Triggers of Myositis - Myositis 101 for patients 4th video

This Myositis 101 for patients video is on "Triggers for developing Myositis", where Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book "Managing Myositis: A Practical Guide" explains patients in simple words the environmental risk or triggers that can lead to onset of myositis. Next week he will discuss how MD can make an accurate diagnosis of myositis.
Dr. Aggarwal will post one myositis video for patients each week.
Please subscribe to youtube channel - Myositis101 for future videos.

[ericagibbons]

This type of pain actually was triggered when extreme heat wave came because I wasn't used to it. For the past two years I've had all kinds of joint pain however I just thought that it was just me doing too much because I was doing security at the time.

[nancycastilow]

Mine was triggered by Atorvastatin. Diagnosed by blood tests, antibody studies.

[elisamartinez]

Maybe, i'm not saying it as a proof, of course. But i keep a record of symtoms/daily routines to show my doctor and i'm very careful with my diet, sun protection, exercise, etc. and nothing changed except that. A few hours later that dreadful call, my skin began to react, and 48h later i had muscle weakness and pain.

I've had only 2 flares after being diagnosed and started treatment, and both of them were preceded by a stressful event (losing job and losing a friend).

There are studies that show people with post traumatic syndrome have greater chances of developing an autoinmune disease, so it might be a connection after all.
Sorry i can't explain myself better in english.

[CEBLR]

What about Chemicals? We live in Wisconsin & my husbands symptoms started in November. He worked as a CNC operator & was constantly sprayed in the face by the machine coolant. Studies out of UK says this coolant can cause skin & lung condition. He also lived next to an oil refinery back in 2002 where the ground & water was contaminated. Husband is MDA5 highly positive.

[bhartigupta]

Sir I am a dermatomyositis patient, in my case repeatedly genital herpes trigerred myositis and my environmental trigger being sunlight.

[manjusoni]

Gm sir my question is a12 year old boy was hospitalized due to severe muscle pain long term tiredness he was diagnosed as carnitine deficient one showing with right answer

[docdidi]

Mumps triggered my dermatomyositis. I was vaccinated for mumps as a child.

[tessmoore]

I've never smoked, I've been extremely healthy all my life, never been on a statin. I do have some mold mycotoxins and Lymes.

[raphrod]

Can I visit your office ? Are you in US ?!

[rdbare]

Mine followed strep....Moreover throughout my life, if I get step I flare in about 6 weeks.

[outofround]

I knew something was wrong. Things that I'd pick up were getting heavier and heavier over a period of months. Then one day I was cutting grass and all of a sudden it was as if I were pushing a car. I had been on astrovastatin for about a year. Went to the doc with flu like symptoms. CK was at 5975. Told to go to ER where I was flushed for a week. CK has remained high.

[ZinjNut]

I wouldn't be so quick to dismiss dietary factors. Molecular mimicry.... Developing antibodies in response to partially digested fragments of mammalian muscle tissue that cross the gut wall into the blood stream, triggering the immune system, with a resultant 'army' of antibodies that can cross-react with our own muscle proteins, would seem quite plausible!