Diagnosis of Myositis - Myositis 101 for Patients_5

This Myositis 101 for patients video is on “Making Diagnosis of Myositis", where Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book "Managing Myositis: A Practical Guide" explains patients in simple words how a doctor makes an accurate diagnosis of myositis. Next week he will discuss the differences between muscle weakness, muscle pain, and muscle fatigue.
Dr. Aggarwal will post one myositis video for patients each week.
Please subscribe to youtube channel - Myositis101 for future videos.
Managing Myositis Book:
Here is the amazon link of the book on myositis:

[suzetteboothe]

Thank God Almighty for this phenomenal Dr who cares for people who are suffering 😢. God Almighty protect and prosper you. ❤

[annmcnitt]

I can't tell you how grateful I am for your videos. I am in the process of being diagnosed, and they're extremely helpful. Thank you!

[susantabor]

Thank you Dr. Rohit Aggarwal for this information. I was diagnosed 7-19 and still learning day by day what is happening to me.
I have a good doctor but you are the one that makes this understandable for me. With all the reading I have done, you are the one that makes the puzzle pieces fit.
Please continue, I’m counting on you.

[rhondarogers]

This is a great primer, for people wondering what they should be asking for from their doctor, when often the doctor in many cases has never seen anyone with myositis. However, I would like you to address the incorrect diagnosis. In my case, the wrong type of myositis, by a medical team not familiar enough with the signs, but many people are told they have ALS, or MS, or even the famous "it's all in your head, you look fine." I think this is unfortunately all too common

[kevinoconnell]

So glad that this info is getting out to uninformed people. It's GREAT! Keep up the vids!

[lillyrocks]

I pray 🙏🏼 for a great rheumatologist, neurologists, radiologists, dermatologists, surgeons. This kind of conditions require different specialists that are connected. I feel weakness and the feel like hard as if I had exercise a lot. :-( in my arms, legs, pain, chest pain, etc. I have another autoimmune condition and I know it's possible to have more medical conditions at the same time.

[TheVchuka]

Can dry mouth and eyes at night be a symptom of Myositis? Thanks

[Maryam-smju]

Thank you Doctor for your wonderful explanations. Do you recommend seeing a neurologist for inclusion body myositis

[jenniferpresson]

I was diagnosed with JDM in 1980 when I was 10. I have been in remission for decades (I am 50), but I have had several flares of psoriasis recently. I had a punch biopsy to be sure that it was psoriasis and not DM. My ALT and AST are "unusually high" and have caused my Dermatologist to stop my medication because she thinks it's damaging my liver. I'm wondering if those enzymes have been elevated since my diagnosis of JDM and are my "normal". I have been to a GI doc and had a negative MRI of the liver. Please - do those levels (AST and ALT) remain high forever, or could this be due to a reoccurrence of my JDM?

[robertawearmouth]

What diseases have extreme muscle fatigue especially in the back muscles?

[mitrash]

I think I have Myositis but I am based in Canada and I asked about it and I was told because my CK levels are normal, I don’t have it, no further tests were done. I have extreme pain and fatigue and I have weakness in my shoulder muscles, chest and back

[krln]

Doctor, thank you for explaining about the diagnosis. It was very clear and easy to understand. Can you recommend any doctor in bangalore who completely knows indepth about myositis ?

[josephchong]

IS THERE ANY MEDICINE, FOOD SUPPLEMENT OR VITAMINS THAT YOU CAN GIVE US!

[jennifergerwer]

I was dx almost 2yrs ago now im kinda at standstill bc they dont know what else to do for me.

[RR-rqtq]

Can you recommend a rheumatologist in the Houston area?

[jaco]

Sedrate 116
Titer 1:160
Crp 11.1

Myositis?

[Christy-myplace]

Hello, I am trying to find information on Myositis unrelated to auto immune diseases. I have found that this can occur but no matter how I search for more information, only Myositis as autoimmune disease comes up. Are you able to direct me to a source on this? I’ve been completely inactive due to fibromyalgia for a few years. I started, very slowly, building up a walking routine to a few blocks most days and within a couple of months had diffuse, bilateral lower leg muscle fatigue/pain that resulted in discontinuation of this activity. I could not go on. So far, there is no relation to my knees or ankles. I go to PT hoping to resolve it. I appreciate any response you can give. Thank you!

[fibergeek]

If you have positive polymyositis antibodies do you still need positive ck and emg for diagnosis? My 13yr old daughter has had chronic muscle weakness and in severe cases accompanied difficulty breathing, u able to hold her head up etc. She was positive for anti jo antibodies but is not taking seriously by specialists because her ck levels are normal.

[Whirlingdirvish]

I have had all the tests for myositis including the biopsy. The only thing i don't have is the skin rashes, but everything else. They say that it's not myositis and they don't know what it could be.Help. For four years I have had the fall, difficulty getting up as well as the pain. I have to walk with a cane.Again, HELP.l

[pankajmondal]

Myositis ossificans problem
Sir, radiotherapy is needed before surgery. Sir please reply.