An Update on Cluster Headache and Other Autonomic Cephalgias

preview_player
Показать описание
Presented by Susan Baggaley, FNP-BC, MSN
Рекомендации по теме
Комментарии
Автор

I have been very confused about what my issue has been for about 3 years now. It really is the most severe pain I have ever experienced. Nothing helps. My wife has panicked asking me if she should call 911 on a few occasions. The 3-4 hour attacks are the worst. I think it'd hurt less to rip your eyeball from the socket!
This video helped to clear up quite a lot of the mystery

christopherlowrance
Автор

What about Stem Cell Therapy? There are few research papers that are promising. anybody tried it? if yes where and who?

mariak
Автор

Oxigen does not work, verapamil doesnt work.
8 to 14 times in 24 hours a sumatriptan injection just before the attack will help me. 25 years a patient now. After 10 to 12 weeks it stays away for 2 years. Always in oktober november every 2 years.
Even had an experimental injection in the hypotalamus. 3 dec 2021 next apppointment

foutus
Автор

Big bag of frozen peas have been my best friend many times

ponzo
Автор

Let's admit that we have this disease. My advice would be to stay away from fermented drinks and foods. Beer, wine and bread are among them. Especially the bread you will eat for dinner is very dangerous. In my experience, sourdough and cereal bread does not cause pain.
Please share your experiences and recommendations too.

Turkish: Bu hastalığa yakalandığımızı kabul edelim. Benim tavsiyem mayalı içecek ve yiyeceklerden uzak durmanız olacaktır. Bira, şarap ve ekmek bunların başında geliyor. Özellikle akşam yemeğinde yiyeceğiniz ekmek çok tehlikeli. Benim deneyimde ekşi mayalı ve tahıllı ekmek ağrıya sebep olmuyor.
Siz de lütfen deneyimlerinizi ve önerilerinizi paylaşın.

NetworkLimited