Less Common Symptoms -- National MS Society

[catb]

He said swallowing problems would be more common in long standing cases of MS. I experienced swallowing problems the first year I was diagnosed after the first major attack at age 45. I was given a radiological swallowing test where it was observed. Fortunately, it mostly resolved.

[Nikkiniknikcolem]

when I got sick in 1990 MS hit me hard I was ten, I have seizures also from the MS ..this is basically what I've always known doctors, meds, tests, tests, and more tests and with summer coming the heat is not good at all

[cathycasuccio]

yeah, this Doc definitely needs to brush up or they need to update this video. I have speech problems and headaches. I don't think it's as un common as he says. So frustrating not being able to get the words out right away or forgetting what I was saying half way thru a sentence. And the headaches cause wavy waterfall like effect in my vision. I always know when I'm going to get a headache thanks to that symptom.

[catb]

Some headaches can in fact be directly caused by MS. Occipital neuralgia when the occipital nerve is involved, just like Trigeminal Neuralgia. The occipital nerves go up the back of the head to the top of the head, which is where you get pain. Also, the first branch of the trigeminal nerve goes to the forehead and front region of the scalp. So guess what folks...head in those areas if that branch is affected and that registers as head pain (headache to be sure).

[annettep]

Yikes! He really needs to listen to his patients because these are COMMON symptoms of multiple sclerosis. Scary!

[Donna]

All of these symptoms are the same as those of a MAGNESIUM DEFICIENCY! Please look into this topic everyone. I have experienced ALL of the symptoms mentioned in this video - including brain lesions. I do not have MS but I do have chronic magnesium deficiency which causes the symptoms described in this video to come and go. I can always tell when my magnesium is low because the symptoms begin and/or get worse. When this happens, I simply increase my dose of magnesium (or start taking it again if I have run out) and the symptoms disappear within a couple days.

I have been dealing with this for at least a decade and I seriously thought I was getting MS because of the inability to control my large muscle movements (like walking, picking things up, coordination problems, swallowing issues like choking on food and drink, etc.). Oh and the neurologist who did my MRI which showed my brain lesions explained that the lesions can often be the result of MIGRAINES - of which I had several per month...with major migraine aura. Migraines and/or auras are a red flag symptom of magnesium deficiency. I hope this helps someone! :)

[petro]

Thanx doc this was the Best anyone ever explained it to me. I have MS now for six years and everyday i Just realisme how special God has made us and every little thing in our body.

[amygeiger]

Dear Ms Secret; I have had MS for over 20 years; symptoms like people are different for everyone. It may take several neurologists to find one that suits you, keep at it!

[hsvdfjhGDSFJHSGDFKJH]

I've had MS for 12 years now and also have more and more problems finding the right words. My doctor is gonna send me to a course now to train my memory. We'll see what happens.

[maggiebiello]

♡ haven't been diagnosed yet. but having a lot of the symptoms. tasted metals for awhile. Having pain on the right side of my head. it's unbelievable that this takes so long to diagnose. But they did start me on pain meds.

[ticiablanchard]

Swallowing problems occur when you develop lesions on the spine! I learned that with my MRI and my neurologist!

[batthoselashes]

I'm so sorry for what you are going through. As a former rad tech I totally understand how you feel as far as going so long without a diagnosis. It's like you've been betrayed by your own kind. After what I've experienced I'm disappointed in our health"care" system and I will never go back to work in that field. I've come a long way emotionally as far as not being able to work and being broke. It helped me a lot to let go of the anger I felt for so long. Hugs to you. Be kind to yourself.

[catb]

Headaches are not a rare symptom of MS. They are in fact a “common symptom.”
“Migraines have been associated with lesions in the brainstem, C2 dorsal horn, and periaqueductal gray matter. In addition, several studies have shown migraines to be more common in patients with relapsing-remitting MS.”

“Another study has correlated primary stabbing headaches with the relapse phase of relapsing-remitting MS, implicating stabbing pain as a potential sign of acute demyelination. Sharp and stabbing headaches were highly associated with headache worsening during MS exacerbations.”

“Another hypothesis suggests that MS and headache, particularly migraines, develop as a result of a shared factor, such as a common environmental and/or genetic link that fluctuates with endocrine changes. One observation that supports this hypothesis is that both MS activity and migraine frequency were reduced in pregnancy.”

“The increase of headache severity with MS exacerbations may also explain, in part, why MS patients are more likely to report greater headache severity in the summer than at any other time of the year.
With emerging data identifying headache as a common symptom of MS, it would be interesting to study the effect of heat on headache development in these patients.”
Headache in Multiple Sclerosis, International Journal of MS Care. 2013 Summer
David Tabby, DO, Muhammad Hassan Majeed, MD, [...], and Jessica Wilcox, BS

[desiqueen]

part 6: I have had optic neuritis in rt. eye for past 1 1/2 month, and was complaining to all my dr.s but got ignored. I had my routine eye exam with ophthalmologist when he asked me how long has my vision been poor even with my bifocals? I told him and he said it's because of optic neuritis. He sent me immediately to the outpt. infusion lab for I.V. steroids x 3 days, I went home with a saline lock in my arm. After I.V. done, I was on 5 weeks of weaning dose.

[colleenwarren]

Thank you for having these learning videos online. I do have MS, and these are very informative.

[theresagrimes]

I had a grand mal seizure in my sleep and that is what led to the diagnoses of MS, I spent a year having seizures and I still get slight spells but they are not as bad. I have shaking in my hands, my vision is poor but not bad, I also get a muffled rumbling in my right ear, not all the time. MS is a mystery that needs more research.

[susanstork]

OMG sorry but this "dr" can not really believe these are less common symptoms. He should get in more support groups or read more research. These are not uncommon, they are very common. with luck and patience they will lessen or be treatable with steroids. TAKE ONE DAY AT A TIME AND BE EASY ON YOURSELF!

[desiqueen]

part 4: I don't think cardiac issues are a part of MS- it just makes me sicker. Finally in Faeb. this year I got tested again by a new neurologist- and he dx me with R&R-MS. I complained to all my doctors about choking on liquids, food getting stuck, and severe GERD, no one till this day cares. I also have a difficult time getting thoughts or words out at times. The biggest problem is that I don't sleep. I have had 4 sleep studies and the last one finally got to the problem.

[desiqueen]

part 8:My family think already that I take enough. I was told I could no longer work as a nurse until more stable. So I got MS, no job, no money to pay bills, severe pain from daily headaches, cant breath, and I am suppose to try and find a happy place to be in, in this world? Most of the days I think about what death would feel like. But then I have my grown kids not yet married, and I want grandbabies. So I am holding on as best I can. be kind if commenting I really can't handle any rudeness

[emilesmith]

I was diagnosed with MS on 17 years old but started getting heavy tinnitus in my ears now that I turned 33 years old.
My father that passed away with MS on 59 years old and also complained of really bad tinnitus.