Unraveling the Complexity of Chronic Pain and Fatigue (Part 3 of 3)

MEDICAL PROVIDER EDUCATION:
In this presentation, Dr. Lucinda Bateman teaches about the effective use of evidence-based clinical diagnostic criteria to improve patient outcomes including:

1. Institute of Medicine/National Academy of Medicine (IOM/NAM) recommendations for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS):
• Impaired function, activity intolerance, post-exertional malaise, disordered and unrefreshing sleep, cognitive impairment, orthostatic intolerance
• Neurocognitive testing, cardiopulmonary exercise testing
• Focus on orthostatic intolerance syndromes and treatment strategies

2. Recognition of generalized pain amplification syndromes may reduce reliance on opioids and improve treatment outcomes:
• Decreasing and assessing triggers for amplified pain

3. Effective symptom management strategies

📌Note to community members: We advise viewers to always speak with their medical professional before adjusting or changing their current regimen.

[forealbutt]

Its like you all are talking about me. Youve described every single thing that ive experienced the last 5 years. Happy that you can put words on my illness but still looking for how to become better? I have lost everything in my life. My 5 kids and 6 siblings my parents my job my economy is less than zero, the stress is rising with pain and fatigue. Me/cfs and ehler danlos syndrome is not socially accepted at all inspite of having been tested against Canada criteria. My doctor is wellknown in sweden but still i just cant seem to get help. Is there any way you could include me in somekind of group that is tested and gets known in the world? So far ive never heard of any lab-test that proves me/cfs. I have so far had fatigue, fibromya(gia, migrane, ehler danlos syndrom all kind of allergia that popped up and then after6 months went away. Ive had seizures that are unsolved my sleeping is very disturbed. Ibs and trouble swallowing. Urinary problems, heart and bloodpressure issues.severe rash and my hair fell out in big chunks. Bodyhair was totally lost. My sight is perfect but sometimes i loose sight in one eye for example. Not like former migrane. Extreme sensitive for change of temperaturedifferences. Souds and light actually made me cry. And the brainfog... ive been in car accidents a number of times. I have rathkes cyste several operstions after bypassed stomach.i could go on and on. Where do i start? I used to work for the government was always an overachiever since childhood. Did lots of volentary work was very successful in anything but now i just sleep in sofa two to three hours but never good sleep. My life feels over and destroyed on every level. Dont know how to get social services around me to understand. My family question the illness and when i try to teach them it always comes to but you look fine and are able to do things right now? They just cant understand that the effort is gonna cost me the next three days. Often people take it personally when im unavailable through cellphone and not even able to answer easiest text. I dont know what to do. I try to sleep as good as possible and do pacing with energy i have. Pls if you have solution to me or can treat me my doctor can send me anywhere in the world through swedish healthcaresystem they will take the cost in most cases. Thanks for reading, sofia foreal

[pamelasmith]

I just love your videos. They are just so informative. Thank you for discussing opioids. I am intolerant of most drugs and the only relief I get is from low dose oxycocet. My doctor doesn’t like me taking it, but she can’t come up with any other pain relief for me. If I don’t take it, I just can’t function. My pain gets out of control which gives me more anxiety, my blood pressure goes up, my blood sugar goes up and I can’t do anything. If I take a pill, it enables me to cope an go swimming and shopping and take care, of myself. I have had fibromyalgia for over 35 years now and am age 77, and I think I deserve to have the few years I have left as comfortable as possible. I have tried every kind of therapy, medication and exercise that there is. I am in pain 24/7, but my pain meds give me a little relief so I can cope. Swimming is one of the only things I can do anymore. It is very gentle on the body and feels so good. I can only walk a very short distance now. I may ask my doctor to try me on the LDN. Thank you for the information.❤️🇨🇦❤️🇨🇦

[kathypaup]

I have 8 of the common manifestations on your list and score for FM on the WPI, but have never been positive for tender points the 3 times I’ve been checked for them in the last 25 years. I have a 25+ year history of these symptoms that gradually increased one or two at a time until I ended up with chronic migraine and widespread pain. Finally a year ago my PCP says maybe fibromyalgia. No surprise to me.

[Kellykels]

Ty all. I've had M.E/cfs for 10 years and I'm bed bound. Its comforting to know that you're out there trying to educate doctors, most certainly need it