8 Things You Need To Know About Superficial Siderosis

Rhys Holmes shares the answers to the eight most asked questions about superficial siderosis. Take advantage of learning the facts about this rare neurodegenerative disorder directly from someone who understands this diagnosis first-hand.

[annek.]

This is a really helpful overview of the condition. My mother potentially has this, will be seeing some specialists soon for diagnosis confirmation.

[jojobobo]

thank you for this video.. i was Just diagnosed w/ siderosis.. think its time to go see a few national parks.

[charlieweida]

Thank you for sharing! I have a spinal fluid leak and there is concerns I have this condition. I’m awaiting an appointment at Cedar sinai. I will definitely join the group.

[jamminkeenan]

Love this 🙏🏻 will definitely be sharing! My dad suffers from this and it’s hard to explain to people what it is.

[susanmorrell]

Your video is very good, Rhys. I have not been diagnosed but a neuro has mentioned SS as a possibility and the video is informative and will give me a few things to mention when I speak to GP. Thank you.

[mikkopettinen]

Thank you for the video. I am a musician got got the diagnosis of superficial siderosis a couple of weeks ago. I have a hearing loss on my left ear, tinnitus all the time and some dizziness. I am also very tired sometimes. I will have a computed tomography in two weeks for more research.