Hospice Care is for End of Life (it doesn't speed it up)

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#endoflife #hospice #activelydying

[karenminniec]

My 100 year old mom was diagnosed with pancreatic cancer in Sept 2023. She was offered immunotherapy as an option, but said she didn't want to do testing and chose hospice and signed up in December 2023. Yesterday she was at our home for Mother's Day dinner. She is getting frail, but still enjoying her food and getting out. Also keeps looking forward to family visits. We know she will decline further and these videos have been so helpful to understand the dying process and make it less scary. Thank you

[nickorlando]

My oldest sister just entered into a hospice house a hour ago. I pray they take good care of her in her last days. Lung cancer. I wish no one ever smokes in this world anymore.

[npatriciacastillo]

I appreciate your videos. I am not ill nor do I have anyone currently ill that I'm caring for. I started watching your videos bc I thought it best to watch them BEFORE I was in a stressful/emotional state. I'm gathering information so I won't be caught off guard when life changes. Thank you, again, for all the info you share. 😊

[petuniasevan]

My mother is on hospice care (she has Alzheimer's) and the hospice care folks: nurses, chaplain, social worker... have been fantastic. Mom has had an episode a couple of days ago and may not come out of it; the hospice nurse answered all my questions and has been following up every day and keeping me informed. We will talk again in the morning and due to her encouragement and guidance, coupled with Mom's wishes stated years ago, Mom will be kept comfortable until she passes, which could be any day now.
Thank you Nurse Julie and all hospice care workers for their compassion and dedication. I'm feeling very emotional right now just typing this. You're angels indeed.

[jeffpawlinski]

Amen Julie, as a longtime Hospice Care Consultant, Liaison, here in Milwaukee I frequently speak to these same topics and myths. And as an end-of-life patient advocate here in a colder climate I emphasize to my patients and families the comfort of being at home, surrounded by their loved ones, pets, music and whatever gives them the peace they deserve, without having to brave the cold, the snow and frigid wind chills to see another specialist across town in such miserable weather. Although, Milwaukee is a beautiful city many months of the year! Thank You, as always, Julie.

[phxhoney]

I lost my father just this morning and hospice was a Godsend. The support is incredible and our nurse was so awesome explaining everything and ensuring he passed in the most peaceful and pain free way possible. ❤❤❤

[MusicIsARainbow]

Thank you for this. After my mom fell, she went on end of life care and my sister worried that we just drugged her to death. I told her, “Mom didn’t die because she fell. She fell because she was dying.”

[BobSebring]

For me, Hospice was a godsend. It was just me taking care of my mom. I'm beyond grateful for all their compassionate help. I was so stressed and grieving towards the end that I had gotten sick because of a weak immune system. Once my mom had died, Hospice was their to give me grief support with individual and group therapy for a whole year! Free if charge. I owe hospice a huge debt of gratitude. I would definitely and highly suggest to anyone to include Hospice for their dying loved one. I can't imagine not having them there when I look back at it.

[zeldamoore]

My husband was given various chemo until he was on brink of death. No good results. Finally DR recommended hospice & said she was guessing he had about 6 months. He had no appetite & no energy or strength. Hospice treatment caused increase in appetite & energy & he lived about 6 months with minimal pain.

[EKQMarx]

Julie, you are an exceptional person, nurse and educator. Thank you so very much for the wealth of information and knowledge that your videos provide.

[julesporter]

Hospice care needs a heavy re-branding. Such a wonderful, life enhancing service and SO misunderstood. I wish for everyone that needs to, to find this video. Thank you Julie, for everything you do x

[dlmsarge]

I want to thank you for this channel and all the invaluable information you provide about dying and hospice care. I'm in my mid 60s and was bedside for the death of my dad and also for my younger brother's death. (My older sister having un-alived herself as well) I felt confused and frightened in those moments. My mother is 91 and in serious decline. I'm sort of binge watching your videos in the hopes I'll be better prepared for her death. Your experience and words provide a lot comfort, thank you.

[catherinemalloy]

I want to thank you for your videos. My dad has frontal lobe dementia and started at home hospice a few weeks ago. He’s a former defensive lineman … years ago. I was confused and watched your videos and then had my mom watch. It is still difficult but things make more sense and we are better able to understand what he is going through and what to expect. He’s very strong, but weak at the same time. Thank goodness for your videos. They changed everything for our understanding!!! It is possible to be there for a loved one and help them move along. How caring and lovely. Thank you so much!!

[bruceshark]

Thank you, Julie
As a hospice caregiver we get this a lot

[GregSr]

My 88 year old father lived with my wife and me for six years. In his last six months, his health had been deteriorating steadily. He was placed in hospice care. I did not really understand the role of hospice nurses. Then one nurse explained it in very simple terms. They neither speed up or delay the patient's death. They simply ensure comfort and minimal suffering. In the case of my father, that is exactly what they did. My father died very peacefully in his sleep.

[ceciliaferreira]

My husband is LPN. He did a lot nights with hospice care. I asked about his patients. Maybe he/she died today. I asked him the Patient name. I pray to Saint Joseph for his/her soul. My husband didn't understand why his patients die on his shift, not with other nurse next. I was thinking the prayers i did to Saint Joseph (Virgin Mary Husband) for these souls, made them died in peace. Thanks to Saint Joseph to Protect and Bless them. 🙏

[tammierr]

Hospice doesn’t get enough credit for all they can provide! As a RN I’m 100 % for hospice and as a medical provider we know too much. I’m so thankful my dad went on hospice after being diagnosed with cancer…..he died peacefully in his home. You are correct Julie sometimes the treatment will shorten your life more than the actual disease. Thank you for your awesome videos! You are helping so many people!!!

[virginiacaston]

In my opinion people who say that didn't adequately educate themselves about hospice and the dying process.

[raloufen]

I myself was put on hospice. Didn't need it. Found signed DNR papers too. Not signed by me. Discovered weeks after release. Look at everyone's paperwork then look again. Not everyone has your best interests in mind

[beckyjoyner]

Hi Julie, I am so glad to have found your channel. Your videos have taught me so much and the more I understand, hopefully the more I can handle it. I am sole caregiver to my mom. She has colon cancer that spread to lungs and liver. She went through radiation and later chemo. However the last chemo drug that was tried made her out of her mind and tempirarily took away her motor skills. She went in hospice late last year. I have studied the symptoms you have talked about in your videos. At this point she is not eating but still drinking and having a hard time swallowing. She is getting close to being immobile on her own. Something new in the last few days she's constantly sleeping with her mouth open. At this point is it prudent to paying closer attention to her breathing? No active dying signs yet.