Living with POTS Postural Orthostatic Tachycardia Syndrome

#POTS #posturalorthostatictachycardiasyndrome #disabilityawareness
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NOTE: ALL VIDEOS are for educational purposes only and are NOT a replacement for medical advice or counseling from a licensed professional.

Video by Dr. Dawn Elise Snipes on integrative behavioral health approaches including counseling techniques and skills for improving mental health and reducing mental illness.

TIMESTAMPS
00:00 Intro and how common is POTS or postural orthostatic tachycardia syndrome
01:55 Somatic Hypervigilance
08:50 Tips to deal with Physical Symptoms of POTS temperature regulation shakiness fast heart rate tachycardia
19:50 Difficulty sitting standing walking reasonable accommodations
24:45 Abdominal pain, blurred vision, headaches reasonable accommodations
28:30 Exhaustion reasonable accommodations tips to survive
35:35 Emotional and mental symptoms concentrating, grief, anxiety, guilt
44:20 Stress management with POTS
47:40 Relationship problems and Invisible disabilities

[DocSnipes]

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[sydneyjudd]

After watching all 55 mins, I have never felt so seen. I have struggled with POTS-like symptoms for years, have have been constantly turned away by doctors and even my parents at times when I am experiencing them. I hope I will be able to be diagnosed soon! Working is so hard on me and I feel so guilty asking employers for accommodations without anything official! Thank you for posting this, I honestly needed this to remind myself that Im not just over reacting or making things up🥹

[pouranszekely_kiraly]

It really feels someone is finally explaining all my feelings i can cry 😭

[JA]

Thanks for this! I just got diagnosed with this as part of my long covid. Still learning how to adjust.

[savannahsbaiti]

I've had post viral dysautonomia/POTS symptoms. Have not been formally diagnosed yet. My PCP suggested it, saw a cardiologist and he dismissed pots but said my autonomic nervous system is out of whack. We did not do the tilt table test. I have another appt with a neurologist, to find more answers. I have been recovering from covid for almost 2 months. I have had maybe 5 good days. Most of my days, I thought I was going to die. I am still tachycardic (79-100 at rest-1 107-133 bmp standing) thats what I have clocked when I check. I try not to do that often anymore as it just makes me anxious. I use compression socks daily, drink a ton of electrolyte drinks, and always have a salty snack on hand. Some days I can go out to go shopping, etc. But I dont feel well pretty quickly and always make sure I have someone else with me. I have yet to do much alone. It freaks me out! Thank you for this video. I am so thankful to not feel alone.

[edgreen]

Autonomic dysfunction is difficult. Photophobia, loud sounds which are at normal level. Thanks for doing this one.

[sarahl]

I have pots and someone sat next to me during my final exam that was wearing heavy cologne, it completely distracted me and causes respiratory issues. I didn't wanna be weird and raise my hand to move in a room full of 100 people. We aren't allowed to get up during the test either. I wish people would be more mindful of those around them. People working in hospitals aren't supposed to wear perfume either yet some put a ton on.

[nancygiordano]

Thank you so much for sharing this video, I have been suffering with symptoms for over a year! I’ve been to all kinds of specialists. My endocrinologist mentioned POTS and I am trying to get in with the cardiologist so that I can get a tilt table test done. I cannot give you enough stars for your video. It clarifies and put me at ease that everything that I have been feeling anD
experiencing and having to deal with is legitimate!

[MoncureCoyote]

You can take anything you medically need on a USA flight including food and water. The airlines know this but usually passengers don’t.

[AubernsRevolution]

All of these symptoms! Just finding out it's dysautonomia/pots due to CPTSD. Been looking for an answer to why I feel like I'm dying

[dddamaged]

Developed fibromyalgia over last 4 years from trauma. Have noticed it has made my POTS worse.

[DREAMSQUZE]

I have had this since I was 10! They told me it would go away. Well 21 years later and I still have it 😭

[MidwiferyWisdom]

Thank you so much! You’re such a compassionate educator

[AngelasAdvice]

My daughter was diagnosed with this at 15; she is now 28. Thanks for this.

[TristineBarry]

Hey most amazing Doc Snipes and team/fam! 🤗

[Roxy]

What about those with autonomic dysfunction without POTS? 🤔 Most people assume we ALL have POTS just because they don't realize it's not automatically included in all cases of autonomic dysfunction cases.

[TristineBarry]

My hubby may have this...thanks for the edu AZ I need this. 😍💯🦋🐥

[shannonbraun]

This is by far the best video for pots that I have found!!! I feel so validated. I can't thank you enough for this video

[Whitewillow]

I have Dysautonomia, POTS, I have been part of 4 studies with Dr Raj who’s an expert in this area. (Can search on YouTube for his videos) Many who have POTS can have Ehlers Danlos Syndrome which I have as well.

Expert tips: drink 3-4L of water daily, cross legs upon standing to prevent blood pooling in legs, compression stockings, stress management is key, electrolytes in water.

The symptoms and struggles you are describing are more of Dysautonomia then just POTS.
When I’m listening to your video I feel you’re describing Dysautonomia which is what Pots falls under, many of the sensory issues etc are all that and not POTS at all. Hope you can find info to help listeners/patients/family discover it’s not a POTS issue but Dys

**I don’t agree with wearing a mask, I haven’t worn one and it triggers breathing issues. Not safe at all

[vonniejellyhead]

Watching this has been amazing. I've been thinking for some time that I may have POTS but didn't know that many of the symptoms mentioned (and which I suffer from) were part of POTS. It all makes sense now! I am going to make a list of my limitations as suggested and use the tips you have given for managing symptoms. Thank you so much for making this presentation.