Another week in 5th gear, buckle up 🏎🏁

Post RDD - 
- Last day of Feb, b/c rarest day
- What did we do?
   - Raised $25k!
   - Jansen and Kimberly were shared, and that is a win for all of us.
   - Webinar madness!
      - Two down
    - Two to go
    - SEVEN (7) New families this week
      - One not on FB, but reached out after finding us… via this podcast!  Yeah.
 
That’s right, there is a work outside of Facebook, we are on Twitter and LinkedIn and Tiktok and Youtube too!
- Follow us everywhere with @cureSYNGAP1 
 
Thank you to SAB and CAB
    - They are working hard looking at some of the seven grant proposal we received!  It’s going to be a great investment in the future of our loved ones…
 
Sprint4Syngap!
- 2nd Annual #Sprint4Syngap is coming April 30, 2022, help us raise funds by starting a team and/or donating!
 
What else?
- ORCA, thank you Kali, we have one person left and then we are locked and loaded for the next phase of that important project.
    - Great meeting with Overcome and partnering on Canadian grants.
    - One family, older, needed a neuro and we got them hooked up in a day.  Love it.
 
Episode 50 of #Syngap10 - March 5, 2022
#s10e50 #sprint4syngap #CouldItBeSYNGAP1 #probablyGenetic #SYNGAP1 #Syngap #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology