NeuroLearn: REM Sleep Behavior Disorder: There Will Be Plaque - American Academy of Neurology

This presentation was a part of the HeadTalks stage at the 2016 AAN Annual Meeting in Vancouver, BA presented by Alon Y. Avidan MD, MPH, FAAN on April 17, 2016.

Connect with the AAN

[onlinestorytime]

My husband is 42 and I am pretty sure he has this but his episodes occur between 10pm & 2am. I am pretty much traumatized by the violence. His dreams are usually attacks by animals and insects.

[Hawkgt]

I'm 51, and I've had the symptoms of RBD, fighting in my sleep, kicking, punchng, etc. First episodes I recall were 30 years ago, I typically have 1/week on average in more recent years.

[jonanthony]

I have it too. Happens periodically. I gave up sleeping in my Bed. Fell off to many times. Now i sleep on the flooor on a air mattress surrounded by pillows. Whatever it takes not to hurt myself

[SiBorgA]

I have REM sleep behaviour disorder since taking an SSRI.
I'm terrified of the emergence of neuro degeneration later in life. I don't want to be a burden.

[BodyRocker]

I have had it on some nights. Actually caused me to try and get out of bed while I was having a nightmare and fell on my floor.

[phyllisbalkwill]

I have been diagnosed with REM Sleep Behavior Disorder. I am a 60 year old female.

[PerfectlyImperfect]

I talk in my sleep, I punch the air, I kick.. and yesterday I woke up with a sore fist and feel like I got in a fight. Have scratches on my hand and I didn’t go to bed like this. I have no recollection of hitting anything.

[MsNooneinparticular]

This is so horrifying. It looks a lot like the behaviors of patients with FFI (Fatal Familial Insomnia), a prion disease of the thalamus. Theirs aren't so violent but involve complex hand movements that resemble combing the hair with one hand and putting it in place with the other. There's a patient named only "Silvano" I'm referring to in particular. You can find the video on Youtube. IIRC Robin Williams was also experiencing this condition at or before the time of his death :(

[ameliabrandon]

I don't have a regular sleep schedule so mine happens whenever I sleep. But I remember ALL of my dreams. I was dreaming that this man was trying to slice my stomach open and it physically hurt so I screamed out and was flailing my arms and my roommate kept coming in and waking me up because it kept happening where she'd hear me screaming from upstairs. She told me I was screaming "no no no no no". My boyfriend tell me all the time that I kick and hit him and makes me sleep on the couch. Or I stay awake until he gets up for work. What can I do? I e also never been diagnosed but I'm always being woken up because I'm screaming or fighting.

[jaynerobbins]

I couldn’t hear video well. I thought my husband developed restless leg syndrome but it’s become dangerous. He’s punching me in his sleep. When we mentioned this to a dr we were told they’d have to report it. We are terrified to get help now and his condition has worsened. Last night the episode occurred really early at 9pm but it was the worst occurrence. He’s otherwise a very gentle man. It bothers him greatly that he’s hitting me. We don’t know where to turn now. He has family history of Parkinson’s and is exhibiting slight forgetfulness. He thrashes legs and now arms in his sleep. When I wake him, he tells me he was being attacked in his dream. I’m considering separate beds but I’m concerned if I’m not there he could hurt himself

[eatyourcereal]

I kick a lot in my sleep and in the morning I wake up with my sheets off my bed I also knock stuff off my night stand all the time I’m only 12

[spiders]

Perhaps RBD is treated by chlonozepam successfully. I rather think the benzodiazepams inhibit normal REM sleep and will over time lead to reduced or absence of REM sleep more problems including AD.

[bay]

See ICSD 3 :
The BRD is often ossiciated with plmd
Or periodic limb disorder

[anthonyjamesjr.]

I had sleep paralysis but I got so use to them they didn’t faze me anymore but then I started noticing that I be cussing at my dreams and now even biting the air around me and trying to swing idk wtf is wrong with me

[revdrjamesshowersjr]

Wouldn't the full Body scan during STN DBS surgery, also assist in the diagnosis of RBD??

[AP-hlrg]

Would you happen to know if there are any research groups for anyone experiencing REM sleep disorder. My father was diagnosed last year and he will begin to take CBD oil since studies have shown that it reduces the REM sleep stage (which he is typically kicking, screaming, talking in his sleep). I would love to link my father to a group that is researching this. He is Spanish speaking from Mexico and currently residing in the Central Valley in California. If you have any information I would love to give it to my father.

[lawrencecampisi]

I had an episode last week I was dreaming of a man with a gun and I jumped to get the gun from him only to jump out of bed hit my head on the dresser split my head open and. Hurt my shoulder. Serious stuff. have added a side rail to bed and my clonazepam dosage has been increased.

[lacrymal]

Smoking marijuana before bed may help.

[PhillDrakeEntertainment]

Those are demons who're attacking people over night not a neurological problems lol