Even doctors miss early signs of multiple sclerosis

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There’s no cure for Multiple sclerosis, but an early diagnosis can help doctors treat the unpredictable disease.
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How can you get diagnosed early when every appointment is months into the future, and most doctors are completely clueless. You get 15 minutes per visit. Good luck...

samkitty
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To everyone who Suffers with MS. I personally will pray for you. ❤
I watched my dad SUFFER with it, a severe case. Lose all mobility within 1 year. From cane, to walker to wheelchair.
He lost his battle in 2014. Im sure they have much better treatment now! Godbless everyone! ❤

kBTVP
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It's not that they don't see the signs. It's just that they don't care

street_girl
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I woke up one day completely blind in one eye out of nowhere last year. I went to the ER in philly and was properly diagnosed with MS. Although my brain has 8 large lesions, I still retained all of my motor skills. I still commute everyday by bicycle!

BigDrawersMcGraw
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My wife had symptoms mainly on her right side. It was In correctly diagnosed as a stroke for the first 8 years. Her MS was correctly diagnosed with a spinal tap after that. She had MS for 26 years and was unable to ambulate for the last 15 years. I was her carer for almost all that time. She is no longer with us and passed at almost 82 years.

ronsmith
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I will never forget going to the doctor telling them something is wrong because I was abnormally tired. I told them I know the difference between fatigue from stress and this is not that-- I can drink an energy drink and go right to sleep in the day time. They told me it was likely just stress from being a single parent. This was over a decade before lesions were seen on an MRI.

Now I am back to southern oregon-the same area where all of my health concerns were misdiagnosed or ignored, and this year I finally enrolled in job based benefits and I am afraid to experience the same responses I had to face all those years ago.

jeanniegreen
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I PRAY AND BELIEVE THEY WILL FIND A CURE!!!❤❤❤❤❤❤

constancemichelle
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This is crazy hope to god they find a cure for this disease.

kule
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I had brain lesions and 2 neurologist still claimed that i didnt have MS. Finally after seeing my MRI a neurosurgeon surgeon recommended that i see another neurologist. That 3rd neurologist didnt hesitate before saying rhat i did have MS. I had a spinal tap to confirm it. 5 oligoclonal bands!! This took 7 years!

raineynight
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There's no yet an answer for Autoimmune conditions. If a person has one autoimmune probably will have or develop more.
That really sucks.
Pharmaceuticals aren't investing much to get to know the cause and get better treatments, direct medications because they think we aren't many people with Autoimmune conditions. So
...
If we had cancer we would be seen and treated very differently with interest and would help us.
There's a lot of ignorance and around Autoimmune conditions we're not taken seriously yet, but I think more ppl is getting sick with an autoimmune disease.
I forgot how difficult is yo get a diagnosis because of the same ignorance thinking that is "too rare".
That's when some doctors will diagnose the patient with stress or with fibromyalgia. 😢

lillyrocks
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I had a doctor tell me I had Ms. and 2 others say I didn't. Doctor s get major monetary kickback from the pharma companies for drugs they prescribe. Always get other opinions and don't fall victim to doctor s misdiagnoses.

Tns
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montel williams went undiagnosed for 9 years..even with his financial resources to pay a doc to pay attention

DONTWANTCHANNE
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My MS symptoms started in 2001, and I didn’t get diagnosed until I finally found an MS specialist who confirmed my dx in 2010. For those 9 years, not only was I humiliated by neurologist after neurologist, irreversible damage occured from not being on a DMT. I’m now secondary progressive. My nursing career is long-gone, can’t drive, fatigue, fall constantly, pain, depression, daily anxiety, migraines, diapers replaced my Victoria’s Secret, etc. I don’t wish this disease on anyone.

denisek
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noticed my hands and legs went numb to everything but never thought twice about vision since i’ve always been half blind

evilemoji
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Unfortunately didn't have any major symptoms early on, and through the first year of covid, had trouble seeing a dr. If I had been able to see a DR about my leg issues early on, and not been left assuming I had simply strained something, and trying to take it easy, I could have been on a treatment a lot sooner, and maybe not progressed to be near disability.

benmartin
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I got diagnosed 2020, after having optic neuritis and facial numbness, my eyes were deteriorating fast, 3 years on my legs go completely paralysed for a few weeks at a time RRMS sucks :( early diagnosis can help start treatment earlier, although if tried 3 so far with no good results

georgiahewitt
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This is awful, I feel like death almost every single day, dizzy, terrible fatigue, the pain is terrible in my body. I'm trying to work and it's so hard just to make it through the day. I sleep but I feel like I have not slept in days, it's miserable tbh!

timholloway
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Yes, but they always say you need lesions on the brain or spine to have MS . That’s why people are misdiagnosed. You can have the symptoms and develop lesions later on. And that’s a fact 💯 Even with Parkinson’s you need a DAT scan 💯💯

frenchtoast
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I wish there was a way to find and treat sooner.

I think I’ve had this for 20 years and my symptoms come and go, but no doctor has said anything although I fall once to three times a year, blurry vision. Some spasms, episodic difficult breathing, blurred vision. Often tingling numbness dizziness balance hip flexor weakness. Dysfunctional bladder.Sudden

Problem is I take Prozac and meds that could cause balance etc issues
Depression irritability, mood swings and cognitive issues

visionvixxen
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As I understand, research has discovered a connection between mono infection in teen years with MS in adulthood.

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