Differences between Hospice Care vs Palliative Care

I'm back this week explaining the differences between Hospice Care and Palliative Care! Let's get into some of the questions that you've been asking about the differences.

0:00 Differences between Hospice Care and Palliative Care
00:40 Hospice Care
06:17 Palliative Care
10:10 Answering Questions from Comments

Here are some questions that were answered in the video:

From @CathyThorsen "Isn't that what palliative care is for? When they're not going to get better, but they're not likely to die soon?"

From @66NEETS "Hi Julie I’m not sure if you have done a video on this but what is the difference between hospice and palliative care? My mom will be 92 in June she just broke her hip :/ 3 weeks ago. I watch her daily suffering so badly in tremendous pain in rehab she’s not getting any better it breaks my heart to think of her becoming a nursing home patient there is so much neglect :/ zero compassion. Within 4 days she had a full on diaper rash of her entire butt now today I see actual break down happening. She stands up for therapy but she’s in pain and I don’t see her ever staring on her own agains she’s so weak :/ I keep asking her to think about palliative care but she won’t answer me she acts like she doesn’t hear me. I’m in Florida but I’m not sure about the laws and the difference between the 2. Sorry for the rambling"

From @nogarlicplease "I have a question Julie. What is the difference between Hospice and Palliative Care ? My daughter passed away on Feb. 20th 2023 in Hospice. I also had a friend pass in Palliative Care. Is it based on their condition or the time they have left?"

From @CatCmdr "What about Palliative Care? That is different from Hospice Care. There doesn’t need to be imminent death?? ❤❤"

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#hospice #hospicenurse #hospicecare

[hospicenursejulie]

What other questions do you have? I hope this gives everyone a bit more of an understanding about the differences!

[susanfifer]

I did palliative care for my 87 year old dad who also lived with us for 11 years, I did feel alone sometimes as my dad went downhill quickly from learning that he had aggressive bladder cancer to his death was 6 weeks.. I did everything for my dad, changed his diapers, sponge bathe him and would lay awake hearing him breathe.. The last day of two he refused his meds, water then food and I couldn’t lift him good and decided to phone hospice and thankfully they had a bed available, I cried tears telling my dad but I did not leave his side for 5 days and nights in hospice, I was a daughter to him during the last few days of his life instead of a caregiver.. I talked, sang listen to music and held his hand .. even though he was unconscious but knew I was there.. The best gift I ever gave him was holding his hand until he saw my mom again after 21 years❤ I miss him so, but so grateful I was there for him

[jens]

My mother passed last Friday 5/26. If I hadn't found your channel a few weeks ago and learned what to expect, the various stages leading up to her passing, I would have been more stressed than I was. A great big thank you for educating me on what to expect and why to expect it. It was so helpful at an extremely stressful time. God Bless You Hospice Nurse Julie!

[SophisticatedBob]

Long term Healthcare Administrator here: This woman knows what she is talking about. This is very well worded, and very well presented. It can be complicated, but she did a great job explaining it.

[pats]

I am 69, have end stage renal disease. I have chosen not to do dialysis. I was on hospice for a few months last year after a series of kidney infections left me weak & in need of more care than I could give myself. It was nice having a nurse & cna come out weekly to assist with showers & lite housekeeping. I became stronger after clearing the kidney infections and moved to palliative care. A nurse visits me monthly to check in with me & we FaceTime the PA. I appreciate both services and know I will eventually be back on hospice at some point. I am thankful hospice will be there when the time comes. Thank you for educating us on the difference.

[hollyhowes]

I am a former Hospice and Home Health Aide. I wish there was a Medicare rule that would allow someone of the age of 90 y/o to be eligible for hospice. They may not have a terminal illness, but I feel at their age, anything can happen at any time! Many times just have that extra hospice care can benefit them tremendously! And the family too!

[joannmannarino]

When my dad died - and this was 30 yrs ago - from pancreatic cancer my mom was a nurse so was able to do a lot of things such as bath him that they would have done and I specifically remember coming over one time and I had recently gotten married but lived very close so I was there a lot but I remember specifically coming over and they were vacuuming. It wasn’t like our house was dirty but I think they wanted to do something for us but there wasn’t really anything to do. They were wonderful. I will never forget my dads nurse. She cried when my dad passed away. You guys are very special people!!!❤️

[bobjohnson]

Hospice Nurse Julie,

I write to you as my mother, 92, Father, 89 have commuted unaided from Texas to Colorado for another summer season. My wife’s Grandmother 95, and her great aunt., 93 lived in MO, and had to be brought to our home because they could no longer care for themselves. Long story short, the Great Aunt went on Hospice immediately, and it was awesome. She passed after a month in our home with the aid of Hospice nurses and caregivers. Her Grandmother while visiting the Fort Worth Zoo on a Wednesday came home and was ready to go. Hospice to the rescue. Visits, medicine, care, appliances. She was gone in a week.

The information you are providing needs to be on a NETWORK TELEVISION SHOW! It’s that critical. I’m only 60, retired, and am sure I have set myself through my chosen lifestyle to find my demise in some unique way. Your explanations are comforting! Thank you! Bob

[juliestevens]

My father died at home on hospice care and my husband was on palliative care at home and transitioned to hospice care in a nursing home just before he passed away, so I got to be familiar with the differences. Thank you for such a clear explanation of the two. That is exactly the distinction I saw played out.

