Information for Adults Living with ALL

The Leukemia & Lymphoma Society (LLS) invites patients and caregivers to learn more about important issues that affect ALL patients, the need for continuous dialogue with healthcare providers, and information, support services, and resources available from LLS.

Video features Daniel Pollyea, MD of the University of Colorado Denver, Amanda, LLS Information Specialist and Marci, ALL survivor.

Support for this video provided by Amgen, Inc. and Pfizer Oncology.

[jbish]

As of this year, I am celebrating 5 years of remission from ALL T-cell. I was 50 yo at diagnosis and went into remission early (with no MRD), although I began treatment with pretty advanced symptoms. This won't be easy, but a cure is achievable. I had to endure aggressive chemo (Hyper CVAD), multiple lumbar punctures, various bone marrow biopsies and a haplo stem cell transplant, but it was all worth it to achieve "cured" staus.

My faith gave me the confidence to battle through this, and God has called me into the ministry, an unlikely result had I remained in my previous vocation. Looking back, I wouldn't change a thing, despite the treatments and the persistent fatigue I now endure.

That said, you can do this, whether you're the patient or the caregiver. Trust in God's providence. As hard as it is to see this, there is a plan in all of this.

[xBaphometHx]

My partner is 39 yo with ALL (Philadelphia negative). She is currently undergoing a chemo + immunotherapy treatment and her residual disease is lower than the expected. I so hope she is never going to have a relapse and that she can be cured without a transplant, because transplants in ALL patients can be worse in some cases.

[ursulaferrell]

My niece Dominique passed away on Saturday may 7th at 350 am she just turned 27 april 5th from all .t cell .iam trying to understand why? She did get infection, she had fluid on sides of lungs and intubated. Then last two days. They put her in medically induced coma. She was fighting breathing tube. Why? Help me understand.