Myositis - A Diagnostic Journey

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Myositis patient Jay Fedosoff talks about his 12 month journey to get a diagnosis of myositis, a rare autoimmune condition that affects muscles.

  1. Rare Disease Report
  2. Orphan Drugs
  3. Rare Disease
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Комментарии
Автор

I am being tested for this right now. So I’m researching and learning about it. Thank you for this video

chronicallypep
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I have DM too. I was diagnosed with Lupus at 23 that was really Dermatomyositis. I can relate.

monicawilson
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We're proud to help people who have IBM.

indeelift
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My 13 yr old son has been diagnosed with Myositis, we have been 2 yrs into investigate his symptoms, at first he was thought to have mitochondrial but now its myositis . We are still waiting on any medication he may need ??, he has had no muscle biopsy ??, no xrays, scans . lots to learn . Really hard to see him in so much pain, he just wants no pain .

mishellekickett
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Hi, Could I speak to somebody about using this video?

rileyrides