Introduction to life with interstitial lung disease :)

This video introduces you to my life with interstitial lung disease, more specifically obliterative bronchiolitis.

Instagram: mkingston47

Twitter: @mkingston47

Snapchat: mkingston90

[cbxyz]

I got diagnosed in October of last year. Right there with you man! Just know that you are not alone!

[Jerseygirl]

Wow you served your country and got a lung disease. :( you deal with it so positively no pity party. Thank you so much for your service.

[christaerrigo]

What you're doing to bring attention to ILD is inspiring! Keep up the fight!

[courtneyalia]

My mom passed away 3yrs ago from this. She didn't stop smoking. I'm sure that excellerated her death. Please take care and God Bless!

[ecto]

My sister had ILD and suffered for several years with it. She never smoked, nor was she exposed to anything toxic that we are aware of. It just appeared one day, and within the span of 7-8 years, it consumed her.

She was on the National donor registry for a lung but didn’t make it.

I felt that her doctors waited far too long to get her on the donor list, knowing she was not getting better.

She died 4 months after finally being placed on the donor registry. She was incredibly weak, was unable to walk, and had no energy.

The ILD didn’t cause her death, directly. She died from a heart attack, due to her heart being overtaxed, because of the lack of oxygen, which was BECAUSE of the ILD.

She passed in 2000, at 26. ❤

[dennypinkham]

I've been watching you for several weeks.  Found out I have an ILD around the first of the year.  I just wanted you to know I'm
aware of your problems with breathing. Any other problems seem small when you can't breathe.  Life becomes a wind sprint.
Take care.

[Ave]

Megañ! You're such añ iñspiratioñ!! Your wit ñever ceases to amaze me!! Xoxo

[Jamiethomaspr]

Megan. Just found you on YouTube. I was diagnosed with Obliterative Bronchiolitis in April 2016 and put on the daily cocktail of 60 mg. of prednisone, azithromycin, montelukast, gabapentin, 24/7 oxygen plus a whole slew of drugs to deal with my Rheumatoid Arthritis, Fibromyalgia and multiple other immune system issues. Docs suspect my RA (or the Rituxcin I was taking for the RA) as the culprit that triggered my OB. This disease is so rare that I’ve never found a single research study being done on this disease, except in situations where it was triggered by a lung transplant. At this point, I have had to retire on disability and am basically homebound. I look forward to watching your videos. In flipping through the titles, I saw that you go to some big hospitals for treatments or tests. I’m definitely curious about what you learned.

[melliechavez]

I just was diagnosed in March 2018. I wondered how a person can be diagnosed with this disease if I have no symptoms yet! It was very hard to believe! I have not seen a doctor yet.... Of course I just made an appointment to see a Pulmonology Dr. And with my luck, my appointment is for January 14, 2019. I know I have to see a doctor sooner, because I am getting short of breath. Not everyday but every so often. I am not on any medications yet. I am afraid of what's to come. And I can't do a thing about!
You are very brave. I see you still go to work and visit with friends. I guess, we have to continue with our daily, normal life. I stay away from everybody. First of all, because I have been so depressed for years and I have some other things medically wrong and I don't ever want anyone to feel sorry for me.
I was so happy to know, there are others, don't get me wrong. I'm not happy that there are people with this disease, but to know I am not alone, and that this disease is real.
I just don't know what to expect.
Thanks for sharing it with me. I hope you feel from Arizona

[ceceliac]

I have recently been diagnosed with this lung disease. Trying to learn more about and listen to other people living with the illness.

[tyedyechicks]

I was just diagnosed with ILD about 3 weeks ago. Thank you

[joanpashinsky-greve]

I have this disease as well your posts are awesome let’s all hang in there your an inspiration to all 🙏

[ILDMyStory]

, I am from South Africa, 53 years old, with bronchiolitis obliterans. 24/7 oxygen. Thank you for spreading awareness. You are so strong and brave

[SRiendeau]

I was diagnosed with Idiopathic Pulmonary Fibrosis in 2018 and I am getting oxygen now but what I think is the worst is the tiredness and lack of energy. Thank you for your video, I will watch a few of them.

[sseldnep]

I just got diagnosed today...thank you

[marshahines]

I was diagnosed with ILD by an ER Dr in October of 2017. I thought when I went that there was something going on with my heart. Of course one feeds off the other but for awhile I thought that if I could get my heart fixed, my breathing would improve. I don’t have a cough, I just don’t have the breath to talk. (Thank God for texting & messages. 💔 I’m a talker) I haven’t found a Dr yet. I’ve been hoping that he was wrong & I just get better. Everything I’ve read tells me that most people only live 2 to 3 year after diagnosis. I don’t know what to do.

[chronicstitcher]

Bless you. My ILD is caused by Rheumatoid Disease. Its hell. But we push through. After a bacterial infection caused by my lung catheter non functioning, I had to retire early. I went from $50, 000 a year, to $12, 000 on disability. This disease has robbed me of so much. But we fight on.

[bhaktishah]

If u do breathing exercises every day ull definitely get good results....as im already giving training for the same case...and he is improving...

[SylviaCookie]

God Bless you I was just diagnosed with this Disease July 24, 2018

[duanesmall]

Just found you this evening. I have pulmonary fibrosis and will need double transplant. This disease really sucks.