Diagnosed with interstitial lung disease (ILD) - now what??

What can you do if you receive a diagnosis of an interstitial lung disease (ILD)? How can you deal with this chronic lung disease?
In this video I cover what the diagnosis can mean for you, information your doctor and healthcare team may give you, how to better understand your diagnosis and treatment options. I talk about non-medication options: oxygen therapy, exercise programs (pulmonary rehabilitation), reading about your diagnosis, support groups, finding health information online, psychological support and other relevant issues.
Interstitial lung diseases can include diagnoses such as idiopathic pulmonary fibrosis (IPF), non-specific interstitial pneumonia (NSIP), sarcoidosis and many others. Not all of these conditions behave in the same way so it is important to find the right information in your case. Whenever you do not understand your diagnosis, ask your healthcare team to clarify this so that you can make better health choices.

#toplunghealth #interstitiallungdisease #ild

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Disclaimers:
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For all viewers/listeners:
The information presented here or in other videos and posts on this channel is not medical advice. These materials reflect general medical knowledge which may not apply to your individual case. If you have health concerns, please see your own doctor or other healthcare provider without delay.

For medical professionals:
You must use your professional judgement when treating your patients. The information presented in this and other videos/posts on this channel is for general medical education only. It may not apply to all patients or clinical scenarios.
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[bethmaccrindle]

Wow.This is the first comprehensive video I’ve seen about ILD specifically for patients and in terms easily understood!! This should be required for everyone with ILD- if that was even possible. I’ve personally been searching for a year.
I have NSIP and was hit hard and fast. Thank you for clarifying what my doctors (whom I really like) have not been able to tell me so succinctly.

[shirellekopman]

Thank you doctor for making these videos. I am a 2021 severe covid survivor, I was sedated & ventilated for a month then had a tracheostomy for some time there after. I spent 3 months in ICU, 2 weeks in a general ward, I was given an honorary send off by the medical staff, I was told that I was the only survivor out of 10 who did not make it. I then went for 3 wks to a rehabilitation hospital. In total I spent 4 months away from home. I now have lung fibrosis and iron deficiency anaemia. I do have underlying diseases such as Scleroderma, Sjogrens Syndrome, High Blood Pressure. I'm from South Africa

[rickrickman]

Thank You! I will help you to spread the word. This should have a million views.

[sujeethbosco]

Thank you Doctor, I’m having ILD from last 3 years. Still under medication. You explained the purpose of living very well.

[sundwnldy]

Thank you. You light my way to a better life. I got ILD because of Covid and it's been really difficult because I'm on 24hour oxygen... but I'm Alive and doing what I can for others and myself. Again thank you for sharing the knowledge. 20:28

[lesleyclarke-fuzv]

Thankyou so much for your kind, sensible advice. I have copd and have recently taken up swimming 3 times a week. I leave my oxygen exchanger by the steps and have a breather every 2nd length. It really helps you to take deeper breaths. You are very encouraging and supportive, it is very much appreciated.

[viktoyagordon]

I'm so thankful I found your video, I was diagnosed almost 12month ago, the information you have give to me makes things so much clearer. Whenever I see my specialist I find it difficult to understand what he is telling me and I can't seem to absorb what he is telling me. Thanks again❤

[kathystuhrenberg]

Thank you Doctor . What you said about having a lot of different issues and feeling that you’re confused is so true! I’ve been at a loss for probably 10 years. I have Lupus, Sjogren’s was just diagnosed with ILD from a CAT scan, I have an aneurysm in my spleen, I’m dealing with a kidney stone right now. My weight is great, I’ve never smoked, a good attitude, but I’m totally exhausted all the time, and I’ve been having breathing problems that I thought was just due to my exhaustion from lupus. I think I’ve finally figured it out. They are all connected. Just no one helped me to understand that except for watching these couple videos of yours, so I get it now. Thank you so very much!

[mariebailey]

From Jamaica 🇯🇲 I have been listening to all your videos thanks all lot made my life with ILD much easier

[DavidMardis-lorn]

I am so glad I found your videos. I have been struggling mentally over my ILD since diagnosed in 2021. I was not getting much information from my pulmonologist and what I read on the Internet scared me to death. After watching your videos I am feeling much more empowered in living the life I have left with joy and hope. Please continue to provide these very important and helpful videos.

[patriciayoung]

This is an awesome, very informative video. I'm newly diagnosed and confused and anxious about it. Dr. Stanel's advice is well received. Thank you.

[whendis.roberts]

Thank you for your Videos in Pulmonary Fibrosis. My Father has Severe Progressive Pulmonary Fibrosis. I appreciate all your knowledge and thank you for sharing it with everyone.

[markbowdin]

Thank you Dr Stefan for taking the time to make these videos explaining the different lung conditions.
I was hospitalised 16 months ago after having Covid and then pneumonia.
I was initially told I had Pulmonary Fibrosis and my world was turned upside down.
I the months after that diagnosis I have been told it could be Sarcoidosis and then more recently that it could be Hypersensitivity Pneumonitis.
I had been on a high dose of prednisolone for months, the side effects have affected just as much as the lung problems making my weight increase significantly, I've become far more irritable, restless

I had never heard of any of these conditions prior to diagnosis and each time I looked up the symptoms and prognosis I was more confused.
Your videos are helping me understand the different conditions in words I can understand which is far more than my hospital team have done so far.

Once again thank you

[lindasisulak]

Thank you, Dr. Stefan, for this video. It's really helpful; I'm being diagnosed with an IDL, possibly NSIP, according to the HRCT scan radiologist.

[daisies]

You are such a caring person/doctor, thank you!

[wt]

Thank you Dr. Stanel for the great video !

[francasimonetta]

Thank you for your video you are a compassionate Dr and that’s very hard to find

[marshallborder]

Wife just got this in Arkansas, all new for us scary ...Think you are doing a good job explaining it. A little more at ease watching your film.

[crismalapitan]

Thank you for giving a positive outlook

[genevievebrightbill]

Thank you Dr. this helped me understand my ILD much better. I sincerely appreciate you