Top 10 Things To Heal From Eczema and TSW - My Journey of Healing

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***Please note: I am not a doctor, and this is not medical advice. This is just based on my own experience and my own research, in hopes it can help any of you struggling with this terrible ailment. The links above are Amazon Affiliate links.

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I don't think it's expressed enough how devastating eczema is emotionally. There have been nights where I'd lay crying, hitting myself in frustration from the pain and itchiness. Weeks I couldn't shower because any temperature of water felt like needles and stings. I've broken down going to the Urgent Care when the doctor confirmed it really was that severe. I had been playing tough for months and just broke down, unable to stop weeping from how tired I was and how it broke me. All the trial and error involving creams, remedies, lotions, medication, unscented products, what to stop eating, how to stop being so stressed. It takes such a large chunk out of you... that's what I think about. I never had the issue of worrying if people pointed or judged me so that's a small blessing but the physical hurt and exhaustion... it doesn't get talked about enough. All the cracks and itchiness and redness and open wounds and blood staining your clothes and sheets, unable to bend your arms or legs or even sleep on your head without your scalp hurting. It's... it's a serious disease. Thank you for spreading awareness.

petiolaterichiosa
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What makes me so angry is that people actually brush eczema off as something that isn’t really a problem when in reality it’s actually hell. There’s been days, weeks and months where I couldn’t even leave my house without the fear of people pointing it out and judging me because it’s just so ugly. I’ve struggled with eczema since I was an infant and I’m now 18 and I’ve been using steroids for as long as I can remember. To this day I can’t even bend my fingers and sometimes I can’t bend my legs. I work in McDonald’s and there’s so much cleaning to do (which I know is also a factor) and the chemicals used have made this flare up last two years.

“You’ll grow out of it”

That’s a lie, you don’t grow out of it. I’m sick of it.

Thank you for putting this video up . It’s so helpful to me.

atomikkitty
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I'm itching furiously as I'm watching this. Shout out to all eczema peeps!

natazer
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You can't stop scratching until the pain overcomes the itchyness- that is the best explanation of what I go through! I am addicted to hot water.

greeneyedflower
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I took my mother to 3 dermatologists in Oklahoma and they all told her the condition was not curable, only treatable. She dealt with this crap for 40 years, but then the internet came along and suddenly we had the knowledge of the world at our fingertips, so I started doing some extensive research. I found literature from an old school doctor out of the 1950's, that said excessive copper was causing eczema and he was curing people by lowering their copper with daily doses of zinc. According to him, his cure was blocked from being taught at the universities by big pharma. Then after the genome was mapped in 2003, they discovered a new form of copper, called free or unbound to ceruloplasmin copper, so I started researching this. It's a gene defect in the ATP7B copper binding gene, which causes a buildup of toxic unbound copper to build up in the body. Some of the copper is bound and taken out of the body through the bile duct, but not all of it, and this remaining unbound toxic copper builds up in the body over time. It can cause all sorts of problems, one of which is eczema. It also causes white splotches on the skin in some people, because toxic free copper destroys the melanin pigment in the cells. When a mother has a high free copper while the fetus is being developed, it sometimes causes asthma too.
It took a few years of taking zinc for my mother to lower her copper and cure her eczema, and it never came back, because she continued taking 50mg of zinc once a day. While chelating the copper, she took 50 mg of zinc 3 times per day, 150mg total per day, one hour before or 2 hours after meals. It must be taken on an empty stomach, because food binds it up and renders it inactive. The copper test you need is not a normal serum copper test, but a relatively new test called "direct measurement of free copper", the test code at lab corp is 279071. You can get prescription zinc, but over the counter zinc works just as well. The problem with zinc, is it can be nauseating if taken on an empty stomach, even the prescription form. I tested a bunch of brands and types, and now foods zinc picolinate is the least nauseating. It doesn't matter if it's zinc gluconate, zinc picolinate, etc. all zinc salts will block copper absorption and also chelate copper through intestinal cells. Zinc is a primer for metallathionine in intestinal cells, and it has a high affinity for copper. It absorbs the copper into the intestinal cells, and since the intestinal cells turn over every 8 days, and new ones are created, the old copper laden intestinal cells are sloughed off out through the stool, and the process starts over again. This is how zinc chelates copper from the body. It's slow, but one of the safest ways of decoppering the body. Don't take the old copper chelating drug penacillamine, because it has some nasty side effects. It doesn't bind the copper, it just mobilizes it from the tissue and sends high amounts of copper through the kidneys. It has also put people into a permanent vegetative state by flooding their brain with massive amounts of copper. With zinc, it may take 1, 2 or 3 years to lower your free copper to a non toxic level, depending on your age and what ATP7B gene mutation you have. There are over 400 mutations identified so far. One thing that is almost as safe as zinc, but much faster, is a compound called ammonium tetrathiomolybdate (TM). It consists of sulfur and molybdenum, and can decopper a person in 8 weeks, but it must be administered by a doctor, because you'll need weekly anemia tests. Since it's sulfur and molybdenum, you can have a compounding pharmacist make it.
If you have eczema, your whole family needs to have a free copper test done, regardless of whether they have eczema, because this is an hereditary gene defect. Not everyone with a high free copper gets eczema, but it can cause alot of other problems. Groups of people with Schizophrenia, Alzheimer's, Parkinson's, Lou Gehrig's, and Tourette's have been tested and all have shown to have a high free copper. A usage patent has been submitted to the FDA to treat and cure people with TM, but that was submitted over a decade ago and it still hasn't been granted. The reason you can have a high free copper in your blood, and not have Schizophrenia, Parkinson's etc. is because your blood brain barrier (BBB) is intact and keeping the free copper out of your brain. In schizophrenia, they are born with a defective BBB, but in the old age diseases the BBB deteriorates and becomes permeable when people get older, which allows the toxic free copper to enter and short circuit the brain. Don't expect to find a doctor that knows this, because their curriculum in medical school is controlled by big pharma, which makes huge donations to the universities. They block cures from being taught, because the big money is in treating, not curing disorders. If someone can be cured with OTC zinc, they lost a cash cow that is no longer buying monthly medications to treat the condition. High blood pressure is also caused by a high free copper and can be cured with zinc, but they're making billions from people taking blood pressure pills to treat the condition. It's all about money, and these big companies don't want you cured, only treated daily with their medications for a lifetime.
I almost forgot, if you have a high free copper causing your problem and not a vitamin D deficiency, which can also cause eczema, be sure to get on a low copper diet. The 2 highest copper foods are liver and shellfish. Chocolate mushrooms, avocados and nuts are also high in copper. The reason a low vitamin D causes eczema in some people, is because vitamin D regulates the immune response. When vitamin D gets low, the immune system goes haywire and attacks the body.

