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Finding Treatments for Fibromyalgia and ME/CFS
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Learn more about Health Rising here.
Chronic illnesses like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia remain misunderstood and misdiagnosed, leaving many patients without proper care and support.
In this week’s episode, Haylie Pomroy is joined by Dr. Nancy Klimas, Director of the Institute for Neuro-Immune Medicine at NSU, and Cort Johnson, founder of Health Rising. They explore the challenges and progress in understanding and managing ME/CFS and fibromyalgia.
With decades of research and personal experience, Dr. Klimas and Cort Johnson share their insights and advice on these complex conditions.
Dr. Klimas and Cort Johnson share their valuable experiences and advice, pushing for better, more understanding ways to manage chronic illnesses that bring hope and empowerment to both patients and healthcare providers.
Key points:
00:00 Introduction
02:28 Recognizing ME/CFS: Early days.
03:41 Origins of ME/CFS.
07:32 Historical overview of ME/CFS research.
08:34 The challenges of early ME/CFS research.
12:16 Importance of advocacy in ME/CFS.
16:45 How to get a diagnosis.
20:17 Self-advocacy in managing chronic conditions.
25:06 The complexity of chronic illness treatment.
27:26 The impact of COVID on chronic illness.
34:50 Long COVID vs. ME/CFS: Funding and research differences.
37:11 Advocacy efforts and community engagement.
41:35 ME/CFS: Misunderstanding and misdiagnosis.
46:58 Integrating ME/CFS into medical education.
Learn more about the link between ME/CFS and long COVID in this episode with Prof. Anthony Komaroff.
Donate to ME/CFS Research:
If you are interested in joining a Gulf War Illness (GWI) trial, please complete the Recruitment Registry Form.
Learn more about INIM’s Research Studies:
Sign up for the COVID-UPP Study:
Dr. Nancy Klimas, M.D., is the Director of the Institute for Neuro-Immune Medicine where she directs a group of remarkable interdisciplinary scientists and clinicians. They collaborate to discover innovative strategies for treating and preventing chronic illnesses, while also focusing on training the next generation of clinicians and scientists. With 40 years of professional experience, Dr. Nancy Klimas is internationally recognized for her work in multi-symptom disorders, including ME/CFS, GWI, fibromyalgia, and Long COVID.
Cort Johnson is the founder of Health Rising, a leading website covering chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) research and treatment. Despite battling ME/CFS/FM since the 1980s, Cort earned degrees in Philosophy and Environmental Studies. Dissatisfied with online ME/CFS resources, he launched Phoenix Rising in 2004, and later founding Health Rising in 2012 to expand to FM. Cort has authored over a thousand blogs, earning recognition from patients, supporters, doctors, and researchers. He's been honored by Prohealth and IACFS/ME. Cort currently travels the western U.S. with his dogs while advocating for ME/CFS and FM awareness.
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Enjoy our show? Please leave us a 5-star review on the following platforms so we can bring hope and help to others.
Sign up today for our newsletter.
This podcast is brought to you by the Institute for Neuro-Immune Medicine. Learn more about us here.
#MECFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicFatigue #ChronicIllness #Fibromyalgia #ChronicIllnessTreatment #HealthRising #HealthPodcast #ClinicalResearch #MedicalResearch #LongCOVID
Chronic illnesses like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia remain misunderstood and misdiagnosed, leaving many patients without proper care and support.
In this week’s episode, Haylie Pomroy is joined by Dr. Nancy Klimas, Director of the Institute for Neuro-Immune Medicine at NSU, and Cort Johnson, founder of Health Rising. They explore the challenges and progress in understanding and managing ME/CFS and fibromyalgia.
With decades of research and personal experience, Dr. Klimas and Cort Johnson share their insights and advice on these complex conditions.
Dr. Klimas and Cort Johnson share their valuable experiences and advice, pushing for better, more understanding ways to manage chronic illnesses that bring hope and empowerment to both patients and healthcare providers.
Key points:
00:00 Introduction
02:28 Recognizing ME/CFS: Early days.
03:41 Origins of ME/CFS.
07:32 Historical overview of ME/CFS research.
08:34 The challenges of early ME/CFS research.
12:16 Importance of advocacy in ME/CFS.
16:45 How to get a diagnosis.
20:17 Self-advocacy in managing chronic conditions.
25:06 The complexity of chronic illness treatment.
27:26 The impact of COVID on chronic illness.
34:50 Long COVID vs. ME/CFS: Funding and research differences.
37:11 Advocacy efforts and community engagement.
41:35 ME/CFS: Misunderstanding and misdiagnosis.
46:58 Integrating ME/CFS into medical education.
Learn more about the link between ME/CFS and long COVID in this episode with Prof. Anthony Komaroff.
Donate to ME/CFS Research:
If you are interested in joining a Gulf War Illness (GWI) trial, please complete the Recruitment Registry Form.
Learn more about INIM’s Research Studies:
Sign up for the COVID-UPP Study:
Dr. Nancy Klimas, M.D., is the Director of the Institute for Neuro-Immune Medicine where she directs a group of remarkable interdisciplinary scientists and clinicians. They collaborate to discover innovative strategies for treating and preventing chronic illnesses, while also focusing on training the next generation of clinicians and scientists. With 40 years of professional experience, Dr. Nancy Klimas is internationally recognized for her work in multi-symptom disorders, including ME/CFS, GWI, fibromyalgia, and Long COVID.
Cort Johnson is the founder of Health Rising, a leading website covering chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) research and treatment. Despite battling ME/CFS/FM since the 1980s, Cort earned degrees in Philosophy and Environmental Studies. Dissatisfied with online ME/CFS resources, he launched Phoenix Rising in 2004, and later founding Health Rising in 2012 to expand to FM. Cort has authored over a thousand blogs, earning recognition from patients, supporters, doctors, and researchers. He's been honored by Prohealth and IACFS/ME. Cort currently travels the western U.S. with his dogs while advocating for ME/CFS and FM awareness.
—---------------------------------------------------------------------------------------------
Enjoy our show? Please leave us a 5-star review on the following platforms so we can bring hope and help to others.
Sign up today for our newsletter.
This podcast is brought to you by the Institute for Neuro-Immune Medicine. Learn more about us here.
#MECFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicFatigue #ChronicIllness #Fibromyalgia #ChronicIllnessTreatment #HealthRising #HealthPodcast #ClinicalResearch #MedicalResearch #LongCOVID
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