A Kid with Skin Growing Too Fast (Harlequin Ichthyosis)

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Harper is diagnosed with harlequin ichthyosis and her skin grows about 10x faster than normal. Her favorite thing to do is to tell jokes and laugh. Harper wants others to know that to be her friend all you have to do is say "hi".

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Harper is an absolute doll. She will go far in life if she maintains her bubbly personality.

bw
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she reminds me so much of my own daughter, it's almost uncanny. if they met, they would have an absolute blast. all the best to this family

milkmanswife
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I think Harper perfectly proved her mom’s later statement that she’s just like every other kid with the chicken butt joke. That made me smile so big 😆

gracebauer
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As a 25 year old with two disabilities and 4 diseases total who's been sick for over 10 years now, these videos almost always make me well up because of how happy these kids are and what good families they have. You do such a good job Chris

meierboy
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We should all be so lucky to be as happy as Harper!

shelbywatson
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Wow, that kid has one of the best attitudes I’ve ever seen. I think it’s impossible to know how we’d deal with a condition like that but I’m willing to bet anything she’d do better than I ever would. Honestly, she’s a great role model for the rest of us.

She has a great laugh too.

leeartlee
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Hi, Harper! Harper is such an adorable little girl! My step-cousin has Harlequin Ichthyosis and shares the same bubbly personality as Harper! Such a sweetheart! Thank you for your hard and amazing work, Chris! You do so much to bring awareness to many conditions we may or may not know about. You do so much to uplift and bring joy to those you interview. Your work is outstanding!

LiaTsukino
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It is so cool how Chris goes out of his way to look for these unique people and show them to the world. He’s so sweet for doing that both for us and for the amazing interviewers too❤

js
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What a beautiful energy she has! Chris, you bring out the best in people and bring awareness in such a compassionate way! Much love 👊🧡👍

drindy
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She's so adorable, her laugh is just so cute

lukebrown
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Harper actually has another condition that wasn't discussed in this interview...
It's called "Contagious Laughter", and when an individual with CL laughs, everyone who hears it begins to laugh as well. I've been a nurse for over 20 years now, and without a doubt I can say that Harper's is the most severe case I've ever seen. 😉
Thanks for making us smile and laugh, Harper! Stay happy and keep laughing!💜✌️

IAmSuzyQ
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She is so giggly and sweet. What a gift she is to this world.

eileenthombs
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Blessings and healing for Harper in her future

mpat
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I remember her! You visited her when she was a toddler and she was just as cute and funny then. All the best to this kid, man. She's great.

raggedyanarchist
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Harper is such a vibrant and vivacious little girl ❤️

robylove
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What a gorgeous little one. Her skin, reminds me of a beautiful rose, that lovely deep pink, shading to red. She's just utterly adorable, and her eyes, shine with happiness and a good heart. As someone with disabilities from childhood, and an entire family who have similar issues, I greatly appreciate what you do, Chris. It shouldn't be needed... but it very much is. This makes me smile so very much, especially on the days when being in bed is my only option. Bless you, Harper, you're inspiring nearly a hundred thousand people already... after only three days!

My mother, has a saying: "we go through life, bearing what we can. And it makes us better people, in the end." Harper, is not only bearing with it, she's thriving. And that... makes me so damn happy to see.

lotharsoran
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Chris is the golden retriever of humans. ☺️❤

silverdoe
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As someone with X-linked ichthyosis, my heart goes out for the little one, I couldnt imagine how strong they must be to handle such a rough form of the condition

HarroKitteh
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Oh my goodness her laughter is contagious! She’s so cute. 😄💙

Frgalicious
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Harper has souch an amazing personality, and i love her laughter 😃

ET