POTS

[angelinacampos]

Finally. Explained how debilitating it is. It's real. It's not in our heads. It's not anxiety. This guy is amazing how he explained it, the vicious cycle of because wheelchair bound, and everything. So good! Going to share this video.

[hotquese]

Finally someone that understands what we go through. We are not crazy, this is not made up. Omg!!! I can’t stop my emotions right now you just made me feel great

[TheCardbry]

I've been working out my legs and flutes and this has helped a lot. Putting my legs up at night helps too. Drinking water first thing in the morning helps, I suggest everyone here write down in a journal what you are doing and how you are feeling everyday and/or several times a day. You can show this to you doctor, they will appreciate it, I was prescribed beta blockers but I did not take them. Salt makes me feel good and so does potassium in foods.

[jessicamacmullin]

Thank you for finally legitimising my horror story of the past few years. I am finally getting amazing treatment here in Australia and am even getting regular fluids through an implanted port, but my family still think it's all in my head. I am going to send them this video right now.

[flissyann]

This is by far the best video and advice I've had for POTs! I'll be letting my friends know!

[farshidfarjami]

I want to be hopeful, but I just miss my old life... I miss running, I miss waking up energetically without being afraid to stand up. I miss going up a single flight of stairs without panting... I want my life back. I didn’t do anything wrong...

[peggymicsky]

Identifying and understanding POTS is the beginning of treating and hopefully curing it. Glad it was you that tackled it, Sanjay. Sounds to me like you are knowledgeable and well informed about POTS. Hundreds of people will benefit just from your taking it on. The more you learn, the closer you are to a cure. Thank you for being that kind of Doctor!

[brittanyhurst]

I've never felt more understood in my life! Thank you so much!

[brittanyleach]

Overall this is a great video! I have one note. As someone with hyperadrenergic POTS I have been being successfully treated with what is considered a very high dose of beta blocker for POTSies. I was on a low dose for over a year and that led to me getting extremely deconditioned before I got to Mayo Clinic and got my hPOTS dx. I was already having problems, but then went without proper treatment because docs thought low dose was the only thing years ago. Thankfully getting on a higher dose, similar to what is used for anxiety, I take 180mg of propranolol ER daily.
The higher dosing along with the extended release changed my life!

Thanks for making these videos!

[xojacquie]

Thank you for giving me hope with managing my POTs symptoms! You are a very caring/smart doctor!

[ChristinaLedl]

You are, hands down, my favorite doctor on the internet. Every doctor should be this wonderful and caring.

[rachaelyoung]

This condition is like your grieving for a life you have lost. I am very grateful that I have a fatigue clinic I attend and another patient recommended following. not many people understand.. especially those who you haven't seen for a while or those who you once knew from a fitness class. I'm going to send this to friends & family as I cant quite get the words out like this specialist with a foggy brain that leads to confusion thanks again

[nualawilker]

Dr Gupta, you are the kindest and most compassionate doctor I have ever seen. There is a genuine concern and care you have for people. May God bless you and reward you for your beautiful heart ♥️

[solenej]

Fantastic Dr, thankyou, it's nice to hear there are medical professionals out there that are willing to support you knowing you aren't making symptoms up lol, next step try to get referred to you!

[lisalindsay]

Just wanted to thank you for this video! I am only 33 and have two young children. Last year my husband had to give up work when I became bedridden. I have now been bedridden for 11 months (I also have severe ME and Fibromyalgia) however the symptoms that I’m find the hardest to live with are the POTS symptoms! I’ve been waiting 10 months to see a cardiologist and I’m terrified when I do finally see him he won’t know anything about POTS. My heart rate has gone up to 209bpm in the past and A&E hasn’t a clue what to do. My normal daily hr is 40-170bpm, but I only feel unwell with the high heart rate and have come very close to passing out in the past (edges of eye sight going black and ringing in my ears). I am absolutely praying the doctor I see is as knowledgeable and understanding as you are because I’m desperate for my life back with my children. I’d also like to add that your the first person to explain how de-conditioning affects POTS! Until now I didn’t understand, all I knew is that the doctors just keep telling to exercise but I can’t (due to my ME as well as Pots) but after hearing you explain it, I’m thinking I’m going to try do some form of leg lifts while lying in bed to start to re-build the very obvious muscle wastage I have going on! I now at least understand why it’s getting progressively worse! Thank you!

[tonym]

Wonderful presentation doctor, keep up the great work!

[andreafabernp]

Great informative video and thankyou Dr Gupta. I am 54 and was diagnosed by a cardiologist in Bedford last September and then found the Autonomic clinic in London. I was a distance runner and had started training for another marathon this year and now find myself in this situation of not being able to stand passed out more times than i care to think about now and using a wheelchair with chronic pain headaches nausea and the worst symptom is the chronic fatigue . The neurologist in London believes that I also have EDS as an underlying cause having the Autonomic function tests late May. But my symptoms have been coming on for years. My only wish is that more doctors had the knowledge of this. I was initially lucky when a young locum doctor at my surgery had an idea about my dizziness and referred me to a cardiologist.

[jilllindfield]

I am so grateful to you for making these videos Sanjay. I’m 56, have had a lifetime of this, am now completely debilitated by the Covid vaccines causing the most severe episode I have ever had…..and you my dear man have helped me hold on…..in all honesty, if I wasn’t so fearful & didn’t have a supportive husband, I’d have committed suicide a few times in life because of this illness….now at 56 Im off to see a Cardiologist instead of a “Psychiatrist” to get this treated with medicines, thankyou 🙏🏼🙏🏼

[anaalvarado]

Thank you Dr.
My daughter 13 years old started symptoms overnight after a viral infection. The struggle in Canada we are facing is that since POTs is not considered a life threatening condition is has been really had to get a cardiologist to see her . The waiting period is over 6 months . Thank you for your candid approach and your guidance to a condition seems no doctors here in Canada know nothing about. I will not give up on my daughter until we find a cardiologist that can see her for her condition ❤ keep posting please 🙏

[dianebrown]

Thank you Dr! Watching from Canada. I have ME/CFS and a new symptom began a few months ago which made me nervous because it’s so debilitating....just by standing up for a period of time causes all the symptoms you have explained. Thank you for this because I feel so much better learning what I have from you. I am very grateful to you for your time to assist those of us who are always looking for doctors like you.