5 Top Tips for Living with POTS [CC]

#DysautonomiaAwarenessMonth

Here are my 5 top tips for living with postural orthostatic tachycardia syndrome (POTS). As a sufferer of this invisible chronic illness I have found, over the past year, that these are the best things to do to help manage this condition. I am not a medical professional these are just things that have helped me and hope they help some of you. I talk about eating, drinking, staying cool and showering with POTS.

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[pocketluna]

Not me watching this while eating pretzels with my 64 oz water bottle next to me.

[sg]

There’s this drink powder called liquid I.V that works. You put it in water. It has helped me with POTS. I was diagnosed back in july.

[perih]

I was diagnosed with POTS recently and I find this video really helped and another thing I like to do it wear compression socks, it helps the blood from pooling but they can get hot sometimes, so I avoid them in the summer. I also find eating big meals or heavy meals (like carbs) really hard because it make me dizzy, hot and my heart starts pounding and I need to stop eating even if I am still hungry therefore I always have leftovers from restaurants as there portions are too big. I don't find showering too bad for some reason. I like to shower at night that way I know I have food in my system and i don't have my showers too hot so that also helps.

[Godsgirl]

Oh my gosh! Thank you for this video! They think my son has Pots and he has all these symptoms. This is super helpful because he has autism and other special needs and cannot explain what he is feeling. It's like trying to figure out what a baby is feeling because they can't tell you. He keeps telling me he is sick after he eats. I never considered that it could be due to this. Nor did his GI Specialist. I appreciate you making this video. We learn more from people who actually experience things! I'll be watching more videos and subscribing! Thanks again!!!!

[jessicah]

Thank you so much for these tips. I have Lyme disease and POTS. A shower stool helped me on the bad days, I get nervous of slipping. Salting my food also helped. I drink Pedialyte which has less sugar than Gatorade. Staying cool is so hard in Texas summers, I am dreading summertime coming. My job requires me to stand my entire shift. My ankles and lower legs swell up so bad, elevating them when I can lay down help a bit. Thank you! 💕

Oh! I want to add another tip. In the hot months, I keep a baggie of wet washcloths (not dripping wet) in my refrigerator in the deli drawer which stays the coldest but doesn't freeze. When I'm overheating, laying those around the back of my neck, on my forehead, stomach, inner thighs, behind the knees, wherever your warm spots are help cool you off.

[mac_]

I was diagnosed with a mild case of pots I drink three to four Gatorades a day but a pedialite at night. I don't crash at least I don't think. But yeah showers are hard even if my case isn't that bad it has changed my life

[soniaperez]

All these comments made me feel so much less alone! I’ve had tachycardia since having my son, I’m still not sure what else I have but I feel like it must be something along these lines.. praying for answers!

[celested]

Mobility aids such as a foldable cane help tons too.

[jessicalingo]

I learned in the shower that not only having a shower stool but having the hosed shower head also helps. I know for those who have heat intolerant they can have a cool shower (im cold intolerant so having a hot shower is better for me) also i saw a scalp scrubber with a handle on amazon that i havent tried but am willing to try it out to reduce my hands going above my head too much. Another thing i use is a cirkul. Ita a type of water bottle that has multiple different flavors (including ones for hydration and electrolytes) that has been super helpful. You can change the level of flavor. Ive also seen that sea salt helps me and definitely compression socks. Ive noticed blood pooling in my hands when walking or if i keep my hands at my side for too long so im thinking about getting compression gloves too

[KennM]

they make low sugar / 0 sugar gatorades now! it's great because it contains salt and other electrolytes. it's a must-have for me.

[citlalie]

well is starting to warm up now and starting to have symptoms My anxiety also goes up too because of pots Thank you for the tips 💖

[martinallenuk]

I was diagnosed with Multiple Sclerosis in 2017 and every symptoms has been blamed on MS. Ive had to educate myself so much just to cope.

[Miss_pookie]

Hi! I came to this video to learn about POTS for my mom! Thank you! :D

[LeTrashPanda]

NO Coconut water for kidney patients, can be problematic due to high potassium that kidney patients can't excrete in urine. Whey protein can help with unintended weight loss too, great video....I will share with my friends & patients since you make this condition so easy to understand.

[YasuTaniina]

I live in a cold climate and I can't imagine being too warm. My toes and fingers always feel either pain or numb I'm always so very cold. I have to wear a triple layer of socks to go out in the snow for more then 15 minutes. Even just touching the car steering wheel can make pain shoot up my entire arm, especially before I got steering wheel cover. I feel like cold is more of an enemy then heat

[teresalovesbooks]

Hi, I have POTS too, great tips! I work on each of these too!

[family-peace-love]

Hi, good advice thanks. I cant take extra salt as my bp is on the higher side and I have type 2 diabetes so I need to leave 3 hours at least between eating but I also 2nd the shower stool thing and keeping cool and I know I need more water!:) also any tips for getting out and about with this issue I used a mobility scooter for a while but have ended the contract for it now and I cant walk far

[bubbelientje]

You said something about can't keep your arms above your head while wasing your hair. I can't do that without getting sick and extreme muscle pain. Is that also related to POTS? Even when i use a hair blower it's giving me a sick feeling and pain in my arms.

[chihuahuapixieprincess]

Cooler shower helps and I'm better showering a couple of hours after I'm up. I drink pure orange juice at breakfast as it's high in nutrients and potassium.

[ArmchairExpert]

I think if you give into your pots and do everything to alleviate it, I have found it doesn't improve the condition over time. But all of your tips are great.