Frontotemporal Dementia | 60 Minutes Archive

From 2019, Bill Whitaker reports on frontotemporal dementia, or FTD, the most common form of dementia among people under 60. Mark Johnson, one of the subjects of the story, recently lost his battle with the disease.

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[ronihelena]

Sending love to Bruce Willis and each and every other person affected by this disease. ❤😢

[janicelewis]

My 64 year old husband was just diagnosed with this disease on his birthday 3 weeks ago.
I’ve noticed changes with his speech, personality etc….I’m not sure what or how I will handle this or where to get help for him. We have insurance but the doctors aren’t really telling us much or helping at all. As far as our house well we lost our home 4 years ago and now we’re in a 3 story townhouse which I’m trying to get my credit score and finances together so I can get him into a ranch house so everything will be on one level.

I’m still working full time and can’t afford to quit at this time but I know soon I will have to.

Whoever reads this keep us in your prayers please! Thank You!

[ashasenjutv]

Here after Bruce Willis diagnosis. Man, this disease is heartbreaking.

[stacyg]

What a horrible way to lose a loved one. Unimaginable, really. Strength to all those who are going through this.

[omgsplace]

This poor woman had to find an extra $7, 000 every month on top of ALL this? Losing her husband, raising 4 young kids, having a full time job, paying all bills/mortgage, etc. Oh yeah plus $7, 000. Absolutely obscene. She has some seriously impressive strength.

[tammydalterio]

My sister passed away at 57 years old from this horrible disease. It breaks my heart to think about what she went through. God bless anyone who has to go through this.

[choliemack]

I actually worked at the facility that Mr. Johnson was a resident at and on his unit. I remember we had to put a lock on the staff refrigerator because he would go in there and eat all of our food. And I tell ya! He was one strong guy because he tore the entire lock off one day! Lol He was a handful but he was such a pleasure to be around and I love him just as much as I did my other memory care patients. He was definitely the most challenging patient I've had in my CNA career BY FAR. Seeing this brings tears to my eyes because I remember Amy and the children coming to see Mark and spend time with him. She would always leave with such a sad look on her face. Amy and Mark had such a big heart. When I had my son, Amy gifted my baby a beautiful blue blanket with planets on it. I still have it to this day and will never get rid of it. Rest In Peace, Mark. I am glad you are no longer suffering and are now able to watch over your family from heaven.

[jbeals]

Man, this was heavy. I know mark has since passed away and my heart breaks for the loss of his life far too soon, his children & his wife. I don’t think I will ever forget this story 😔

[randomcat]

Mark's poor wife. What a beautiful woman to care for him for so long. I wish her all the best now and hope she can move on with her life ❤️

[JesseMartinez-cmtl]

I'm here to support Bruce by learning more about this disease.

[greengorillah]

I strongly suspect my father was in the early stages of FTD or something similar. He then got an aggressive cancer that took his life. In a way that might have been a blessing dementia is so incredibly cruel. A hug to everyone dealing with this.

[NightOwl]

My mom got PPA at age 58 it's an absolutely horrific disease, the fact that she could not talk read or write was awful, she was proud that she won the spelling bees in school, plus she sang for a living..singing was her love.. The doctor said by looking at her scan, she probably had it already 8 years.. She died of aspiration at the age of 68.. I miss you so much, Mom.. My icon picture is her.

[nicolajane]

This broke my heart. My mum had FTD Dementia, she was diagnosed in 2013, she died in 2016. It was so fast and progressive. The rapid change in her completely stripped my mums character & personality. My mum was such a beautiful kind caring giving person. Loved by everyone and she was my best friend in the world. When my mum lost her mobility and her speech. That was the hardest. She couldn't lift her head up and her neck just hung forward and her head would bend over. I remember I would push her everywhere in her wheelchair. It was very difficult but I didn't care as long as she got outside and continued to shopping or have some food. The first time she choked we were in a cafe, and she forgot how to swallow. They wouldn't put a tube because they said she would pull it out. She then got infections all the time. Then she got pneumonia and we slowly watched her die.

All I can say this is the cruelest disease I've ever known. It's so cruel and painful at the end. To watch my mum suffer in that way literally broke me. My mum passed and three months later I got breast cancer. The trauma from being my mums carer is still with me every day.

I'm so grateful for videos like this. We need to get FTD dementia out there to the world. I pray no one has to go through this. I Hope they do find a cure and soon. God bless all the people with FTD, their family and friends 🙏 ❤️

[elizabethwidlund]

I have a friend who has this. Her whole personality changed. She divorced her husband of many years, exhibited bizarre behavior, and she's now aphasic. She gained about 200 pounds. Her kids are terrified because their grandmother also died from it. She was in a memory care facility and is now in a long-term care hospital. It's just awful.

[doodlebug]

One of the saddest things about this kind of illness is that after your loved one dies your strongest memories of them are about the last part of their lives. My father had always been a funny, creative, kind man who thought of others, but in his last years all that had gone. As his caretaker I witnessed the destruction of his personality and dealt with the negative behavior and now they are the main things I remember.

[CaptainBlaine]

Man, these stories are heartbreaking. I’m scared of losing my mind most of all, so it’s horrifying as well.

[rebeccabrockway]

Two very powerful episodes of 60 Minutes., which has compassionately educated the world for many years.

[ronniedelahoussayechauvin]

My Husband whom passed away on January 11 2016 Had Frontal Dementia, He had wore a 24 Hour Patch, he also battled Parkinson’s Disease. God was so GOOD, Al was such a KIND MAN, he was a JOY to care for never A JOB...My Al was A JOY, I would do it all over again.

[cyols]

I feel so sorry for Amy and her children. May God be with you.

[citizenearth]

I feel so sorry for Amy and her little ones. I pray she finds peace of mind and strength when she needs it. She is a strong, good person.