jimjackle
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I feel like I've been living in my own personal hell, a nightmare, and I've felt so isolated and alone. And it's not comforting knowing others are suffering, but I'm really surprised I'm not alone. Here's to us all healing.

jennifergalloway
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I have eczema and I feel so sorry for the people who have it too. It’s such a pain and it just ruins your life. You can’t wear certain types of clothes because you don’t want anyone to see it. Itching is the only thing that makes you feel better and you don’t want to stop because it feels so good. Sometimes even to the point where you bleed. But the aftermath KILLS. You have to cut certain foods out of your life and are always finding different lotions, creams, remedies to use. And no one understands the pain you experience every single day. I really hope they find a cure to this horrible, painful disease. We can all get through this together!🙏🏼💕

yourbeautifulily
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I've had brutal eczema my whole life and hate the steroid creams, it's made my skin so thin. I've been going to Costa
Rica almost every year in the winter recently and it's changed my life. As long as I spend lots of time in the sun and ocean everyday I have clear skin for about 2 years. It's been the best medicine for me!

rhiannonporcellato
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Good emotional states really do help. When I'm upset it flares up, but when I'm really happy it is lighter and less itchy.
Less stress is what I'm saying

beefiemanextraordinaire
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One time my skin was the worst it had ever been and so I was itching it non stop and it was burning, stinging, bleeding. Literally everything you can think of. I HATED it so much. So I started crying because I just wanted the pain to stop. And guess what? My mum and sister was laughing at me. They thought I was being ‘dramatic’. They don’t understand the pain I felt. It was horrible. They have perfect skin, they should appreciate it. And I know some of you can relate to me. Stay strong guys! 💕

yourbeautifulily
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Update on 06/18/2021- I still follow this routine and all the supplements mentioned below in my comments. I am still eczema free. It occasionally comes back on my hands, but I beat it with the essential oil + Serna cream, bath routine, and supplements. Watching this video 2 years ago was god's answer for my prayers. Thank you, again Josh!

jemp.
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I didn’t know anyone else had eczema as bad as me, any doctor I’ve ever gone to said I had the worst skin they’d ever seen. I was born with eczema and have only ever experienced clear skin once when taking prednisone. The side effects are too severe and I don’t want any more “quick fixes”. I want my body to finally be healthy. This has given me hope.

