Can Neuroscience Research Help Solve Her Son's Medical Mystery?

Diary Of A Mother On The Edge follows Henrietta Spink as she seeks therapy for her two disabled sons Freddie and Henry.

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Produced by Chameleon TV.

[TracynTaane]

When she said" being disabled your in the hands of others, and if those hands aren't kind what an awful world it must be, "that really hit my heart

[sarakaminski]

How lucky are these two boys are to have a mommy and daddy who truly are the most beautiful parents in the whole world.. God bless your Beautiful family.

[reginagillman]

These 2 parents have to be THE most loving and compassionate people on Earth!! What incredible humans they are!!

[ijustrealllylikecats]

I just love how Freddie laughs and jokes, he has an adorable sense of humor. And when Henry was looking at himself in the mirror, that huge smile was precious. Their mother has been faced with SO MUCH struggle and hardship and heartache.... But she still managed to raise two happy boys, the way she loves them through everything really touches my heart.

[dandylion]

This makes me realize how I take growing up with a severely disabled brother for granted. Daniel is almost exactly like Henry, except that he can walk. I easily got used to watching over him, feeding him, changing him, helping him during his seizures, etc because I didn't know any different. It must have been much harder for my mom, especially since she had already had one normally developing son. She had to adapt to his needs and grow to accept that he will probably never change. I got to say she's done a pretty damn good job of learning how to take care of him patiently and lovingly. And kudos to her for choosing to deal with three more kids after Daniel. There is no one stronger than the parent of a special needs kid. I love my family.

[julie.]

The great majority of parents will say that they'd die for their children. The biggest difference with these parents is, they chose to live for their kids.

[ConspiracyGamer]

So many of us take things for granted including myself. We're so blessed to have our health while others suffer on a daily basis. Thank god these kids have great parents!

[MsKReads]

"We're drowning in land, why not float on the sea?" What a beautiful line.

[tysloane]

What a beautiful, kind, patient, passionate, selfless, hard working loving mother she is to her lovely boys. Very inspiring and really thought provoking. I’ve always known how lucky I am to have healthy children but this really puts things into perspective.

[pattifiore]

Shame on England social services for failing these boys and their family. Mom is an absolute angel

[tatette]

Such beautiful parents. Bless them. To be that level headed, positive and kind through everything they have been through...

[Feemailgamer]

Omg that laugh when he sat on the fart bench is pure innocent joy 😂 I love it

[carolesanchez]

Having been the mother of a disabled child, who died recently, I so totally understand the richness that these children bring to parents, despite as Dad says, that you do not have the 'normal' joys of raising a healthy child. It is a hard road, but a labor of love and certainly provides more soul growth than raising healthy children. So many would term my child's condition as a tragedy, or devastating, but my son was and will remain the greatest blessing of my life. They bring the deepest pain yet the deepest joy that only parents of these children understand. God bless you both.

[pattifiore]

If you haven’t read Henrietta’s book I urge you to run and find it because it is the most inspirational and heartwarming and dedicated piece of literature I’ve ever read. The parents are warriors and the boys are just sweethearts. The book will make you cry and scream with outage and always feel the highs with them. I am in awe of Henrietta, just awe

[tysloane]

Wow, just finished and I am just in awe of how strong both these parents are. Moving onto that boat and just living the dream traveling and just being a family, so deserved.
AND still fighting the battle with the social care system in order to help other families, despite being awarded little help themselves. I hope they are all happy and still adventuring the world.

[Jackie-rccj]

I think the title should be changed to" the most determined mother in the world who never gave up". To hear that one of the children has constant epileptic fits is even more heartbreaking.

[wickedflower]

I would love to see an update several years on for these boys, technology improves day by day. Mums positive outlook makes a huge difference.

[foofy]

having two healthy sons is difficult enough. i feel for these parents.

[SJwasMADEin]

I adore how in love the parents are. Wonderful parents. So much love and respect to this mother.

[kathrynlouise]

I’m a carer for adults with severe learning disabilities, and I have so much respect for parents who are carers 24/7, it is bloody hard work but I get to have a rest at the end of my shift, they don’t. Amazing parents