Lymphoma - Experience of Symptoms and Diagnosis

Any cancer diagnosis is difficult. But how much more difficult is it when it comes in more than 60 different forms - or subtypes. Each type has its own set of symptoms and treatment options. This video explores just a small part of seven peoples different experiences with different symptoms and diagnosis.

The Lymphoma Association - Supporting people affected by lymphatic cancer

[Big-al]

We found last month my wife has lymphoma cancer. So we begin our journey of treatments. Wish us luck.

[AB-pbky]

Doctor diagnosed me with IBS because of stomach and back pain. I went back for a second opinion and CT scan showed up enlarged lymph nodes, and Doctor diagnosing me with lymphoma. Always get another opinion!👍

[bbnicks]

I was diagnosed with lymphoma .my main system was sever pain in my neck, back and legs. I then developed a small lump on my neck. Had a blood test for cancer that came back negative.turns out lymphoma doesn't always show up in these blood tests. Then I was referred to the pain clinic who interviewed me over zoom.They sent me for an MRI that showed the lymph nodes.i was referred to a heamatolagest who had my lump biopsied. Getting diagnosed is not as easy as this video makes it seem. If I hadn't of been in so much pain it might of been years before I could of been diagnosed.

[SingPrayPaint]

Oh my gosh! Your doctor actually listened to you?!

[hollyhocks]

Thank you all for sharing your story it’s so helpful.

[obedan]

Thank you for sharing your stories 👍👍👍am in my 3 days lump left side of neck and hope its not lymphoma instead twisted muscle knot due to poor head position during sleep... i pray🤲😭

[mrsmickayla]

I have ALL the symptoms except for night sweats. 20% body weight drop in four months, fevers, rashes/itching, chest pains, quickly out of breath (also, I could HARDLY breath for 5 consecutive days), pain in my abdomen (especially right under my ribcage, anemia, bruising, constant infections...

OH! And not to mention 5 lumps in my neck and face, which I found about 8 weeks ago but could’ve been there for longer.

And guess what? My internist doesn’t want to do any testing because my bloodwork was just a little bit off, I’m young (25), It’s probably psychosomatic and the procedures and tests themselves could harm me. (Radiation/biopsies etc)
Well... my body is harming me now! 🤯

I don’t know what to do anymore now.

[sarahstauffer]

Dr's are miss diagnosing patients everyday. They've sent people home with no answer's and being told their anxious (crazy) Healthcare isn't what it was even 10yrs ago. As the last of the good Dr's retire, we're losing the last of the best we ever had..

[herbhartman]

I was diagnosed with mantle cell lymphoma stage 4 in 14, I am a Vietnam veteran and mantle cell lymphoma is the number one presumptive disease caused by agent orange! Doctors at VA administered chemo for six months and then had a stem cell transplant! I have been in remission for about five years, living a completely normal wonderful life! Praise God!
Question? About 10 years before I was diagnosed I had to have my spleen removed because it had ruptured, never found a reason for my spleen to rupture, no accident no trauma no anything just started feeling full inside went to doctor and that is when they discovered ruptured spleen! Could that ruptured spleen have been caused by agent orange? As far as I know they didn't test for cancer! They were just trying to keep me alive, I did just about die!!

[turcenoarthurjamil]

I am 22, I have these 2 or 3 very very small lumps on my right side of the leg, near the groin area. Its here for like 6 days now, at first it feels like a muscle pain from a work out untill i touched it and there's these very very small lumps, Last night I had a very sweaty night to the point I had to change clothes, but I also thought that it could be from me overthinking a lot about it and I did not turned on my electric fan bu I did let the window open for a breeze to come in, and also my bed sheet is a kind of like a not so good textile where it easily gets warm not like the cotton textile.type of bed sheet where it is comfy and a bit cold, so maybe its also a factor to consider, of the 6 days that its here that was the only night i had a sweaty night...now on its 6th day it has gotten smaller in size (I am happy about it) and I no longer feel that muscle pain kind of thing...I wish and I hope and I pray to god that this is not a lymphoma because I am just a poor man, no work, no job no savings. I am from the Philippines. And I don't have the money to go to a doctor for a check up. I hope that my condition now will continue to improve. Pray for me guys, I want to live my life, I still haven't fullfilled my dreams in life...

[spookily]

My doctor said I was fine and it was normal but since I’m a hypochondriac I still convinced myself I had it thus leading to me to painfully touch my back of my neck with no lymph node

[spookily]

Plus my nodes are soft and going down I have a cough

[michellelilley]

1:56 the typical answer of an NHS doctor.

[spookily]

I have a cough and stuffy nose so a cold and coughs cause swollen lymph nodes mine are going down I have no symptoms and it’s not getting bigger but smaller I have reactive or shotty nodes I’ve had this before

[supriyashrestha]

Its been 2 years I have enlarged lymph nodes behind my ear. As suggested by my GP, I did all blood test and everything was okay. I even did ultrasound of my whole neck and it says there are multiple lymph nodes spread inside my neck. I am having allergies, weight loss and also dizziness sometimes. Is it cancer?

[gigagazdeliani]

I lost my father last year after 5 years of fighting Hodgkins Lymphoma. Since then every single palpable little lymph node is automatically health anxiety and uncontrollable fear for me

[janhemmings]

Does the lump on the neck feel empty bit like jelly
Until you feel deeper down
I’m knackered all the time but can’t sleep past 3am
My fingers tingle I’m always itching I’ve gained weight
But now losing abit
I’ve got an appointment with the ENT on Tuesday
and I only told the doctor this Tuesday so needless
To say I’m terrified it’s cancer
What do yous think???

[spookily]

Doc said I was fine and felt said it was normal mine are a moveable soft tender small lymph node but I do have a cold as well so it is explained. If you however have a growing hard like rock round rough immovable and they come when you have nothing going on it’s best to go get checked mine are reactive and are getting smaller the only reason there still here is because I don’t stop painfully touching it and I’m still have a cold even tho it takes me months to kick a cough this has happened since I was really young so that’s why they are still there cause coughs cause then to swell and being a hypochondriac like me and constantly touching them isn’t good it’s not good for them healing and not good for your skin in general. Plus I had an ear infection couple weeks ago took me 2 weeks to get rid of it and they were swollen then even tho however cervical nodes are always palpable. If the small axis is bigger then 15 mm get checked mine aren’t. Dealing with my hypochondriac self is tough but I’m starting to stop or trying to stop inflaming them by touching because doc felt and said it’s normal because there not noticeable there normal

[spookily]

Cancer Lymph nodes are painless not tender, not moveable, not smooth, round, getting bigger. Non cancer nodes are painful or tender moveable soft like mine smooth and oval shaped

[spookily]

If you have a lump with no obvious signs of infection like cold or ear infection or the flu. Cancer nodes will also present a high fever and huge growing hard like rock not moveable lymph nodes