What Causes Stretchy Skin & Loose Joints?

Ehlers-Danlos Syndrome is a genetic condition that doctors routinely miss when patients show up exhibiting symptoms. It presents itself with hyper-mobility in the skin and joints. This often leads to injuries and unfortunately doctor's aren't as keen on diagnosing the condition as EDS as they should.

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** The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images, and information, contained in this video is for general information purposes only and does not replace a consultation with your own doctor/health professional **

#shorts #eds

[samisangryagain]

You have no idea how much time it took to finally diagnose me, and find doctors to whom I do not have to explain what EDS is and why "typical treatment" is nearly never a good idea for me! Thank you for noticing us!

[oppaloopa]

It’s important to keep in mind that “EDS” is a very broad disease. There are many different types and symptoms can present in many different ways.
I score low on the EDS test. When it comes I my fingers, hands, one of my shoulders, Im not even close to hypermobile.
But at the same time, my EDS is so severe that I’m a full time wheelchair user and could get a hip replacement at 19 if I asked my doctor.
Symptoms vary in existence and strength. A big part of raising awareness is keeping an open mind.

[kellymaple]

Another illness commonly overlooked, and sometimes associated with EDS, is POTS. I'd love to see you do a short about it. 💙

[MissMiseryGloom]

Thank you so much for bringing more attention to this disease. I have hEDS and was told I was lying and making all my pain up my whole life. It really makes me happy to see more doctors shedding light on it.

[liamdancer]

as someone with EDS i know that doctors miss it a fair bit XD

[AngelGonzalez-ojqg]

I was always told I was just “Double jointed”

[darkfrost]

"When you hear hoofbeats, think horses, not zebras." But zebras do exist. That's why the zebra is a symbol of EDS.

[magicalmaggie]

And someone with HEDS this is so true it took three years for me to get diagnosed two knee surgeries tons of medication dozens of doctors and if I must say so myself a couple of therapist lol. Thank you for bringing awareness to EDS and the different types of conditions and a lot of people don’t know that there are a lot of different types of EDS out there the type I have is HEDS which is hyper mobile Ehlers Danlos syndrome that means I have repeated dislocation very stretchy skin but it cannot be diagnosed by a blood test. This means that a lot of doctors overlooked me as a hypochondriac. Thank you for bringing awareness.

[aiyanacyr]

I have this disorder and it’s so nice to have people actually talking about it. For most of my life my doctors all just said it was anxiety and they were like there’s no way you could dislocate your hip without crazy force

[Kotohira_]

Thank you for talking about this ! I am quite literally a textbook EDS case and it took me decades of injury and doctors visits to get it diagnosed... I appreciate you raising awareness for us!!

[caramalama]

Thank you for raising awareness of us zebras, too many years lost in getting a doctor to listen, diagnose and treat. <3

[brody]

Hey can you do one on POTS? Also frequently dismissed!

[nathandear]

This condition took me 7 years of fighting and a hypochondria misdiagnosis. Along with Rheumatoid arthritis and lupus being misdiagnosed. It makes me feel less invisible to see it talked about at all

[robinannadavis]

Thank you from an aging person with EDS. Yes this is a short video, but a little too short. We need it brought out more.

[visceralkilos]

Omg would love for a full episode on EDS and how it’s linked to other conditions like PoTS ❤️ (I have both )

[DelilahSweet]

Dr. Mike should do an interview with Jessica Kellgren-Fozard about this disease. She’s super funny and interesting! 😄

[clairedrake]

My friend has severe EDS. Her story in being diagnosed led me to study Medical Anthropology. It took her years to be diagnosed with many doctors telling her she was hysterical and that her pain was in her mind.

[lauratunes]

Thank you for mentioning this! My pediatrician suspected I had EDS when I was a teenager and was diagnosed with POTS, which can be caused by EDS. But it still took me a good 10 years beyond that to finally get to see a Geneticist who diagnosed me.

I've seen so many doctors who told me I had to just ignore the symptoms. Good doctors, who are willing to listen, are diamonds in the rough and I am always so appreciative of them!

[vonsocks]

I have EDS an I seeing this legitimately made me smile thank for bringing attention to Ehlers danlos syndrome. It's one of the most neglected conditions in medicine. There is no one specialist to see, so diagnosis and treatment are not easy to accses and is often prolonged and frustrating as you get passed around with no one knowing what to do with you. I have the words "unexplainable" in my medical notes. Which although amusing, shows we need need way more reaserch and eyes directed at connective tissue disorders. Thanks Dr Mike ❤

[erickamcc]

Doctors missed it the first 23 years of my life. In fact, I ended up “diagnosing” myself and later had it confirmed by a geneticist who specialises in genetic collagen defects.

Until then (and even some afterwards, although thankfully not as many times), I was diagnosed with “all-in-your-head-itis” by many doctors and advanced practice providers.

Awareness has gotten soooo much better. I was diagnosed in 2010, and at that time, I had to tell doctors what EDS and POTS was. The rare minority knew what it was back the But now, I can’t remember the last time I’ve had to explain both the EDS and dysautonomia to a medical professional. Maybe a couple of years ago?