days and then my heart rate returns to normal. Anybody else experiencing this after covid, like is the most superficial sinus from saharan dust and the heart rate is out of whack?

[Tenbrae]

Thank you for this video! You helped fill in some of the gaps in my POTS understanding, such as why to lie on an incline. Very helpful details!

[Lenastar]

Any specifc advice to help POTS from Long Covid?

[bethpage]

I've watched A LOT of videos, this is the best, thank you ❤️

[michele]

I've been living with POTS for 41 years. If POTS isn't secondary or related to Covid the signs & symptoms can be relapsing or chronic.
POTS doesn't necessarily cause a low BP. Hyperadrenergic POTS is typically associated with an elevated BP and can be worsened by supplementing with salt.

[nancygoebel]

Please also consider: Studies linking POTS with the Gardasil vaccine, many lawsuits pending. C-19 vaccine needs to be investigated for adverse reactions and increase in POTS Dx..

[LemonPuf]

I’ve had this full blown since 20 years ago. I did have fainting and tachycardia in my teens which went then came back and got pots dx.

[tiffanyjoyce]

I know you said it wont show on an EKG or MRI but what about an EEG. My neurologist wants to look at those instead of a tilt test

[comicbossone]

I got it after covid pneumonia. I beat it!

[amandaozolins]

hello, what are your thoughts regarding regular iv fluids for pots? 3 to 4L per week.... 1L administered over 4hrs. thank you..

[cathyblake]

POTS absolutely sucks. I have it along with hEDS, fibromyalgia and other things. Some days, I can't stand or even sit. I have to lie down.
A cardiologist can diagnose POTS. My GI doctor suggested it to me. I'd been trying for at least 8 years to get a diagnosis. I suspected POTS and mentioned it to a few doctors. They didn't think it was that.
Well, when my GI doctor mentioned POTS, that was the validation I needed to keep pursuing a diagnosis.

[Chris-gi]

Pots patients have a life quality similar to COPD and chronic heart failure - worse than HIV and cancer, according to studies. Mine is long covid based, so I do hope it will go away (took 2 years to get diagnosed). If it doesn’t, I will probably go to Switzerland within the next 2-5 years. I am only in my early thirties - I have no interest in living another 50-60 years with no quality of life.

[kevinfitzgerald]

All of these so called mystery illnesses have causes. My so called mystery illnesses are caused by yrs of having undiagnosed mold and tick diseases that caused my immune system to become compromised, I have bad nuerological problems, pots dysautonomia, autonomic nervous system problems, central nervous system problems and all dismissed by this conventional medical system.

[emmap.]

Like for helping me to understand the “pseudo seizures” that I experience with my POTS.