Everyday Hacks to Live Well with Parkinson's

Marty Acevedo, Heather Kennedy, Tom Palizzi, and Jan Grimes discuss the tips, tricks, and "hacks" they've learned over the years to make living with Parkinson's symptoms just a little bit easier.

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0:00 - Introduction
1:45 - Hacks for the morning
11:43 - Hacks for the kitchen
19:20 - Hacks for being out and about
21:55 - Hacks for exercise
25:05 - Hacks for traveling
31:00 - Hacks for hobbies
32:40 - Hacks for camping
37:10 - Takeaways
38:55 - Exercise for vocal cords and swallowing

[efyqfft]

So happy to be able to listen to others share their stories about their lives with Parkensens. I was diagnosed with Parkensons almost 5 years ago but I'm sure I had it for 6 to 8 years before that. I am a widow and live alone but I am contemplating moving to a different home. At this point I am able to manage my home....but my current home has a lot of stairs and they are becoming a problem for me. I have lost my Dad, the following year my Mom and just last month I lost my only son. After each one of these events my symptoms have gotten worse. I take citalopram, amitriptyline and propranolol x3. I did levedop/carbidop I had great difficulty keeping it down but seemed to help better with my symptoms. Your videos have so much good information and it is so nice to know I'm not alone in this journey. Thank you thank you

[helenrichards]

I've only recently been diagnosed with Parkinson's and found this group presentation very helpful and encouraging. Thank you all - very much.

[justincase]

I love ❤️ you guys, just found your broadcast

[bestmomever]

Guys, you are amazing! Your smiles made me smile ! You are so positive ! Thank you … I m happy that I found you .

[lrichard]

These are such wonderful ideas, but even more beneficial for me was hearing such positive people speak with joy and laughter about their lives with Parkinson’s.

[annetteheatherwalker]

Thank you so much for all these hacks - watching with my son who struggles with early onset

[matthewjacobs]

I'm relearning how to walk...teaching myself how to place my feet...teaching myself to fix my gaze on a distant object to keep my balance and to swing my arms

[TheLeaBentley]

To help my elderley uncle avoid accidents, I told him that only the doctor could issue a 'ladder licence' for him, and unless the doctor issued one, we weren't allowed on any ladders.
This sounded odd to others, but I never used ladders around him either so it was a consistent rule for us.
Once at a doctor's visit my uncle asked the doctor if he did 'ladders tests'. We successfully managed the following conversation, even though I had not warned the doctor previously. The doctor nicely agreed that my uncle could get dizzy easily so no he couldn't issue a 'ladder licence'. That made it official and made my life easier and his life safer.

[spiritsciences]

Nice hints. Now ad a broken dominant shoulder from a PD fall and have my situation.

[debbieheim]

Than y’all so much. I appreciate your sharing and hacks.. very helpful.

[tomomie]

You guys are fantastic!! Thank you so much for sharing these useful tips🙏🏻 really helpful 👍🏻👍🏻👍🏻

[bethroundell]

Thank you for sharing! Just a week tomorrow the Dr discovered my starting journey with PD @ 63. My eldest brother had pd but passed with diabetic complications within 6 mos of his diagnosis at 69. We had to purchase a new toilet system for our camp so we got a portable, I guess God had us prepping ahead PD travel of time. I sew shopping 🛍 bags. I add pockets in and/or out sides with appliqués designs. I always put a smallish pocket near the top for keys so you don't have to search the bottom, I use stiff fabric. I'll be lining the dark ones now! I bought 24 yards of handle strapping at a thrift store last week for $6, extra good deal! I have a room full of fabric to make anything and everything. I have to get busy! You are all so good looking, inspiring, smiling and you have been trail blazing for us new comers. My youngest daughter, slightly ocd, has embarked me on a house wide declutter recently. We have had minor basement leaks over the years, causing rapid relocation of MY sewing/craft stuff anywhere dry. Not having moved it I have no clue where things are. I have vertigo and meniers disease so i dont do rapid relocations. The Unpacking of HASH blows my mind. Now I know why I get so muddled, my brain has been leaking. I'm thankful I may have more time to complete my house cleaning task than I thought a week ago. My mom is 93 yo living on her own. I am not looking forward to sharing my PD with her, she was crushed when my brother found he had PD. I doubt I'll be 93 and on my own. So much to do to the house base as well, hubby seems to be refocused & more fit & back on track. Momentum, chug chug said the little engine that could! Thank you all so much!

[patriciabaldwin]

Thank you so much for this video! I thought I was going crazy with my intolerance for heat, you have helped me tremendously!
God Bless

[realparkinsonslisaryan]

I don't have PD but some of these tips are great for my older clients with and without PD. You all are great to listen to! thanks!

[mbugal]

I only rough cut my veggies I'm cooking with and then use a battery operated chopper for fine cutting. Works great.

[johnekins]

Wow just found you guys, I have started at a BIG AND LOUD group, I will pass on your tips to my professional
OT and PT people.

[joannashelton]

i was diagnosed a few months ago and this was such a wonderful video to find. these people are so inspiring and fun and creative and i learned so much…love finding i’m not alone with these everyday problems and so happy to gather their hacks into my repertoire! thanks sooo much! i’ll be on the lookout for any videos with real people and their experiences living well with PD…

[micheleberg]

Fun panel and very helpful. Thank you all! Michele in Topeka, Kansas

[txywdop]

I m newly diagnosed and appreciate the hacks that were shared. Thank you

[danita]

First time listening /watching Hacks. Really interesting and inspiring. Will look for more . PD 5 years and under my own power, but will check out walker.🙏🏻