Frontotemporal Dementia: Signs and Symptoms

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Welcome to the place where I share dementia tips, strategies, and information for family members caring for a loved one with any type of dementia (such as Alzheimer's disease, Lewy Body dementia, vascular dementia, frontotemporal dementia, etc.)

In today's video, I talked about Frontotemporal dementia: Signs and Symptoms
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Dealing with Challenging Behaviors:

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OTHER VIDEOS MENTIONED IN THIS VIDEO:
Find out: "why you should lie to your loved one with dementia"
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In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
#careblazer #dementia #dementiacare
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My husband was diagnosed with frontotemporal dementia in the 1990's (also OCD, ADHD etc...) with no explanation or how I was suppose to deal with the situation. Yes, there was many embarrassing situations and people even said he was "faking it" ! Finally 6 years in long term care and died age 72. It was a long slow ordeal for me and not much support from professionals or others.

elainegoad
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You said that caregiving for a dementia patient, especially a spouse, increases the caregiver's risk of dementia. I'd like more information about this.

JudySpicer-gy
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These videos are God sent!!! This is the hardest thing I have faced watching my husband of 55 years turn into a man I don't know anymore.

bevstaska
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Obviously, I have stumbled on your video that was done approximately three years ago however, please do a lot of us caretakers a “great service” and expand on your comment that we too are at risk for the same disease when caring for a family member! I need to know this! I’ve never heard of this before! Thank you.

sarahswan
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Thank you for your post, I have followed you for several years, my husband had FTD .He passed in March due to a fall and had severe brain bleed. I just wanted to thank you for all the help you give caregivers with your post. Sharyn Johnson

sharynjohnson
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My wife was over-medicated for psychological issues in her 50s and she had symptoms very similar to what you've described as frontotemporal dementia. Under her psychiatrist's direction, she has been lowering her meds and the symptoms has decreased dramatically and she's been more coherent and happier.

blanchae
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Thanks so much for doing these videos! I take care of my Mother who has Dementia. This is the hardest thing I have ever done in my lifetime.

stephaniejohnson
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You are describing my 28-year-old daughter who has been struggling with this around 10 years. Unfortunately, she was one of the ones labeled with "schizoaffective disorder" and is currently awaiting placement in a group home after another violent episode with me. Trying to get her help or medical testing has been a nightmare. Thank you for making this video.

babygirl
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You have no idea how helpful these videos are. Dementia has been such a mystery to me.

anitarice
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You are a great human being . My dad has dementia (probably vascular) and I was clueless what to do .Now after listening to your videos, I got some idea how to deal with it.Thanks for your care and support.

chiruboy
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100% True Personality Behavior changes MY husband was Diagnosed with a Very Rare Frontotemporal Dementia called FAHRS DEMENTIA in 2007 he Died on 20/04/2020 for 13yrs was it a Very SAD JOURNEY for me because my husband was my Child who I must care for Nearly 40yrs married

daleneminnies
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My mom is 51 years old and currently dealing with this. I recently had to place her in a care home because she’s a constant wanderer. Neurologist, psychiatrist, and the system as a whole failed us tremendously until it was completely out of control. This video thoroughly explains what exactly is wrong. Thank you so much for this video❤

TaviaTukes
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I had three family members all going through different types of dementia. my brothers dementia was violent outbursts and compulsive behavior. My father was deaf, partly blind, and wheelchair bound. with the frontal lobe dementia. He was petrified to be alone in a room. He had to have another person with him at all times. After a hospital stay, doctors placed him in nursing home. His doctor knew about my brothers dementia and my mothers. The reason for me commenting is you never mentioned the 72 hour cycle these patients experience. All three of my family members experienced the 3 day cycle. not at the same time, thank goodness. I kept a calendar so I wood know when each of them would be on their 3rd day, the 3rd days were awful for each of them. Behavior was so bad I wouldn't let my sister pick up my mother. she would take my mother twice a week to help me out but she had three small children, didn't want them seeing grandma acting so unstable. their 1st days were fine, 2nd days not to bad, stressful but I could manage their care. 3rd days was like being in an insane asylum. They were so violent, abusive to me, fighting with me about food, refusing to eat, shower, changing the tv channel every few minutes. repeating themselves every five minutes. crying for nothing. then the next day they were fine. can you explain the 3 day cycle to your followers?

evelynsciales
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thank you!thank you!thank you! My mom has been driving me crazy, and I have neglected my own life because of it and I feel so alone, we got her out of the nursing home in 10 days, she was there for rehab at first and could not return home because her husband was abusing her and we were not even notified, I wasn't prepared or expecting this, but my brother brought her here cause I'm self employed and have a flexible schedule, but I don't have my house yet, and this place isn't big enough for my brother to be here, and the struggle is real, I have been trying to reason with her to do what is best for her health and I have felt like she fights me every step of the way, I feel so unappreciated and I'm struggling because I miss the way things used to be, and I just downloaded your guide and at least now I feel like there is hope so thank you so very much!

preplikeagypsy
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I am finding SO much comfort from your videos! Thank you so much! I look forward to your upcoming videos.

sherilynschneider
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you just cleared up at least 3 important questions i was having about my mom. she was diognosed with early onset demensia 4 years ago. your explanation of FrontoTemperal Demensia fits so many of my moms symtoms.
thank you sincerely.

sharitumlinson
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My husband was diagnosed 2 yrs ago with frontotemporal dementia and his early onset symptoms are EXACTLY as you have described. He went from a happy fun loving, kind, loving husband to someone who cannot show any emotion today. Like you said, he is "flat". I am looking forward to your future videos on this subject. Thank you.

sunfish
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My husband has FTD but doesn't have the behavioral part - his is more language issues. Such as "which way is the best way to go" or he can't figure out critical thinking and forgets words. He has Semantic Dementia. He has no more humor but he laughs and follows my social cues. I love these videos, they teach me so much as a caregiver and wife.

DStrauch
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I was chocked to learn that you increase your own risk of getting dementia, and apparently dramatically so, just by caring for someone who is suffering from the disease. I would like to hear you expand on this topic, and explain how this can be! Does this increased risk also apply to medical professionals who care for patients with dementia?

dataman
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Thank you for these videos, I'm caregiver for my 95 old year mother, they've been very informative and helpful

surfrby