How Long Did Remission Take | GPA Vasculitis Wegeners

[angelasims]

I’m so glad he is doing good, and I love the long hair, looks really good on you. 🙏🙏

[Sunny]

God bless you and your beautiful family Angela ❤ You’re an amazing woman and the best of Mom’s! I’m so happy to hear that your son continues to heal from this devastating disease ❤

[allisonverboort]

I have the same auto-immune disease and was diagnosed in 2010. It puts you through the wringer, that's for sure. I'm in my third year of having Rituximab. Dr's are looking at extending the time between doses 🤞 Unbelievably, my fiancè is 4 months post op double lung transplant and doing well. I hope your son continues to breathe easy and get stronger ❤❤ All the best, from Australia 🇦🇺

[xdkracker]

My gf has the same disease she was diagnosed last April and is still fighting. Glad to hear your son is doing good.

[ILoveDakaya]

Totally unrelated to the video but I must say how good your looking, while navigating through all you have ❤️

[hennam]

I have been told i may have GPA vasculitis. They haven't put me on any treatment since i started having symptoms in October 2022, just ongoing 'testing'. The mention of possible GPA was said back in December last year. I recently had my blood tested; 9 out of the 10 things tested came back abnormal, including liver and kidney function. I've been told to discuss this further with my doctor at my next appointment, but i dont even have an appointment booked. Its so frustrating because im afraid that they're wasting time, and if i have a serious condition, treatment might be given when its too late 😢

[CandaceAprilDunson]

I had it for myasthenia gravis and it was torture and didn't help. Solaris was my miracle but I had to quit because of the damage to my veins after years of ivig, plasmapheresis, and other failed treatments. I'm on hytrulo (sub-q vyvgart) now and still hoping for a miracle. Im praying for his miracle!!❤

[sugar.spun.sister]

I can't do RTX. I've been on injection methotrexate for 20 years. It's once a week of stabbing myself with toxic liquid. LOL but I'm still here.