The Horrible Night of 24th Of May 2022

hey❣️

content warning for this video❕the descriptions can be graphic.

short video today, this video is purely me describing everything that happened that night, and how it still affects me.

seizures ruin my life and have done since 2016.
i’m nervous to post this video but i hope by posting it i spread awareness of what seizures can really be like for me🫶🏻

thank you for watching❣️🎗

info: my seizures are not caused by epilepsy. they are caused by basal ganglia (part of the brain) which is inflamed.🔥🧠

[Lucia-yczj]

I’ve never had a seizure but the absolute horror and that dreaded awful pit of helplessness in your gut… it can be easier to think of only the physical part of seizures. But what you had to endure, knowing there will be more seizures in your future (though hopefully not as severe), there just aren’t words to describe that kind of mental toll. I’m so so sorry Evie. 🥺❤️

[Star-ikjc]

Thank you for spreading awareness of how frightening seizures can be. So many people talk about the physical aspects of seizures but not the mental effect and the toll they can take on your mental health. They are so overwhelming. The memory blanks are frightening to me as well.

I hope you're doing better now and recovering safely, big seizures can appear out of nowhere, PANS really sucks at times. Sending all my love to you and your family. Xx

[sampoulson]

Nobody should ever have to go through this. You're doing so well and even though sometimes it doesn't feel like you are, I can promise that those of us that have never experienced these things are incredibly surprised and in awe of those who have experienced this crazy stuff and made it through. You are an incredible person that has been through so much and I don't think you fully realize that!

[cherry-may]

oh evie bless your little heart! i'm so sorry that this is your reality. you are so incredibly brave and strong for sharing this with us all. hearing the emotion in your voice really got to me.. it's just horrifying to imagine the fear going through your mind..
i'm so proud of you for sharing your story! and i'm glad you're on a slow road to some sort of recovery..
keep growing and getting stronger! xx

[hannahhorehlad]

I'm crying. I'm so so so sorry this is happening to you. You are such a kind and gentle soul and you don't deserve this. I will keep you in my prayers constantly. I hope one day you can get to a place where you're a lot less affected by all these symptoms. I love you and your content and this sounds like a living nightmare. :'(

[Kodzukenray]

Keep being strong girl you can do this

[kamilaferens]

I am so sorry you had to experience that, it's so terrifying when your own body "betrays" you like that. I'm praying you will heal soon and won't have to experience something like that ever again. Stay strong!

[BadSamaJama]

I was always terrified when my Dad was having a seizure, from my earliest toddler memories until he was in a fatal accident when I was 19... I was not only afraid he wouldn't make it through them, but after he always forgot me... didn't even know he'd had a daughter for several hours at the least and I was very worried he'd forget me for ever. Did not get enough time

[daydreams.and.sunbeams]

hi this really resonated with me because i had a stroke on 7th february 2020. i was in choir class and i just walked out of the room, sort of roaming, and my teacher noticed i was kind of not myself and she came and found me. when they found me i was not responding to questions and was sitting there shaking, and my face was drooping and i had really bad tunnel vision and i had a splitting headache. they called an ambulance and they checked me and i got transferred to a new hospital that had pediatricians specializing in stroke activity and thats when i met dr acosta, he is quite literally my best friend and my hero, i am so thankful for him. i was in the icu for a week, and missed a lot of school, but they still expected me to do work which is why im scared of missing school, ive gone to school after throwing up all night cuz i was scared they would discipline me. i have been having siezure activity recently and i have low iron, and they diagnose me with hypoglycemia which makes me pass out and convulse on the ground cuz of low blood sugar, so when i watched this video it really hit me in the feels. thank you for all you do and stay strong :)

[mistyisdreaming]

Having seizures is such a terrible experience. Especially when they come out of the blue and you can’t do anything but just wait I guess. It sucks that I’ve had to go through Epilepsy since I was four, but I know my seizures will never go away and will somewhat be apart of me for my lifetime. Thank you for talking about your seizure experiences and spreading awareness towards it all. It’s true that no one does talk about the mental toll within it. Like places I’ve had seizures i always associate those places with oh “that’s the place I had a seizure.” It’s honestly sucky to have to think about that every time I go to those certain places, especially when you frequent those or see those when you pass in a car or whatnot. It also sucks when you have clothes that now associate with seizures and don’t wear them as much or not at all. Seizures are physically and mentally draining and I honestly just wish more people would talk about them and spread awareness. I’m glad you’re spreading awareness to it and it’s good you have such a big audience to educate more people with it<3
Thanks for sharing this experience with us, Evie. It must’ve been hard to share such a vulnerable experience to the world.

[jailanhelmy]

I always learn so much from you. My trips to the ER have never been anywhere close to yours but I can understand the depression and the PTSD after. Thank you for being so strong despite everything. 💜

[nads]

I've had seizures for 21 years I'm 45. I'm not sure if you're happened suddenly like mine did, but it's life changing. You're one tough cookie, and the world needs to see you shine through the sometimes darkness.. You always come out swinging:). You got this chickie!
I also have a question if you see this.... can you smell your seizures beforehand and during fugue states?

[poppyyy]

I have seizures regularly and being able to relate to how someone feels going through the whole experience is honestly so comforting thank you so much for everything you do <3

[bethlewis]

I’m so sorry evie. You are a strong woman and we are all here to support you and love you 💕

[karlharrison]

You are right Evie, this was difficult to watch. Mostly, it was difficult knowing that such an inspirational young woman as you has to go through all of this. The strength that you continue to display is astonishing and you are doing a wonderful job of raising awareness of your conditions. I, for one, have learned so much from you....you are simply amazing.

[celestialudernburg]

Oh Evie, I’m ever so sorry about this happening to you. If I had one wish in the world it would make every person suffering to stop suffering. But as they say, bad things happen to good people, and it’s sad.
You are so strong and such an inspiration, and thank you for educating me.❤️❤️

[ttr]

Im so sorry, you don’t deserve this! Love you ❤️

[zoetaylor]

You are a beautiful writer Evie! It’s hard to put such terrifying things into words sometimes but you did an immaculate job!

[julkathedeadflower_]

omg evie ): im so sorry, u don't deserve any bit of that. you are getting through this amazing, i just want to know that u are such a warrior!!<3

[Juliette_jules]

I’m so sorry you’re having such a hard time, hate hearing the pain in your voice as you speak :( xx