The Double Empathy Problem 🧠 #awareness #autism #didyouknow

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⭐️ FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and POTS along with some mental health disorders.
2. How old are you?
‣ 18
3. What is FND? 🧠
4. What is Tourette's?
5. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
6. What filming equipment do I use? 📸

(not sponsored! but these are af links so i make a cut from any purchases💕)

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My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and a chronic illness called Postural Orthostatic Tachycardia Syndrome (POTS). Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, YouTube and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person.
I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accomodations I have to help my daily life. I am also an ambulatory wheelchair user showing my life using mobility aids and how symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my life!
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me and my gf are both autistic and communication is so much easier and way more healthy than in my past relationships with neurotypical people

axlthepup
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The vibe just clicks. That's why I can start conversations in an anime convention much easier than starting one with my classmates

avourrito
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The best analogy I've seen for this is its like speaking mutually intelligible languages. Like it sounds similar enough that you think you know what they mean and you can get across your meaning pretty well most of the time but you then say something completely normal in your language and find out that whats a slightly cheeky joke in your language is a horrific insult and everything goes sideways real fast.

gerrits_machinations
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I just got diagnosed with inattentive adhd at 21 years old, which has caused me, together with some trauma (that might not have happened if I wasn't neurodivergent, or at least not as severe), several severe mental illnesses. I have felt like I'm the problem my whole life, I have been told so my whole life. I am just now starting to understand why my life turned out this way, where things went wrong, and I am grieving the loss of a life that could've been much happier, if only I had received proper support. Maybe I wouldn't have had to spend a fucking year in the psych ward... but no, my parents were advised to do nothing about my symptoms when I was little, because "she'll grow out of it". Thank you for nothing, "professionals".

lunalovesnature
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Totally true, different not broken. Our communication technique is very valid, and also very useful. One of the reasons we're perceived as emotionless and lacking in empathy, is because our communication technique makes us appear that way, to NT's.
Most of us can be very loving, loyal, generous, understanding, witty (though often darkly). But we just vibin' differently, as the yout' dem sa'.

stuartchapman
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Thanks for reminding me that there are possible to have communication that feels not shit.

elliotpan
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Speaking as someone who’s neurotypical, I love this message and I agree that this is really important to recognise ❤ I have a few neurodivergent friends, and we’ve found ways to communicate that work for both of us, but just remember ✨you are not “the problem, ” and you are amazing✨

random-demon
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i’ve been besties with so many neurodivergent people and i was always so confused when people thought they communicated weird.
i just got diagnosed with ocd and now im like oooohhh lol

spoonie
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me and my sister both have autism and we find it really hard to talk to people but then we have like, 2 hour conversations😂

LiadhMoynihan-yksv
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I know this is off topic but I really appreciate you putting captions on all your videos! It really helps me follow along ❤️.

stellaandnash
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I read a study on this where researchers had autistic people watch a video then explain it to another autistic persons and to an allistic person separately and vice versa. They found that each neurotypes relayed information more effectively among their neurokin.. but they also found that autistics who mask more effectively also relayed information more effectively to allistics than any allistic was able to do with autistics. It just goes to show that not only are our communication styles different, but autistics are actually the more flexible in this regard. Allistics just expect us to be like them and flounder when we’re not, and blame us instead of making the kind of efforts that we do to accommodate them.

unistudent
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100%!! my bf has adhd and i have autism, we just immediately clicked and communication is a lot easier and somuch more healthy than anyother i've hadwith neurotypical people

nephosia
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And to add a very interesting point to this- in the experiment that was done, the group of autistic people had much better/efficient communication and scored higher, than the group of allistic people. The group that scored the lowest was the group that was a mix of autistic and allistic people.

kalt
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As an autistic girl myself I agree I also have ADHD as well so it’s pretty challenging cause I get nervous as well and have social anxiety but it’s cool I just get on with it in life

tamzinwilliams
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Also fun fact: neurodivergent people tend to group together!

My personal theory is that it is due to things like this! We get each other without having to explain our behaviors or hobbies and a lot of us tend to find friends with similar hyperfocuses which also would lead us to group together.

MoonlitBookworm
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You have no idea how much this helped
Thank you ❤

Iamgrace
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Weird. I e always described myself as Am Radio, but the rest of the world is tuned to FM Radio. All the social rules and behaviours are broadcast on FM. But since I can’t tune to that frequency, I never get the broadcasts. Which is why everyone else understands what they’re supposed to do and I don’t.

LyraDavis
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You are so amazing young lady. My 24 yr old daughter is autistic and was misdiagnosed when she was 4 until age 18 and needless to say if she were properly diagnosed things would have been much different for her.
Like you she's learning how to get on in the world, she got her driver's license and now she's going off to college. She communicates much better with young children or other people like herself. My adult son has Tourettes and his is mostly tics. When he was about 12 yrs it was very bad, in fact watching your videos reminds me of how bad his were at the time. Now he has mostly small tics when he's under stress. I just wanted to share with you like I do with my own children that you are a brilliant person and can be anything you want. God bless. ❤

kathleenmatthews
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Fairly recently I made two friends, one audhd, one adhd, I’m autistic. Clicked almost instantly, no idea how. This is actually really cool!

zoetrogolo
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My brother is autistic but after a few years since hes still little i started learning that some of the sounds he was making where the qays he was communicating but now he goes to school in special ed and he has a best friend who is also autistic and whenever i see them on campus its amazing to see that other people understand what hes saying

melaniaaguilar