POTS (a remarkable condition) - Talk by Dr Sanjay Gupta

Dr Sanjay Gupta, heart specialist and consultant cardiologist in York Teaching Hospital, is giving a presentation on POTS and answering questions from the audience.
POTS is a syndrome that many people living with ME/CFS and fibromyalgia suffer from.

This talk was hosted by the Sheffield ME and Fibromyalgia Group.

[HodaMcClymont]

I had a little cry hearing this angel of a Dr speak. He understood! He understood! How lucky are those POTS patients who get him as the Dr.

[LexaWinter-vjef]

I love how he admits he went from a doctor with knowledge on how to treat people to a doctor with knowledge on how to care for people, that’s the shift we need to see from many in healthcare professionals.

[liltunafish]

“Patients come first, definition comes after that”. Mad respect Dr. Gupta. I wish more doctors think like you do. We need to be reminded that definition criteria, tests/ investigations all have the potential of false negative and missing the outliers. Thanks for this amazing session

[jom]

Understanding and listening is comfort for patients, so many are misdiagnosed and dismissed. Thank you

[humaalimd]

Wow just wow 🤩 dr. Gupta
I’m a personalized precision medicine doctor who treats such patients
This is the most comprehensive resource I’ve found
I’m so grateful for all your efforts

[asmrbrat]

Omgggg how beautiful he grew so much as a doctor !! 🥺 I love this so much. ❤️ I just got diagnosed after 4 years of educating myself and begged for doctors to listen and I knew it was pots the whole time. Ugh there’s nothing like haven’t your life taken and a doctor loving you like there family to help fight with you.

[bazia]

What a beautiful & kind heart you have!
May you be contagious to Drs everywhere!
Thank you from the bottom of my heart.
21 years heath journey with #Myalgicencephalomyelitis #POTS #MCAS

[gloriaanngomez]

You have such a good heart dr Gupta!!! 😊Apparently many drs don’t want to bother learning about this malady let alone treating it! I have experienced POTS off and on for several years now and have ME/CFS. Now my granddaughter has POTS really bad and was blacking out multiple times a day and no one would believe her and help her until she started having seizures. They all thought it was psychological because she’s a teenager. I was absolutely incredulous that no one except the school nurse was taking this seriously!

[brainwithani]

I love this man's spirit. I wish he was my doctor

[AlbaLynxQueen]

Wow. What a doctor. I wish I met such a doctor just once.

[SparkVisionHub]

Was diagnosed today, great info. Been walking around clueless since 2019

[mollasima]

This was tremendously helpful. I cried during certain parts bc i have been struggling with this for years with doctors dismissing me. It started a few years ago with either COVID or i had a surgery that removed my ovaries and then was put on estrogen/progesterone hormone replacement - i don't know if was covid or the hormones bc they were at the same time. I had all these symptoms to a lesser degree all my life (i thought everyone struggled with them! 🙄). But when those events happened in my life - this condition became literally debilitating. I thought i might be dying. As i listened to this, i cried with relief and validation. Thank you🙏💜

[amybass]

May God bless you. There sure aren't many doctors left like you!

[sueregan]

I am 79 years old, have had ME/CFS for 50+ years, but acquired POTS (including all those other dysfunctions on the list) a couple years ago when my PCP put me on a diuretic for B/P. He then wanted me on a reconditioning exercise program. I refused, and had a blood test done through another doctor: my electrolytes were severely depleted. Discontinuing the B/P meds and concentrating on intense restoration of electrolytes and other depleted nutrients has helped reduce the POTS heart rate, eliminate IBS, improve sleep.

[lilaworley]

Is it possible to Love a doctor, you've never met, that is half way across the globe because he understands your problems more than any professional you've ever sat with?

Why yes.... Yes it is.

So you ever visit the USA?
I would travel to meet you to just say thank you.

[autumnrose_noseinabook]

I'm currently seeking a diagnosis but since some friends have brought POTS to my attention I feel like there is finally hope!!! I have had a mountain of symptoms for 11 years, starting when I was 16. I have been to so many doctors and taken so many trips to the ER but always get turned away without answers. I have been diagnosed with anxiety disorder, but I've always felt there was something more to it. I had covid in September and had horrible brain fog and fatigue that never went away. My other symptoms have worsened as well. In November I had a really bad spell of high heart rate (reached 180 at one point) and extreme lightheadedness and dizziness on top of the worse brain fog and fatigue I've ever experienced. I thought I was dying. I think covid brought out my underlying condition which I'm 100% positive is POTS. That possibility connects ALL of the dots for me, especially all of the things I thought were unrelated such as foot pain & extreme photo sensitivity. My PCP thankfully knew about POTS and was very supportive of me wanting to investigate POTS further and gave me a referral to the cardiologist, so now I'm waiting to see seen by them.

[barnbrac]

What an amazing example of patient centred care and a clinician that actually wants to help those suffering. POTS is a common symptom in long term (greater than 3 weeks) benzodiazepine use (tolerance, withdrawal, post acute withdrawal syndrome, benzodiazepine induced neurological dysfunction)

[iwvnvny]

He is the best doctor ever! God bless Dr Gupta!!!

[jojogurl]

That would be me! 2 years of ER visits and constant research! Today I realize this is what I'm experiencing for the past 2 years.

[allisong]

I have been suffering with this my entire life! It’s so refreshing to hear a doctor who actually listens instead of dismissing patients who have difficult medical issues! I was told I had fibromyalgia when I was in my 20’s and have carried that diagnosis around since then. It seemed to fit some things but not all my symptoms. My daughter was just diagnosed with EDS and is being sent to a geneticist. It answers all of our symptoms finally! And Dysautonomia is a comorbidity of EDS! Thank you for this information! Maybe now I can take some of this info to my dr and see where we go from here…..wow