[packatak]

Just a quick note: that “have six months to live thing” is just a guideline. It is guided by a phrase something like “in the physician’s best estimate based on the disease process”. I had patients on for less than 24 hours. And some that made it to 2 yrs.
Our hospice really liked to have the patient come on sooner rather than later. It gives the hospice a chance to really get to know the patient and family better. It allows us to help everyone understand and plan for what is happening.

[pattyglass]

Children are different. Thankfully. I’m a pediatric hospice nurse and they can take advantage of concurrent care. This means that they get all the benefit of hospice while they are still able to pursue disease directed care. It’s made a huge difference for kiddos and their families to be able to build that relationship. Some kiddos are in palliative care/hospice for years. It’s a beautiful thing….hospice care 😊

[maureenmiller-delisle]

I’ve had palliative care since Oct 2022 it’s been a blessing having them! The doctor makes home visits and FaceTime visits! Palliative care has been amazing for pain management and anxiety for me to have a quality of life as I was diagnosed with stage II Cholangiocarcinoma. We talk about when transitioning to hospice when that time comes.

[coraleeolazabal]

Life is terminal. My dad is 94, and from watching you I have learned that he is in his end-stage. He's been healthy for most of his life. He doesn't qualify for hospice. But thank God you've explained what's going to happen and I can see it coming. You have made this process so much easier for me. Thank you so much. CL

[jimurquhart]

I have copd and emphysema worked the last 28 years in nursing homes in the maintenance department and I have learned more in the last 16 minutes last 20
years. Always great respect for the nurses.
Thank you for sharing. 🙏

[mommyhatesguns]

Great video! I’m a Geriatric Care Manager and physician assistant in NYC. I will add to what you have said:
Very few people want to be in a nursing home. If you have lots of money, you can pay for private home care (fyi: if you have home attendants through any agency, they won’t be allowed to administer medication to you. But you can go a “private hire” route.)

If you don’t have pots of money, you may be able to get homecare paid for by Medicaid. This will not interfere with hospice (which is through Medicare).

In my area, the palliative team usually only gives you one visit: hospice is ongoing and way way more supportive.

[justme]

Hospis was so kind to my MIL before she passed 2months ago.They came and spent time, had meds for her, bathed her, gave her love.Taught me how to help her

[bryan]

Trust me. This is 100% true. My mum spent her last 3 months on a UK oncology ward over Christmas. My big sisters too charge, I couldn’t deal with it. On the day she died my sisters begged them not to put her in the metal coffin/transfer thing. You see we had stayed 24/7 (in shifts) so knew the routine. Curtains all shut, squeaky wheel trolly in then out and curtains opened to see it empty but being remade. The staff could see my sisters and dads reaction so they put an oxygen mask over mums face and then transferred her to the mortuary through the hospital with family alongside. People not knowing that was a deceased person. Complete compassion. On the day of mums funeral the first to come and hug me was a nursing assistant from mums ward. My mum was 62. Amazing people. My Dad, 63, was diagnosed with stomach cancer 6 weeks later and died in a hospice 5 months later. I was there for that. So peaceful. So calm. A good death is real people.

[marileeplus]

This is excellent! As a former Hospice and palliative care nurse I appreciate how you explained this in your video. Thank you, Well done! 😊

[KansasCityScientologyAudit]

My sister & I took care of my Dad on Hospice and we loved the care they gave not only to my Dad, but to us! When my Mom was diagnosed with Stage 4 small cell kung cancer, we again bought in Hospice, although we had to go with a different agency due to staffing. Again, such wonderful care! My Irish Twin brother is now in Hospice House because, due to his dementia, we couldn't care for him at home. I never let a chance go by without singing the praises of Hospice. People think Hospice is where you go to die! After my experiences, I say it's where you go to live! You can be safe & comfortable with much less anxiety! ! No visiting hours, overhead lights on when you're sleeping, nobody waking you up to take vitals, etc! You can be with your family & friends, and have those moments that they will carry with them long after you're gone!

[DosFloresitas]

Great explanation of the difference of Hospice vs Palliative care! My mom had Alzheimer and on this past summer my mom became very aggressive/agitated that it became imposible to help her with baths neither my sister, I and nurses aides who was requested by mom’s doctor was able to help. This desease was new to us, so we didn’t know we could reach out to Hospice. We even changed doctors because they were not helping with medication to see if that would help calm her down. My parent’s health insurance rep. was the one who got us in touch with hospice. Once hospice took over she was not aggressive or agitated due to heavy medication. She was already in the last stage, so she had lost a lot of weight. Hospice staff was awesome. They were all so kind and attentive to my mom’s needs. After two months of Hospice coming in my mom passed away on October of this year. She died peacefully with no complications. She just stopped eating or drinking for 10 days which this the last thing they stop doing because they have forgotten how to swallow. I would recommend Hospice to any one who wants their love one to be taken care in their home. Mom never left her house. My dad was great taking care of her when my sister and I couldn’t be there with them. He wanted her to be in their home and with hospice we were able to grant his wish and our. Nursing home was never an option.