Rheumatoid Lung Disease

Rheumatoid arthritis disease is a systemic disease that affects not only the joints, but commonly the heart and the lungs. This video shares my recent diagnosis of Asthma.

Study referenced: Lung Involvement in Patients with Rheumatoid Arthritis by Dimitrios Pappas MD, Columbia University

My diagnosis:
Rheumatoid Arthritis (1994)
Mixed Connective Tissue Disease - Unspecified (2003)
Degenerative Disc Disease (2004)
Osteopenia (1996)
Somataform Disorder (2008)
Major Depressive Disorder (1995)
Generalized Anxiety Disorder (1995)
PTSD (2010)
Chronic Insomnia (1996)
Rosacea (2003)
Asthma (2008 &2015)
Chronic B12 Deficiency (2008)
Chronic vitamin D Deficiency (2008)
Iron Deficient Anemia (2016)

Current Medications:
Remicade
Prednisone
Gabapentin
Seroquel
Vitamin Supplements

[kiki]

My mom has had RA for almost 35 years, and lastnight on the phone she told me about having 3 episodes this year of shortness of breath where she thought she might not wake up in the morning. She is seeing a specialist today, so i have been doing some research. One video i watched said the median survival rate is 2.6 years after diagnosis. I'm praying for my mom, and I'm sorry for anyone who has to endure this trial. God is good. And this life is short anyway, so put your trust in Jesus.

[noneyourbusiness]

thank you so much for the video. very informative. It has been taking doctors 2 years to finally diagnose my husband with chest arthritis and other issues. Thank you again.

[trishasharnowske]

Thanks for sharing. Straight to PULLINUIGOST..my husband has pulmanary fibrous & ra...going to transplant case just in case they said...ever doc hear crackles & constant cough .... GOD BLESS!

[vattguntasrinivasulunaidu]

Life is short. God bless us. Similar diagnosis lupus and myosist on prednisone 40mg & managing side dishes

[CarmenCares]

Thank you Bob for telling us a bit of your story. I am so sorry you are experiencing this horrible disease. I am interested in how quickly your symptoms came on and will look forward to talking with you more. Carmen

[MammaCass]

my rheumatoid disease has entered my lungs, I just got out of hospital for two weeks. :( much love to you x

[MammaCass]

my list of diagnosis is as long as yours too. haha thank you for this video x

[jeanettecollins]

Hi Carmen
I can feel with you the frustration running out of breath very quickly. I’m have RA for the past 2yrs and this lung and heart issue has come up for me and I’ve had to do some research to find out what’s been going on. My doctor hasn’t said what it is but just says it’s my age or the flu giving me antibiotics or puffers. I’m lucky to get 10 minutes of excursion and I’ve got to sit. No one has told me it could be RA. My pulse and heart rate goes up so fast. This has only been happening the last 4 months. I’m not sure what can be done but I’m going to insist on more tests

[forestkat]

highlly recommend you get to a pulmonologist. Avoid the ER if you can. There are meds that can help with minimal side effects.

[cherylr]

First I had SOB. After multiple CT's, echo of heart, blood work, no answers. Finally this year, both hands. I don't think my pulmonologist has a clue.

[MysticFogGarden]

I get coughing spelling, like Im going to faint, and shortness of breath feeling like I got water in my lung pain, but not severe like yours....Is RA Factor at 14 boarderline?

[abinayashree]

My mother has RA for 15 years and today her doctor told that it may have affected her lungs so she should scan for further details... Reports will known tomorrow. Everyone please pray for my mom i need her... Please pray for my mom

[CarmenCares]

FYI Rheumatoid Awareness Day February 2nd Rheum4us.org

[christopherleveck]

I'm 44 years old. If I'm laying down, watching TV, and I "jump up" to get something, lay back down quickly. Getting the remote for the TV let's say....
AFTER I lay down, I will find I'm all of the sudden out of breath. I take huge deep breaths and while I can feel plenty of air going in and out of my lungs, I feel like I'm not getting any oxygen....
It's the same feeling I get if I hold my breath and I'm running out of air.
It goes away after a couple of minutes, but it's really scary sometimes.
I can be working hard and not have a problem, then I go inside and take a shower, and AFTER my shower, when I sit down or lay down to rest, BAM, can't breath, sweating profusely.
After sex with my wife of 20+ years (so it's OK we are a mommy and daddy who love each other very much, sometimes..) I'm OK till we are done and them BAM, same problem.
And it's not all the time...
It only seems to happen at rest.
And it can happen after activity or no activity.
I do have to trigger it somehow. it doesn't happen just while I'm laying down. I have to get up. Or if I'm walking around I have to stop and sit down.
Anyone here have this kind of an issue?
I have spoken to and seen someone at the clinic.
But as always, I have to identify something for them to look for.
I think it might be
With all the referral BS and time to get an appointment, you can't just say I can't breath and get anywhere with RA.
And it's hard to narrow down one thing at each appointment to discuss because they won't spend more than 10 minutes with you....
I can rant for an hour about it, but you probably now of which I speak....

[bobkinney]

Carman C. I am still interested in telling you my story, I am sorry I have not gotten back with you, I have been in the hospital 3 times since we have talked or emailed please let me know one way or the other hope you are doing ok.