Life with hypermobility and Ehlers Danlos related symptoms #flexibility

LIFE WITH HYPERMOBILITY (in our case hypermobile Ehlers Danlos Syndrome)

or comment with the word Hypermobility and we will link you to it.

The following are just a few things that a geneticist or specialist may look at when evaluating someone for hypermobility and/or hypermobile EDS. Because this is a clinical diagnosis there is a lot of information that is gained in a physical examination and a thorough family and personal history. Having any one of these things, or even all of these things doesn’t necessarily mean you are hypermobile or have EDS. But when combined with other diagnostic criteria it indicate the likelihood of hypermobility or hEDS.

A Gorlin’s sign is the ability to touch the nose with the tip of the tongue

GI issues (gastrointestinal issues) this can include a range of things including issues like gastroparesis, dysmotility, IBS, SIBO, etc.

Pelvic organ prolapse- (POP) This is a bulging, or herniation of the pelvic organs from their normal positions. Possible prolapsed organs can include the urthera (urethrocele), bladder (cystocele), posterior vaginal wall (rectocele), small intestine (enterocoele), uterus, or rectum. In the image we are showing a significant prolapse which is bulging out of the vaginal opening.

Piezogenic papule- little herniations of fat through the dermis layer- often cause no symptoms and commonly seen in the heels especially with compression (standing).

Hernias- these can occur in carious areas including the abdominal wall (ventral, umbilical), in the groin (inguinal), stomach herniating through the diagram (hiatal hernia). Often times these are not painful and cause no issues.

Stretch marks when they occur at a young age, in rare areas (inner thigh, elbows, under the arm), and/or in the absence of rapid weight gain.

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[kellylozano]

Someone just told me about EDS, which seems like it is explaining my entire life. Now I find this, and I'm seeing all the things that I always done in my life and I had no idea they were unique.

[marcs]

Think this Is the first video about hypermobility I've seen that isn't just look at this creepy cool trick I can do with my fingers or feet.

[randomizer]

Pretty sure I have hyper mobility. I have TMJ, had a screw put in my hip as a teen & now need a hip replacement at 38. I also have those Piezogenic papules, stretchy skin, backward bending thumbs that also fold in half like an upside down & back to front 'L'. And to add to that I'm also neurodivergent. Which was how I came to know of hyper mobility & noticed that my above issues were connected & were not unrelated problems.

[danielstein]

Good to see EDS covered on Youtube. Now, if only I had the health besides the EDS in common with you. 😂

[timesnewbabylonian]

Genuine question, do any of you have ADHD by any chance? Love your educational vids 💪🏽

[gabriely]

Wait I’m so confused. The organ prolapse happens because you extra stretched ?

[NuvoVision]

Vouch is too proud to admit to himself he doesnt know. His ego interrupts the process and spews deflection, denial, and diversion. ....he will never learn anything this way. Ever

[ladyspartafitness]

I am so happy I found the two of you....literally my life in one short video😭😂

[NuvoVision]

"Men with wombs" ....guess who said that