What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)

A brief overview of symptoms, diagnosis and treatment based on the 2021 NICE guideline. Its not being tired all the time, patients have an energy impairment that dramatically limits their activity.

Read the ME Association summary of the NICE guideline for more info.

[polae]

That's heart breaking. My heart goes out to those who both have to live with this condition and have to explain it to others who might not understand the severity of it.

[merindahthornton]

Great, simple explanation. Thanks! I’ve had this horrible thing for over 35 years and I still struggle to explain it to people!

[entitybreathing]

Thank you so much for for this informative video. I'd just like to add that ME/CFS is classified as a neurological disease by WHO. The cause is not yet known but the most common theory is that there's an inflammation going on in the brain and spinal cord. And also, the reduction of function after doing too much is not only physical but also very much cognitive (can't write, read, think, speak etc.)

[ruthamyallan]

That's a brilliant precis - I've passed this onwards. Thank you BB!

[bethyaeger]

thank you! this video is very informative and explains my condition so perfectly! me/cfs is so hard to understand and explain

[bkate]

Excellent video, thanks so much Adam, I really do hope that it's shared widely.

[youknowcrimedontpay]

ME is actually the new name for Fibromyalgia. Ive been ill since 1982. Im 62 now. Can't care for myself and family has never helped me. Sad to say but im ready to take my own life soon. There is no reason to continue suffering any longer. I pray for the younger generation and a cure or some effective treatments.

[lisaschneeweiss]

this very complex condition is so well and short explained in this video. i’m so happy to be able to send it out to people 🙏🏻🙏🏻🙏🏻🙏🏻

[kimmi]

Thank you 🙏, Adam! I have shared with some people who need to know the basics.
Great job 👏!

[nicokelly]

thanks for the precise explanatory video!

[iamlaurenhannah]

Great video and thank you for the Dutch subtitles. Makes it much easier to share!

[deborahstone]

I have only just seen this channel. I have had CFS and Fibromyalgia since 2007 and was diagnosed quite quickly by a Rheumatologist. It is a very debilitating disease. Some researchers believe that it is caused by an overactive immune system. Avoid fizzy drinks as Aspartame can cause the pain to increase. This disease needs to be understood much more and for people to have empathy and compassion.

[noona_j]

Im a cancer survivor and after treatment I’ve had symptoms but not one doctors here in Saudi Arabia was able to diagnosed my condition, not until I went home in my country and went to a Doctor who specializes in Oriental medicine , he was the one who diagnosed me.

[mariannelabanane]

If you have a diagnosis of myalgic encephalomyelitis, always look for the underlying disease. Lyme disease is very often the cause. The symptoms are similar. I had this diagnosis (CFS/EM) 15 years ago and eventually found out that I actually had Lyme disease and other tick-borne infections transmited by one tick I hadn't seen. This is one of the main causes (not the only one, but the most important to look into). However, be aware that Lyme disease tests are not very reliable. Lyme disease specialists first check for symptoms (some symptoms are particularly typical) and do a blood test as well, but only at the best labs for testing for this disease (Igenex in the US).

[teddybearroosevelt]

Good video. The only thing that is missing in my opinion is that a number of people do recover, some even after having been sick for 10 or 20 years. The ways in which they do so are various. But it is possible for a certain percentage of patients.

[kimrider]

Hi everyone, I'm desperate for advice. I have me/cfs and ive sent videos to my parents to help them understand and educate them however, they lashed out and responded by saying "they're done with my videos" and i needed to help myself or go to a psychiatric hospital. Please help with advice. Thanks so much for describing this disease so well. xoxo Kim extremely desperate for help & support!!!

[Ladybird]

I’m recovered from long Covid after a year and a half, it was the worst period of my life

[ahmedalhsnawe]

صور لدماغ للوعيه واشرايين تكون مسدده ولا يقدر الدم تتدفق بصوره جيده

[BARBARYAN.]

What about ADHD medications for this disorder? I know they come with their own litany of downsides but if it helps one survive day to day then would it be worth it?

[SylviaDavis-eu]

Are there hospitals for M.E. PATIENTS?