Living with Interstitial Lung Disease | Joyce Lee, MD, Pulmonary disease | UCHealth

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Some forms of interstitial lung disease (ILD) don’t require treatment, but for many patients, living well with ILD starts with a personalized plan that can include oxygen therapy and a pulmonary rehabilitation program.

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She has good news but the mean (most) group of patients live 3 to 5 years. I have taken the news very well, I am not afraid to die but I'm afraid of what I have to go through first. I just got home oxygen, thousands of people have it and get along well in life. I feel like a dog chained to a tree, off to a bad start.

lannalane
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One of a person passed away yesterday who i think probably have ILD because he recently has been diagnosed with Dermatomyositis. It took him a couple of days to finally start feeling shortness of breath
Dieherrea and weak immune system. Possibility of idiopathic pneumonia couldn't be ruled out. But here doctors have gone clueless and conducted various test but they proved of no avail. The cost of hospitalization and medicine for 1 week was so huge.

thakurboys
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I just got diagnosed with ILD along with an Autoimmune disease that is yet to be fully diagnosed. I am also ober 100lbs ober weight and would habs to lose some lbs inorder to be placed on the list for lung transplant. Can one go through bariatric surgery?. Losing weight has been a nightmare, since i was placed on Predinisone. I had lost 74lbs before this and my insurance does not cover an weightloss medication that could help aid my weightloss?.

pinkglitz
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My dad lived for 5 years and in the end he got acute exacerbation of ILD, he was not on home oxygen

harebadam