Managing MS Symptoms: Dizziness

Featuring Dr. Stephen Krieger

[beckacheckaenterprises]

I was diagnosed autistic and adhd.. later down the track I started getting what seemed like regression. I could no longer tolerate ALL sensory stimulation without shutdown which made me non verbal.. I also could no longer tolerate words, hearing people talk to me, lost my grip (lost my fine motor skills), couldn’t physically write ✍️ but I also couldn’t text and it make sense .. one day I lost all abilities at once and couldn’t even think for myself or eat almost anything - I was diagnosed with autistic catatonia.. since then I’ve had different symptoms that some sound like MS. I have been having dizziness with my physio and other things I do. I’d sit on the yoga ball and go back forth & side to side several times then be told to sit on a chair to make sure I feel ok.. in 15 seconds I start to feel like I’m falling .. as of yesterday (which a family crisis didn’t help), I am now constantly dizzy where I have to hold things to walk and if not holding things I have to walk very slow and carefully. It’s come with what feels like another onset of worsening catatonia to the point I will lose all abilities again all at once..

But.. With other cross over symptoms, the same psych who brought up autistic catatonia, also mentioned that maybe it’s MS.. but maybe it’s both MS & Autistic Catatonia..
Because I do have symptoms of MS (but not all, but at least 3/4, but no one has all symptoms at once do they? And then everything else adds up with autistic catatonia, which is a slow onset of an autistic regression at any age (very much like the sudden loss of abilities that toddlers get who are then diagnosed autistic.. but some symptoms like this SEVERE dizziness and other cross over symptoms.. make me fear I’m seriously unlucky.. like I also have hypotonia, EDS (common autistic co-occurring conditions 🤦‍♀️.. but I haven’t heard of this dizziness with all my other diagnosed conditions. Especially now and yesterday (which I was hoping was due to stress and lack of sleep).. but I’ve woken up with it still there, still severe and needing to hold onto walls..

I had a balance test though on Wednesday (it’s not been Sat & Sunday so third day later I’m like this.. could the test that purposefully induced some dizziness, have made me worse 🤔 🤷‍♀️ I don’t know but I HATE THIS 😢😢😢 life been so unwell, so much pain, in all my body, for years now. I’m young still.

OH!! Also, I almost died in my sleep. My psych said that u can die from the autistic catatonia becos stuff can shut itself down; including breathing .. can this happen with MS?

I’ve always been strong about it and keep researching and looking for answers but I’m starting to feel helpless and hopeless the last 2 weeks. - ok rant over. If anyone knows wt heck is wrong with me, you’re welcome to say or speculate. I may go to ER if I stay like this and get tests.

I’ll let you know how I go.

[Firecracker]

Thank you! Newly diagnosed at 54. Room spins when I lay down. Who knew?

[hectorbueso]

Finally, a CLEAR explanation. Thank you !!!

[gjop-xmxe]

The ms dizzyness has changed my life it will never be the same I live alone and I get terrified when I get a episode

[mikeshanermusic]

I hope this vertigo goes away because I can't live like this. Even watching this video was very difficult. It's no wonder the suicide rate for MS is so high. I think about it every day but keep trying to fight. I'm getting tired of fighting and I'm not sure I can keep going. Just wish the world would stop spinning!!

[kathycayaba]

Thank you. I have been feeling dizzy lately. I will see my doctor I am 64 years old. Almost 65 soon. Thank you doctor

[beccaturcotte]

It WILL be self limited you say.... its been a major crippling symptom of mine for almost 2 years.... are you sure its always self limiting?

[centralscrutinizer]

I used to climb towers and high rises for a living with no problems. Since my diagnosis, I can’t even watch someone do those things without feeling like falling over.

[banlindane]

In Jan 2012 I had an extreme attack of vertigo, my heart racing at 170 beats per minute, was taken to the ER by ambulance. I even hate to think about it as I thought I was dying.I ended up on the floor and no matter if my eyes were open or closed I was spinning so dam fast : ( At first doctors thought it was pulmonary hypertension but it was ruled out. So I know its from my multiple sclerosis.

[smilergrogan]

My father (75) has been experiencing severe vertigo (caused by MS lesions) for the past 10 years on an almost daily basis and it's only getting worse. There is seemingly nothing he can do to ease his pain and suffering. It's horrible and debilitating. Completely restricts his life to being a shut in 99% of the time.

[DeniseLaFranceCDNpainter]

For the past 9 years, I feel like I am floating on water that I can only compare to the feeling like when you're standing in a canoe on water. I have PPMS. Also have chronic tinnitus... But there is no spending sensation. Effects my walking + greatly compromise is my balance. I also have a 1 cm meningioma on my right cerebellum.

[TaylorMadeDesignz]

Vertigo has been one of my main symptoms of ms so far. And unlike the lady in the video movement makes mine worse. If I focus on a computer or tv it eases it, but when I get up to walk it's horrible. I use Dramamine when it's real bad and it seems to help some.

[starlaberge]

I take Meclizine 25 MG and it helps tremendously 👍 I too, suffer from MS

[leonarhanneken]

Been dizzy for 7 years. Now having issues breathing. Dx 19 years ago and am now at ppms stage, I know my time is .... well ending

[lmundiclan]

I have the dizziness feeling like I am going to pass out for over a year. I was diagnosed with MS by MRI and the Neurologist said I had it for several decades. I also have pain in my shins, wrist, fingers unable to move pinky ring and middle fingers both hands. I also have pain in the orbits of both eyes, anyone else with these problems? I am a 78 yr old woman, not overweight. I was an executive assistant.

[PhoenixPhazing]

I too have M.S. & vertigo has been a hinderance for me well over 10 months now. Most of the time it is tollerable, but it hasnt dissapeared not once. Motion sickness meds dont work for me. The Dr. in the video states that I wont have to live with this "forever." I sure hope he's right. Meanwhile, my last hope is trying a series of Prednisone with hopes of finding relief.

[nhmooytis]

Antivert worked to get rid of severe vertigo I had in late 2015, I fell and broke my ankle...now I have mild vertigo when I change position especially in the morning.

[joseph]

Hi I had Vertigo but now it is gon I have in my kayak it not good for a kayaker

[Mojotown]

Do MS patients have many headaches? I get vertigo from passing objects from the corner of my eyes. Had a negative ENG, but get 3 headaches a week.

[lstcougarlady]

Do MS'ers ever use SERC which some Meniers patients use? Just wondering?