What is POTS? 🍳🥴🧠(postural orthostatic tachycardia syndrome) #shorts

POTS is considered to be under the dysautonomia disorders umbrella which are disorders of the autonomic nervous system. It is basically an inability of the body to compensate for changes in posture. When we stand up because of gravity blood gets pulled to our lower extremities and in a healthy person, it compensates in the cardiovascular system to send blood back to the brain. When you have POTS this system is defective and your blood does not return properly to the brain. This causes many symptoms such as dizziness, blurred vision, syncope, nausea, racing and irregular heart rate (as the heart tries to compensate for this lack of oxygenation by pumping faster), chest pain, shortness of breath, headaches, fatigue, brain fog, blurred vision and the list goes on.
Now imagine this happening every time you stand up? Life would become very difficult. Imagine how hard it would be to get groceries, have a shower, cook, clean, dry your hair, stand up in lines...
And all of that is completely invisible to an outsider, except when we black out and fall on the floor.

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m u s i c u s e d i n t h i s v i d e o
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a b o u t m e

I’m Daniela I have been diagnosed with several chronic illnesses. I look normal, I do things, have a job and go on vacations, but inside I'm sick. I live with several chronic illnesses and they affect my daily life. I am in constant pain and struggle with brain fog. Although I'm constantly looking for new doctors, new treatments and solutions I have also accepted my illnesses and do not let them define me. In this channel, I share a little bit of everything. Information about my conditions, my travels, my dreams, my journey, my life. This channel is about life through chronic illness lenses. Come and join me and see what I'm up to lately.

Check out those other videos about my chronic illness story:
👉🏻 MY FIBROMYALGIA STORY

👉🏻 IF YOU COULD SEE. MY ILLNESS

[Alecz]

thanks for sharing. A lot of doctors need to see this. so often they fail to diagnose patients with it

[omgpandaz]

My heart rate spikes everytime I get up but it also races like crazy out of nowhere when im sitting down. Which makes me and my cardiologists believe I have Irresponsable Sinus Tachycardia instead of POTS. It's so scary.

[Porterhabazz]

Thank God more doctors are looking into this. All my life I’ve been treated like a drug seeker, attention seeker, crazy, etc. all because they couldn’t FIND anything wrong within me. But CLEARLY my heart rate is doing SOMETHING. It was finally confirmed last week.

[tianasixkiller]

My cardiologist says I don’t have POTS. He also says there is nothing structurally wrong with my heart and that I don’t have heart disease. Yet I have had the POTS symptoms for nearly 16 years. He ordered a 24 hour holter monitor and another cardio guy said it wasn’t long enough to help them see what is happening. I used to faint until I learned when I start feeling light headed, I need to lay down quick no matter where. My resting HR is also in the 80’s and 90’s as soon as I stand up, my heart rate ramps up rapidly and in a matter of a few minutes will go up to 168. My o2 sats bomb sometimes in the 80’s. But they do go down quickly as soon as symptoms start. Usually by this time I will throw up and pass out depending on how fast it goes up. I start shaking and my brain feels all confused. Doc tried to blame it on my autoimmune disorders or maybe my thyroid. My rheumy says it isn’t any of that. So we’ll see at the end of this month what the holter reveals. I think it is POTS. If it was the autoimmune disorders I would show damage to heart tissue and he clearly said there was nothing wrong with my heart. Make it make sense…

[TyDevane]

I went to my cardiologist 13 years ago complaining of all the symptoms. He kept saying "SVT, anxiety, take the beta blocker you'll be alright". Did a deep dive and found out about POTS/dysautonomia, we to a new cardio and said this is what I have - she recommended me to a clinic for it and it was confirmed.

I'm glad there's more awareness around it now. If you think they gaslight you now, you should have seen how side eyed they looked at you back then when 9/10 docs hadn't even heard of it.

