Is fibromyalgia REAL??

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Comment if you have fibromyalgia and you’ve felt judged. I apologize on behalf of my profession.

Bacterial infections existed before microscopes were invented and we could see the bacteria 🦠 Fibromyalgia exists despite modern medicine understanding little to nothing about it 🤷‍♂️

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As a Fibro sufferer i appreciate you saying this. Thank you

xSerenityx
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You are the first doctor that's admitted what us with fibromyalgia know. Thank you

BMCLegacy
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This made me cry! As i type this, i'm having the worse flare i've ever had. like i've been hit by a car.. 😞

laracroftth
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Thank you for making us feel seen. I so desperately want a doctor to say, "Well, the medical community is still figuring this out, but in the meantime I'm here for you. We're going to work through this. You're not crazy. You're not an attention seeker. You're not doomed to a life not worth living."
I know my life is worth living. But, I still need some help.
God Bless you.

brandylee
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Omg thank you!!!! I refuse to even go to the doctors to seek treatment because of this. So I sit and suffer in silence. This has to change. my life is gone bc of it. 😢

MrsBee-uolc
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Having a hard day today, after years of being passed around....little to no respite....and pushing myself past my limits I just stopped going to medical professionals. Started up again in the past two years and I am tired. Tired of them constantly bringing up CBT/ DBT, bipolar, psychiatrist ect. Done all of it, been on all of the meds....do have MDD which they love to use as an explanation. I was diagnosed at 13, I'm about to turn 38. I have not been to work for 3 years, tried going back to school but I'm failing because of so many missed days and backed up assignments. I am not a stupid person, it all began after a traumatic brain injury. I feel alone and wonder if I am just crazy, but then why have the treatments not worked? I am NOT making this up. I want a life, a quality one. I want a career. I want to be successful. It is difficult when you don't know how your body is going to be from one day to the next.

meghanodonoghue
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This is a true Doctor. He respects his patients and actually has compassion.

.

incognito
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I have been suffering with fibromyalgia over 25 years and I really do wish it was just a bad dream. I honestly wish somebody would do a study and I would 100% be the guinea pig. This pain is real and its like never getting any relief. Its like a evil shadow following you around wherever you go. The thing I hate about the doctor I used to have is I would go to see him and he would blame it on my fibromyalgia every time. I could have cancer and they would never find it because I have that label on my medical chart. I WANT someone to study me and really look me in the eyes and know that it is real.

KamiEveritt
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My symtomps got worse around the age of 21, but I didnt want to believe in the diagnosis of fibro. For years, I was like the many doctors who don’t believe in us. I thought it was all in my head, that I was bejng weak and lazy and that I simply needed a holiday, a break, the right college schedule, the right job at the right distance at the right pace etc. I pushed and pushed my body’s limit, masking the pain with medication. Now 25 years later, I am unable to work, have a child, form any close relationships romantic or as friends, I am poor, I am lonely and all alone, and worse I’m hopeless. Please dont be like me, find the right doctors, find what works for you and put yourself first. 😢

CuteCatsofIstanbul
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What a wonderful caring doctor you are! Sadly a rarity in the medical profession 😢

katemakeuplooks
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Thank you so much. I am working through my diagnosis right now as a 16 year old and I can’t help but to think that the pain is all in my head and that I’m causing it. I am lucky enough to have meet someone at my new school who has it and she has been giving me tips on how to deal with pain and how to stand up for yourself when someone does not believe you (especially medical professionals) thank you so much and I appreciate this so much ❤

ophi
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I guess everyone here has encountered the dead fish-eye expression from their doctors - even their pain doctors. I have. It's soul-numbing. Thank you for this rant.

dlundine
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Thank you so much for putting this message out there! I have a very complicated medical history including fibromyalgia and chronic migraine. I’ve been treating like scum by doctors and nurses who decide when they hear that, she’s a drug seeker. That is humiliating and painful. I’ve been through it so many times that I’ll suffer instead of dealing with judgmental medical personnel who aren’t interested in helping me!

kellyeichhorn
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As someone who has fibromyalgia, thank you. ❤

jetziiophelia
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I was diagnosed with fibromyalgia 10 years ago. I went on a clean keto diet and it disappeared. I can't say this will help everyone but if it gives someone a bit of relief then I'm glad I left this comment.

janemann
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The body keeps the score and maybe that’s what more doctors have to figure out about those of us living with fibro.

cherahishaw
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There was a part of me hoping my diagnosis would be something like lupus because I knew that if it turned out to be fibromyalgia many people, including doctors, would not understand or believe it

quitecute
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100% spot on ! 22 years now both neck and spine fused pain is 24/7 painful with no end

perrygonzalez
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That is exactly what most doctors do and it is ridiculous because it makes you suffer horribly and takes away quality of life and patients get so used to being dismissed and ridiculed that they either don’t seek help or simply don’t identify fibro as part of their medical history because of what generally happens next. It is a horrible position to be in and a hopeless situation to be in.

GandDMcInnes
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I’m tired I don’t see the point of living if I’m gonna suffer in pain everyday

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