ADSM
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The one thing I really hate about my skin is how it just breaks apart leaving a mess. Sometime it gets so itchy that even if I'm bleeding I still can't stop. And the time I spend scratching at night causes me to be sleep deprived. I sometimes burn my skin with hot water just to numb it for a few minutes. Eczema is such a curse I wouldn't wish it apon my worst enemy. But I'm trying natural things now. And a lot of things you mentioned in the video I can relate to. Sort of feels better knowing I'm not going through hell alone

innoc
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What sucks with excema isn't really the blistering or the cuts that reopen and the pain that comes with them, but the fact that it's almost impossible to isolate what is making it occur and that it's the amount of trial and error you have to do to see what works for you. I had excema really bad on my hands and it almost completely debilitated me at it's worst.

BrendanBrown
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For anybody whose wondering, the diet part really is the most important. If my psoriasis flares up I immediately cut out excess sugar, processed foods, dairy and gluten and within three weeks my psoriasis will be gone if I manage to stick to it. It’s a very hard and strict diet to follow but if you’re tired of your skin problems, do it. It’s a low glycemic index diet that positively affects your insulin and lowers inflammation in the body.

garretbrowning
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Josh, all I can say is thank you. I have been struggling with eczema for al long as i can remember. Sometimes it gets to the point where i cannot bend my knees or elbow because of my sores. I always get "Stop scratching and everything will be fine!" No one understand, when you stop itching, you cannot stop until you removed most of the skin in the affected area. For me, the itchiness becomes so overwhelming the only way to be able to go on with the day is to itch until the pain drowns out the itchiness. A lot of the time you absent mindedly itch until someone points out your bloody arm. There is also the fact that steroid cream (atleast the one I use) burns amd stings when applied, sometimes worse than the eczema itself. This entire video is extraordinarily helpful. You have no idea how good it feels for someone to just understand

clone
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To hear someone else describe exactly how it feels to live with eczema brought tears to my eyes - I’m going through steroid with drawl as well... thank you for your help

nicknack-snack
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I'm touched by your openness and vulnerability. You are not only an amazing pianist, but also a sensitive human. Thank you, Josh ☺

tonih
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It’s so true. When you’re itching there’s nothing you won’t do to ease that feeling. I always hated feeling guilty after scratching myself because then I would see the blood and think about how long it would take for the skin to scab and scar. I know it sounds dumb but keep hope because your skin can be clear some day!!!!

samyyahmuhammad
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My young daughter had eczema and didn't sleep properly for several years, in turn we couldn't either, so I realised I needed to get this into control since it was controlling all of us.

It was mostly gone to an extent that we only rubbed aveeno on her once a week or when she went swimming.

Here are some of the things that worked:

1. Moved from Manchester (wettest/dampest city in UK) to Blackpool.

The change of city and moving into a bigger and more ventilated house was already helping in many ways. The previous house had a serious damp problem which aggregated the situation.

2. Made her play in fresh air daily and mostly by the sea!! I was hesitant at first and thought the salt might act as an irritant but her skin felt beautiful on the first day.

Completely quit steroids but only relied on epaderm - which i hated since it made all her clothes and whole house greasy!

So Did more research and bought 'dead sea salts' for her baths when we couldn't go to the sea.
Boiled Margosa (neem) leaves with turmeric and bathed her in the concoction daily.

Before her skin dried out I'd apply mustard oil mixed with a hint of margosa seed oil (anti bacterial and anti fungus) the margosa leaves treatment stopped the horrible infection and anti-biotics cycle.

Fed her organic broccoli and carrots twice a day, which visibly helped to reduce inflammation in her always burgundy coloured cheeks.

Completely quit refined sugar/ sweets/fizzy drinks/artificial foods.

Switched her onto full-fat goats milk

Made beakers of water to monitor her water intake

Kept her out in the evening sun as much as possible

Kept her busy at all times to prevent her itching.

At night bought her silk eczema gloves, weaved from inside her clothes to stop her from removing them and breaking her skin since i couldn't supervise her then.

Changed her bed sheets after ever 2-3days and washed them and any soft toys in 60° temperature with eco eczema friendly natural detergents.

Bought and made her wear only 100% cotton.

We made it a point on going to very sunny tourist destinations so she can spend time in the sea.
Egyptian sea is very beneficial for skin and health.

With these precautions and aversion to allopathic and pharmaceutical steroids and medicines we were able to conquer this beast of an illness. Eczema was gone!

Until now! we've recently moved to a different hard-water city, the beast is showing up at a small scale and i want to stamp it out before it makes me its slave again.

So I'm browsing the web again!

ZJflower