The Boy Whose Skin Grows Too Fast

FIVE-YEAR-OLD Evan Fasciano’s condition causes his skin to grow at ten times the normal rate, leaving him at risk of life-threatening infection. Evan, from Goshen, Connecticut, was born with Harlequin Ichthyosis, a genetic disorder that leaves him with scales across his entire body. Suffering from the severest form of the disease, Evan is at constant risk of infection - requiring him to have two baths a day so 33-year-old mum De De can scrub off the excess skin. Currently there is no cure for Harlequin Ichthyosis, but despite his condition Evan remains a lively, happy child, who is incredibly popular at school and loves to play with his younger brother Cenzo.  

Videographer / director: Steven Schloss
Producer: Tom Midlane, Ellie Winstanley
Editor: Jack Stevens

For more of the amazing side of life:

[dylanjohnson]

My friend has the same condition as this. I know life must be hard for him at times but he is the nicest person I know.

[alejandrochongcuy]

I hope this kid in his future can find happiness in his life.

[PrimusPicklebal]

A skin condition cant change my opinion on how how cute and adorable he is

[leoaranzaa]

I can never understand how humanity can be so cruel to those who are born with something they can’t control. He is a gorgeous little boy! And he has such wonderful parents

[contrslchs]

He's a cutie. Despite his condition, I know he must be a happy child. 😍 Bless him & his family and everyone else who reads this comment.

[tammymayo]

I admire how dedicated and positive the parents are. He seems very happy and loved. I love that he is having a positive school experience. I work at an elementary school and find that children are so very excepting of others differences, unlike most adults. He will have a wonderful support system with them. His peers at school will also be blessed by him as they will learn compassion much sooner.

[chrismb]

He complains rarely even tho he has a disorder. And I complain because I need to do school.



Amazing

[titanspirit]

Let's be honest, he's gonna got a lot of shit from other kids growing up. I hope he has a strong character and takes it all in his stride, doesn't let it bring him down. Parents seem to have a good attitude. Wish them well.

[jaredbucko]

This kid is a legend, even though he has the skin disorder he is so happy

[mommajoe]

He is so Adorable. Kids that have painful disorders like this, rarely do complain. Stay strong, Lil Man.

[LucasIsHereYT]

If his skin grows 10 times faster, then he kinda has Wolverine's healing factor in a way.

[untaemately]

First i saw that boy that skin falls of when you touch him, and now i see this boy that grows skin too fast ;-; :c poor kids.

[gobstairs]

He's so happy, and that's what matters.

[king]

Who in the hell thumbs down this video! Man this world is full of sick people, u cant even know your fellow neighbor anymore ! God bless this family and that little boy. My heart and prayers go out to u all. U have such an amazing little boy there .

[monifagilbert]

How amazing and proactive this mother is! She actually goes into the school to EDUCATE the children about icthyosis. I admire her strength of character, the obvious love she has for her child and the overall loving support the family brings. I am happy to live in a world with such beautiful people 😊

[Truck--kun]

Well, it's official. I no longer have anything to complain about.

[Beepboopwigglewiggle]

Oh mah gawd his eyes are adorable, I love how he smiles no matter what...

[dewdroppedrose]

Its great that they teach his classmates about his condition. Kids and adults for that matter can become bullies when they encounter something they don't understand.

[helterskelter]

he honestly has a very adorable personality

[gigisoglamorousipeeglitter]

Such a sweet boy who seems so well behaved and happy. I wish him all the best in life!