[iSheree]

I told my old family doctor “I think I have POTS” and he said “POTS? What is that?”. He was also the same doctor that ignored my concerns that I had cancer, telling me that I was too young and there was “no way you have cancer”. My new doctor found it but it has already spread. She also diagnosed me with POTS.

[asmrplushpaws]

Mine goes up to 120-130 but on bad days were looking at 175 😅

I have panic disorder along with POTS. I panic when i start loosing conciousness because im scared of getting hurt, does not help the heart rate side of things 😂

[_Ash_]

I have pots and my average heart rate when standing is 160-190bpm. I finally got some medicine too slow my heart down, thank goodness! But like we need too teach kids about this in school because when I tell people I have it they say, “well it’s common so get over it. There’s worse things”

[kindnessisnotweakness]

have you all noticed it’s so much worse when you’re getting your period? it makes sense but omg I just had covid again and I can’t even sit up and all the rest of my symptoms are gone expect the pots flare is insane

[aly]

This is EXACTLY what happens to me!! My numbers are almost the exact same as yours, too! I'm sorry you are dealing with this, but I've gotta say I'm glad it's not just me.

[thebiglebowski]

Thanks for sharing.. ive got POTS too. Not as severe as you. That is crazy spiking in heart rate. The lack of knowledge in the medical community is shocking. It has taken a year for me to get a proper diagnosis and I was lucky to find an exercise Physiologist who new his stuff. Stay 💪

[mrs.s]

I have been feeling better after taking magnesium, Vitamin d and hydration beverages.

[Jinxs-Journey]

I’m having bad symptoms when I go from lying down to standing and walking 2-3 steps my vision is gone and I have to hold onto something before it improves and I feel my heart racing when stood to do simple tasks after. It’s limiting my life so much but they refuse to do tests and tell me it’s anxiety but other medics who did tests suggested it was pots and to get the doctor to get me tests. I saw a nurse who just rejected my symptoms and said it could be many other things low sugar even though m not diabetic too

[tpfl]

Thank you for sharing! I just got diagnosed but it brought tears to my eyes when I saw this post bc I have been feeling like this for a few years and just thought I got overheated. Sending prayers 🙏🏾 as we all walk through our healing journey

[pinkponybryer]

i love being told that "it's normal to have a heart rate go up (it goes up to 130) when standing up and you don't have it because with POTS your blood pressure drops and here yours doesn't" (i did a tilted table test)

[A_Pink_Fish]

My cousin has POTS and we went wakesurfing recently. She’s really good at monitoring her heart rate (she used an Apple Watch. Highly recommend) and while she was surfing her heart rate reached 210 bpm 😬

[SeekingTruth]

Thank you for this video!
May I ask you and others with POTS how you manage your every day life?

For 4 years I have constant shortness of breath and a high heart rate as sion as I get up. So bad, that I could hardly do any sports and I gained 30kg.

From the beginning of the symptoms, all the many doctors I went to, said it's a psychological issue and I am a hypochondriac, and when I gained weight, they now say, tja, thats all because your obesity.

They say I shall just do sport and diet, that will solve my problem. ..
I can't even stand long enough to brush my teeth or dry my hear because my heart rate goes up so quick.

How do you all cope with that every day? Can you have a normal life? I am so desperate and exhausted.
All the best to you!

[Artbykyda]

This happens to me. And I had to do a stress test. They asked if I wanted to do a chemical one. I laughed and said “no need for that. As soon as I start taking a few steps, my heart rate will be 160”. And it did. And they were wondering why I got dizzy. Echo showed all clear. The techs didn’t understand POTS. Medical staff needs more information and research

[Imtheone]

Your oxygen is good. One thing to be thankful for.

[peterlohnes]

so the heart is desperately trying to get enough blood around. It would have been good to show your blood pressure too because (I imagine) if the heart is beating this high, the volume of blood getting to your organs is not enough (seeing as your O2 sats are plenty high). That means the blood has enough oxygen, your heart is either sending tiny quantities or else isn't beating hard enough to achieve blood pressure levels.